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Latest Celiac Disease News & Research:
Everything posted by tiffjake
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Yes there are! After going to through all of my testing (which was kinda back and forth because we weren't looking for Celiac) and getting a diagnosis, my doc STILL told me that it is ok to eat gluten every now and then.....but let me tell you, it is NOT ok with me. I have gotten SO sick now that my tolerance level is so low. I refuse! And, to answer your...
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ARCHIVED Teenager Needing Help With Blood Results
tiffjake replied to macdwp01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I wanted to add something, but I just have to DITTO all of these points! -
ARCHIVED I've Never Heard Of Celiac Or Dh, But Maybe That's My Answer...
tiffjake replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My story is so simular to yours (married for four years, husband jokes about bathroom visits, hates to go out to eat because I bring a magazine for the bathroom, LOL)! You will probably find many with that story on here! And I am so glad that you have figured it out!!! And I hope that you get an understanding ear from your doctor about it. From what I have... -
ARCHIVED Please Help Me Find The Hidden Gluten In My Dinner
tiffjake replied to tiffjake's topic in Gluten-Free Restaurants
I didn't know that....and it makes sense because I am still "healing" and maybe I need to do that...take a break from restaurants for a while after getting sick! Good advice! Lauren, I am sure that you are an awesome server, but I have told them that every time, and I think some people/servers just don't care. I waited tables for four years,... -
ARCHIVED Please Help Me Find The Hidden Gluten In My Dinner
tiffjake replied to tiffjake's topic in Gluten-Free Restaurants
That makes a lot of sense!! I didn't think of that....guess I was just soooo excited about feeling better! LOL I have had that problem several times, and I have talked to the manager SEVERAL times, thats why they know me so well.......so I look now, REALLY hard, for crumbs..... -
ARCHIVED Please Help Me Find The Hidden Gluten In My Dinner
tiffjake replied to tiffjake's topic in Gluten-Free Restaurants
No, I didn't make my own dressing I am soooo not that good! I meant that I made my salad at home with my own dressing, hidden valled lite ranch. I have used it before with no problems....so I don't think that is it.... -
ARCHIVED Please Help Me Find The Hidden Gluten In My Dinner
tiffjake posted a topic in Gluten-Free Restaurants
Ok, so I LOVE outback and go there pretty often. They know me as the "glucose girl" because they can't remember gluten and the manager always checks on everything and asks if it came out ok......so tonight I did the to go thing. I got a new york strip, baked potato with butter and sour cream, and salad with tomato and cheese (no dressing, I know the gluten... -
ARCHIVED Enchilada (sp?) Recipe? Got One?
tiffjake replied to tiffjake's topic in Gluten-Free Recipes & Cooking Tips
Thanks Judy (me too ). I will try the papertowel thingy, sounds good. I have some general ideas about ingredients, but just don't know about the details. I am SO not a cook. But my mom is flying in tomorrow for a week (to help me get ready for hubby coming home. I have soooooo much cleaning to do, and shopping, we are going to vegas, my husband, and I... -
ARCHIVED Enchilada (sp?) Recipe? Got One?
tiffjake posted a topic in Gluten-Free Recipes & Cooking Tips
I need a good enchilada recipe....anyone know one? I am thinking cheese, corn, black beans, chopped onion, rice, all rolled up in a corn tortilla, and then some salsa on the outside....but I don't know if you need to let it sit for a while so the corn tortilla gets soft (soaks up the juice) or what kinda salsa is good to use. Any advice? Thanks! -
ARCHIVED I've Never Heard Of Celiac Or Dh, But Maybe That's My Answer...
tiffjake replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I don't have dh (as far as I know.....I have some questionable spots though, but I am not sure if I would call them dh and they don't look like the pics of dh I have seen, but they do flare up when I am glutened....so I dont know) but I do have celiac, and my symptoms are very simular to yours. I am not sure if you have a good relationship with your... -
ARCHIVED Emotional Reaction From Gluten? Do You Get This?
tiffjake replied to tiffjake's topic in Coping with Celiac Disease
Yup. (period, the end, I am done, please dont respond, leave me alone, I quit) -
ARCHIVED Emotional Reaction From Gluten? Do You Get This?
