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JazzyJake

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  1. JazzyJake started following Are Gastroenterologists too Slow to Spot Celiac Disease?  and Gluten-Free Shoppers Report Food Scarcity and Soaring Prices
  2. JazzyJake
    Very disappointing here in Lower Delaware: The gluten-free sections in supermarkets have been steadily shrinking for the last couple years. I used to have plentiful options, but now have to hit multiple stores hoping for options. Especially bad is when favorite products just disappear never to be seen again. The 2 nearest supermarkets now no longer...
  3. JazzyJake
    I had 3 endoscopies (because of GERD) in which the gastroenterologists did not take a biopsy for Celiac while down there. Nor did they check the blood markers, as far as I know. I apparently had celiac for decades without it being diagnosed despite seeing the appropriate specialists. Celiac was finally diagnosed by a neurologist – looking for the cause o...
  4. JazzyJake
    Me either! I would love to be able to drink good beer and eat some of my favorite foods, even if ocassionally!
  5. JazzyJake
    From the article I can’t assess the purpose of the shots: are they to protect from incidental gluten exposure or can one eat normally, disregarding gluten? Assuming that the shots are reasonably free from unacceptable side-effects and risk, I’d get them even if it only meant that once a month I could have pizza and beer or an Italian meal with bre...
  6. JazzyJake
    I wonder how much is contamination from “facilities that also process wheat”. I hate that warning on products that should naturally have no gluten. gluten-free trail mix is especially hard to find in my area, which is ridiculous.
  7. JazzyJake
    9 months on the diet and no improvement with the peripheral neuropathy and balance issues. Fewer digestive problems though, excepting wretched constipation for which I haven't found a solution. I question restaurants sometimes. (Somewhat) good news: I've dropped 25 pounds.
  8. JazzyJake
    I've been gluten-free for nearly 6 months with the same results as you- some improvement with fatigue, dreadful constipation. I call this the no-poop diet . If you have been taking proton pump inhibitors (PPI) for acid reflux, they could be the cause of stomach polyps - they likely caused mine. I have come to believe that PPIs are unsafe and have eliminated...
  9. JazzyJake
    Yea Hershey's! Boo Lindt's! It's also frustrating when a company's web-site says that a product is gluten-free, but the product itself isn't labeled as such. I've been complaining to them. And to the ones with products that should not have gluten at all - like the bag of roasted peanuts. I got a sympathetic reply from the Customer Service person...
  10. JazzyJake
    As a newly diagnosed celiac, shopping is frustrating. And it takes much longer! The worst are products that should not have a gluten substance but do according to their labels: Nuts (this after I bought the only thing from a vending machine that I thought was OK) Trail Mix Quinoa side dishes (lists wheat flour!) Oatmeal Spanish Rice Polenta...
  11. JazzyJake
    Interestingly, I was diagnosed with EE a couple years ago, via endoscopy, but the gastroenterologist did not check for celiac at the time. Recently my neurologist diagnosed celiac while searching for a cause of peripheral neuropathy. Celiac was confirmed by biopsy a couple weeks ago. There could very well be a connection.
  12. JazzyJake
    mbrookes, Try Magner's Irish Cider. It is much drier - less sweet and cloying - than the American hard ciders. I find the American ciders too sweet to drink too.
  13. JazzyJake
    A beer snob and recently diagnosed celiac, I can report that the only tolerable Gluten-free beer has been the Green's Amber. The Dogfishhead "Tweasons" is an OK drink, but tastes nothing like beer. The rest have been awful. Rice and sorghum do not a good beer make. I'm not sure if I trust Omission, so I've steered clear for now. The good news is that...
  14. JazzyJake
    I think you should talk to a gastroenterologist. The blood tests for the celiac markers are the first step. The doc may want to do a biopsy of small intestine tissue to both confirm celiac and to determine the extent of the disease. Don't freak out! The biopsy is done via endoscopy (tube through mouth into digestive tract) and does not hurt. I just...
  15. JazzyJake
    If I can assuage any fears: I've had at least 4 endoscopy procedures, really this is not a procedure to be feared. Really! I've had no side-effects. Other than sleeping off the anesthesia afterwards [yes - an excuse to sleep!], there is nothing that is required other than to show up with an empty stomach. You must try to get beyond the fear that...
  16. JazzyJake
    Both procedures are considered safe - I've had many searching for the causes of GERD and neuropathy. I have celiac disease. I concur that the worst part is the colon-cleansing prep - just be prepared to spend a significant amount of time in the bathroom the night before. Nuff said on that. The procedures themselves were not painful nor had any lasting...
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