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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    If your GI won't squeeze you in sooner with your severe symptoms, you always have the option of going to the Emergency Room. Print out this thread to take with you since it describes your symptoms (and contains advice from seasoned Celiac Disease sufferers and we know what we're talking about!) Thiamine and B12 deficiencies can be life-threatening...
  2. knitty kitty
    More research articles.... Elevated Lactate Secondary to Gastrointestinal Beriberi https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And... 9 Signs and Symptoms of Vitamin B12 Deficiency https://www.healthline.com/nutrition/vitamin-b12-deficiency-symptoms And... https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency...
  3. knitty kitty
    Can you tell us more about your gluten free diet? What sort of things are you eating? Processed gluten free facsimile products? Dairy? Thanks
  4. knitty kitty
    @TT0202, Welcome to the forum! Sorry you're feeling so poorly. I understand what you're going through. My family thought the same about me, too. I struggled for years trying to get to the cause of my similar symptoms. But there's hope! Celiac Disease causes malabsorption resulting in vitamin and mineral deficiencies. Doctors are not as knowledgeable...
  5. knitty kitty
    @ceciceco, Welcome to the forum! I would suggest excluding the Miso soup. Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley. Some Celiacs develop sensitivity to soybeans and molds. Have you tried the Low Fodmap diet? The AutoImmune Protocol Diet has been scientifically...
  6. knitty kitty
    Hopefully these will be beneficial... Thiamine status in end-stage chronic kidney disease patients: a single-center study https://pubmed.ncbi.nlm.nih.gov/30182293/ Functional thiamine deficiency in end-stage renal disease: malnutrition despite ample nutrients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5518601/ Thiamine tetrahydrofurfuryl...
  7. knitty kitty
    Welcome to the forum and congratulations! Get checked for vitamin deficiencies before you start supplementing vitamins and minerals. Once you start supplementing, blood tests for vitamin deficiencies will pick up the supplements you have been taking and that will mask any deficiencies you actually have. Your doctor will be able to refer you to...
  8. knitty kitty
    @cristiana, Yes, it could be inflammation from the virus you came down with as well. Increase your Vitamin C and add zinc. I have also experienced B12 deficiency after getting any type of anesthesia, local or general, whether inhaled or injected. There are nitrogen compounds in injected anesthesia or inhaled as nitrous oxide. The nitrogen...
  9. knitty kitty
    @jackelynamills, Yes, Vitamin D can make that big a difference! Thank you for your wonderful reply about your results! It's brought me to tears. Hearing results like yours gives meaning to the fifty plus years I struggled alone on my journey to a Celiac diagnosis. Thank you!
  10. knitty kitty
    @cristiana, I had a filling once that sat too high and misaligned my bite. Didn't notice until after the numbing wore off. Sore jaw developed. Went back to the dentist and had the filling adjusted. No more problems. My dentist often commented over the years that I produced a lot of spit. Only later doing research for Celiac Disease, I found...
  11. knitty kitty
    Thought you would find this interesting.... "The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/
  12. knitty kitty
    Hello! The blood antibody tests are very specific for Celiac Disease. Very doubtful that yours is a false positive being so high. Staying on gluten until after the endoscopy would be beneficial in that you will have a more accurate baseline endoscopy with which to compare future endoscopies. Like @trents said, we don't know how long your...
  13. knitty kitty
    @Agrippina, I would be wary of that test sample, too. Stay on gluten, but don't go overboard to catch up. Hopefully you will hear from the company soon. Maybe @RMJ has more advice about this.
  14. knitty kitty
    Welcome back, @celiacker, There are more than just two genetic markers for Celiac Disease. The most common are HLA DQ 2 and HLA DQ 8. This article examines another genetic marker.... "Evidence that HLA-DQ9 confers risk to celiac disease by presence of DQ9-restricted gluten-specific T cells" https://pubmed.ncbi.nlm.nih.gov/22342873/ ...
  15. knitty kitty
    Buying certified gluten free products helps immensely. Nuts.com sells gluten free sesame seeds. https://nuts.com/gluten-free/cookingbaking/seeds/sesame/?refinementList[Product.facets.value][0]=gluten-free I test my transit time with beets. Don't be surprised by the color, though.
  16. knitty kitty
    So did mine. You've been diagnosed recently, but you've probably had Celiac Disease long enough to incur vitamin and mineral deficiencies. It's when our vitamins and minerals get low the our bodies start malfunctioning and symptoms appear. Celiac Disease is not like the flu, where once the flu or virus is caught you get sick immediately. Celiac is insidious...
  17. knitty kitty
    Welcome to the forum, @KRabbit. {{{HUGS}}} You're in good company here! We understand. I've been through the physical illness, addiction and mental health issues my whole life (going on 60). I've been ostracized by family and friends, too. I've yet to meet a Tom Cat with cajones big enough to deal with it. Missing opportunities for proper...
  18. knitty kitty
    @Babzo, Those do sound like symptoms of vitamin and mineral deficiencies. Vitamin C deficiency causes yellowing of the whites of your eyes (sclera), as does anemia and B12 deficiency. Easy bruising can be caused by both Vitamin C deficiency and B12 deficiency. Dehydration can cause sunken eyes. Endometriosis development is...
  19. knitty kitty
    Thank you! Happy Dancing!
  20. knitty kitty
    Tell us about the issues you are concerned with and we'll see if they are typical Celiac symptoms.
  21. knitty kitty
    Carol, I'm so sorry to hear you've been in hospital. Do let us know the results of your colonoscopy. Did they bother to do an endoscopy to check for H. Pylori, gastritis, flattened villi from Celiac Disease? You said you were diagnosed with gluten sensitivity. Was that a Celiac diagnosis? Pepto contains aspirin that might have caused...
  22. knitty kitty
    @jackelynamills, There's a connection between having a Gastric sleeve and Celiac Disease. Gastric sleeves reduce the area where vitamins are absorbed just like in Celiac Disease. After having a gastric sleeve, some people develop Celiac Disease. You should be checked for vitamin deficiencies. Deficiency in Vitamin D will cause joint and bone...
  23. knitty kitty
    It's fine. You just got the B12 supplements measured. If you're not comfortable, find a B Complex without the B12. Mine was as high if not higher, and the doctor said to quit taking my B12. I did and within a few weeks, I had insufficiency symptoms again. Once my small intestine healed and I was able to absorb more from my diet, I cut back...
  24. knitty kitty
    Thought you might like these, too... "Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/ And... "Repurposing Treatment of Wernicke–Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms i...
  25. knitty kitty
    Look on the labels of the multi vitamins and the B Complex vitamins and add up the total amount of B12. There are B Complex supplements and multivitamins that don't contain B12. You should stop taking any vitamin supplements four to eight weeks before having them measured. Otherwise the measurement reflects how much you've been taking that hasn...
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