tiffjake replied to tiffjake's topic in Coping with Celiac Disease
Ok, so I started this post about being emotional, and now, I am crying and shaking. But I don't even know if I should post that. If you are keeping up with the back and forth on the parking post, someone is being really ON me and I just can't handle it right now. I am a friendly, nice person, who can normally let things roll off of my back, but not now. I... -
ARCHIVED Emotional Reaction From Gluten? Do You Get This?
tiffjake posted a topic in Coping with Celiac Disease
Ok, so I had a little incident tonight (see the post about rude people and notes on cars) and I was glutened last night by a chip at a resturaunt....and I am really feeling the effects....but now I am wondering if the glutening could be adding to the emotional rollercoster I am going through. Part of me wants to find whoever wrote that note and hit them.... -
Hi Lisaemu! I am TOTALLY "hearing" your story! Been there, done ALL that! I "tested" myself for months, and then ended up in the hospital after eating a bowl of spag! It got bad enough for me to quit putting my body through that. I know it is hard, it is new for me too (just 6 mos). But you have to stop putting yourself through that. Sounds like you already...
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ARCHIVED Newly Diagnosed Son Advice Please
tiffjake replied to youngmum3nz's topic in Parents, Friends and Loved Ones of Celiacs
I don't have kids and I don't have too much advice to give you....but I do want to say HI! Welcome to the board youngmom3nz! You are welcome to vent here anytime, I do! And the people here are great and "listen" or read and post. People DO care!!! I wish you health! God Bless, Tiff -
I had a dream that I was having a roll at a great local steakhouse that is known for their fresh bread and I took a bite of it, and then spit it out! It was so weird. I woke up with a smile and laughed about it all day!
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ARCHIVED Gluten Sensitivity Gene In Children
tiffjake replied to a topic in Parents, Friends and Loved Ones of Celiacs
Hi Dianna! First, I don't have kids...so I am throwing out ideas here.....but I KNOW that there are others on here that can help you! Fruit, like grapes, is always a good treat (maybe sliced for the younger one?). There are also a lot of good gluten-free cookies like MI-DEL's Arrowroot cookies which look like animal crackers. They won't know the difference... -
ARCHIVED How Gluten-free Are Nuts?
tiffjake replied to SColor's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe get the nuts in the shell, then you can take them out of the shell and any gluten would be on the shell?? I eat the "tube" of nuts, planters I think, and I checked the label and it didn't say anything about being manyfactured in a facility that deals with wheat. ****Ok, I just went and got one of the packages from the kitchen. It is Planters (with... -
Hi Amanda! I am so sorry that you have been so sick! It sucks, I know. There is one antibiotic, Flagyl, that makes me puke. I can't take it at all (not to mention that I have no idea if it is gluten-free or not.....hm.....). I have been "going" gluten free for 6 months. I still get confused sometimes, especially at resturaunts. I got sick last night from...
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Well, I think we should try a new one, you up for it? We would need to keep it "up" so new people see it and join....
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Ditto....and I add that if you talk to a manager and let them know your concerns, they MAY be kind and willing to make sure that things are as safe as can be......but that is a maybe. Not all of them are like that. I have had GREAT experiences, and HORRIBLE ones. It is a crap-shoot. I understand the fear though.
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Sparkles, I totally agree with the above points by Jnkmnky. I have tried IT ALL and I am now a wonderful 265 lbs (sarcastic on the "wonderful" part). The bottom line is this, burn more calories than you take in. That might mean eating fewer calories, or burning more. Having problems with foods just means that we have to run our food through a "filter" before...
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ARCHIVED I'm New Here, A Question?
tiffjake replied to GreySaber's topic in Board/Forum Technical Help
I know for me, it was 24-36 hours.....I have a pretty reactive stomach. If I eat something with gluten in it, I am sick within 45 min or less....and when I am better, it is pretty fast for me. -
I get night sweats or hot flashes (and not always at night, but usually at home in a "rest" mode) and only when glutened....maybe a connection? I got *something* gluten-y last night at dinner and was up at 3 am burning up and sick to my stomach. I don't know, just wanted to throw that out there.
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ARCHIVED Kraft - Catalina Dressing?
tiffjake replied to VydorScope's topic in Gluten-Free Foods, Products, Shopping & Medications
Just a thought....because I got sick when I *knew* I shouldn't....are you sure it was a gluten reaction, and not a reaction to bad lettuce or a stomach bug? Maybe you got the brain fog or some other symptom that you KNOW has to do with gluten, but I just want to pose that question. I am so quick to blame gluten, but I think I actually got sick from bad lettuce...