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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Are you taking any L-glutamate supplements or shakes or anything with MSG in it? Here's a thread that explains how L-glutamate may trigger a reaction like gluten does. -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Have you been checked for Lyme Disease? Lyme Disease has been known to cause nerve damage and worsening symptoms when carbohydrates are consumed. The AutoImmune Protocol Diet is recommended for symptom relief. Recent Progress in Lyme Disease and Remaining Challenges https://www.frontiersin.org/articles/10.3389/fmed.202... -
Thyroid problems, effects of celiac, or something else?
knitty kitty replied to Lou24's topic in Related Issues & Disorders
Jays, I thought you might be interested in these articles. They show that gout and rheumatoid arthritis can be improved with Thiamine supplementation. Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5... -
Optivia weight loss diet
knitty kitty replied to Miska's topic in Gluten-Free Foods, Products, Shopping & Medications
You should show this article to your husband and son. https://www.healthline.com/nutrition/optavia-diet?c=207111119#downsides "Specifically, these products contain large amounts of food additives, sugar substitutes, and processed vegetable oils, which may harm your gut health and contribute to chronic inflammation. Carrageenan, a common thickener... -
Your art and relationship to art on gluten
knitty kitty replied to Spherical Bird's topic in Introduce Yourself / Share Stuff
When I've had ataxia, I've been very uncoordinated and awkward trying to do everyday tasks, too, but I've found that doing something involving muscle movement memory is much more successful. Dancing would involve muscle movement memory, as would knitting. I knit really plain socks when I have ataxia, instead of the delicate lace knitting I love... -
Thyroid problems, effects of celiac, or something else?
knitty kitty replied to Lou24's topic in Related Issues & Disorders
@Lou24, I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Copper deficiency? Idiopathic Copper Deficiency Induced Myeloneuropathy https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8528345/ And... Burning Foot Syndrome” due to Acute Copper Deficiency Myeloneuropathy after Bariatric Surgery https://n.neurology.org/content/92/15_Supplement/P2.6-062 P. S. Take some Vitamin C. I hope you f... -
That's really interesting! I've recently been reading about anemia unresponsive to iron supplementation therapy actually may be copper deficiency. Thiamine needs Magnesium to work properly, a co-factor. Having Magnesium deficiency can affect how well the body can utilize Thiamine. Thiamine is needed to make different types of blood cells. ...
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Hello, @Rogol72, What a nice topic to discuss! Yes, there's a link between mast cells, histamine intolerance and thiamine deficiency. Using your smoked fish episode as a starting point.... Smoked foods contain sodium sulfite which triggers mast cell degranulation. Sodium Sulfite-Induced Mast Cell Pyroptosis and Degranulation https...
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I’m Done and Feel Like Giving up
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
Constipation is a symptom of Thiamine Vitamin B1 deficiency. Magnesium will help because it works with thiamine, but thiamine is needed also. This article explains how thiamine deficiency effects the part of the brain that controls automatic body functions like pooping. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency... -
Ataxia is a symptom of Thiamine Vitamin B1 deficiency. Paresthesia and neuropathy are more symptoms. Magnesium and thiamine work together, too. Thiamine works with the other seven essential B vitamins. Taking a B Complex, Vitamin D and magnesium are great ways to ensure our bodies get plenty of the building blocks needed for health.
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@victoriayatesxo, Welcome to the forum! Have you been checked for all types of anemia? Anemia can cause fatigue and somnolence. I've slept through ambulances, fire trucks, tornado sirens, etc. when I've been anemic. The medication you mentioned is prescribed to people with ADHD and people with ADHD can benefit from taking extra thiamine...
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Microbial transglutaminase is used in ice cream as a texture enhancer. It is technically an enzyme and part of the production process and as such is not required to be listed as an ingredient on the label. Microbial transglutaminase is used in baked goods, yogurt, ice cream, and processed foods, in both gluten free and nongluten-free foods.
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Poop advice!
knitty kitty replied to Mombles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Mombles, Welcome to the forum! The poop situation may be a result of fats not being properly digested. Usually the gall bladder releases bile that contains enzymes that break down fats. When it doesn't have enough Vitamin B1 Thiamine, the gall bladder doesn't make and secrete bile properly. Remember, Celiac Disease damages the small intestine... -
Getting diagnosis
knitty kitty replied to Sirenna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sirenna, Yes, they can all be related to Celiac Disease. Reflux oesophagitis in adult coeliac disease: beneficial effect of a gluten free diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1773586/ (Includes information on hiatal hernias) And... An Update on Eosinophilic Esophagitis: Etiological Factors, Coexisting Diseases... -
Getting diagnosis
knitty kitty replied to Sirenna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Sirenna! Yes, sometimes getting a diagnosis can be frustrating and time consuming. Seems most doctors have outdated concepts of Celiac Disease. If you Google "African Americans with Celiac Disease nih", results show several studies from the National Institute of Health. Like this one.... Celiac Disease and the... -
Chronic diarrhea can be a symptom of vitamin deficiencies. Vitamin B12 deficiency can cause diarrhea and even brain health changes before a deficiency can be detected in a blood test. https://www.nhlbi.nih.gov/health/anemia/vitamin-b12-deficiency-anemia And... Diarrhea and novel dietary factors emerge as predictors of serum vitamin B...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
That article says of the infant "Her mother attempted to reintroduce cow milk on the 59th and 64th day, but this was immediately followed by allergic manifestations which supported the diagnosis of cow milk allergy." Cow Milk allergy is an allergic reaction to the protein casein in milk. NOT because the milk had lactic acid, but because of the... -
Can Refeeding Cause My Skin to Becoming Leathery?
knitty kitty replied to Wendy Darling's topic in Related Issues & Disorders
Here's an article or two that might help.... DIET IN DERMATOLOGY: PRESENT PERSPECTIVES https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2965901/ And... https://www.hmpgloballearningnetwork.com/site/podiatry/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes And.... Hidden Hunger: A Pellagra Case Report https... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
I'm curious about your UBO's on your MRI. Dr. H.'s article talks about ataxia and MRI changes, but doesn't mention thiamine deficiency. Thiamine deficiency can cause bright spots on MRIs. Just curious if your bright spots might be caused by thiamine deficiency as well. Vestibular signs of thiamine deficiency during the early phase of suspected... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Ehlers-Danlos syndrome? -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
The inability to put on weight is a symptom of thiamine insufficiency. Interestingly, packing on excess fat can also be a symptom of thiamine insufficiency. Turning carbohydrates into fat when thiamine is low is the body's way of saving thiamine. The body burns fat as it's energy source when it's trying to be thrifty with low thiamine levels, too. Peripheral... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Yes. Exercise uses a lot of Thiamine to provide energy for all that muscle movement. When thiamine starts to run short, the body switches from aerobic means of burning energy to an anaerobic means that leaves lactic acid behind. This lactic acid build up is known as "the burn" as in the catch phrase "feel the burn". Normally, resting after exercise allows...