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CMCM

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Latest Celiac Disease News & Research:

Everything posted by CMCM

  1. CMCM
    I felt the article was directed at those who have no idea celiac disease exists. But it was still fairly thorough...lots of sidebars with extra information. Nothing in it I didn't already know, but it would be eye-opening for someone who has no idea about it....and there's enough info to perhaps raise red flags with their own puzzling symptoms. I would...
  2. CMCM
    Definitely NOT in the induction 2 weeks. After that....I don't know! Probably in moderation, though. It's funny....I was reading stuff on a low carb forum and all these people were describing symptoms which sound like.....CELIAC! It's amazing, and they have no idea about it! I just know some of them must have it, or at the very least, gluten sensitivity...
  3. CMCM
    What you mention really is the crux of the issue to me. I'm 56, I ate gluten my whole life until 2 months ago. I tested with both a celiac and a gluten sensitivity gene, but having those genes doesn't necessarily mean I have celiac disease. I tested positive on the antibody test, but the malabsorption test was a low figure within the normally expected...
  4. CMCM
    I just reviewed by Atkins book for the basics of induction (the purpose of this is to convert your body from a carbohydrate based metabolism and jump start it to a fat mobilizing one). Meats allowed are: fish, chicken, turkey, shellfish, beef, port, lamp, bacon, veal, ham, eggs, 3 to 4 oz. of full fat cheeese such as cheddar, Gouda, Mozzarella, swiss...
  5. CMCM
    After doing the induction phase for awhile (supposed to be 2 weeks), I think the only thing I'll add in will be the fruit...probably berries. I'm curious at this point about exactly what causes my digestive distress. I know for a fact it's virtually ALL grains including rice, all starches, probably sugar too that mess me up. I'm down a pound more today...
  6. CMCM
    I decided to try Atkins for awhile because I remember feeling really really good while on it a few years ago. So today, I just ate eggs & bacon, small salad for lunch with deli chicken, an In-Out protein style burger later, and half a Kielbasa sausage link this evening. I feel SOOOOOOO good I can't believe it. My carb level was pathetically low, something...
  7. CMCM

    ARCHIVED Glutened Myself

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    This has really made me realize that I have to read every single label for every single thing looking for gluten or casein. Things have so many ingredients these days. That's why the Lara bars were such a happy find...just a few ingredients and all natural! I guess the more ingredients things have the worse they probably are for you!
  8. CMCM
    I get just as sick with eating any casein as I do with gluten, maybe more noticeably so. Like you, I find the casein enormously hard to avoid. I didn't test positive to soy, but I tried some soy milk and it really made me sick so I avoid it too.
  9. CMCM
    There's a lot of frustration here that you haven't tuned into. I doubt if anyone here lumps all doctors into the same category. I myself have a perfectly wonderful doctor who told me right off that I knew more about celiac disease than he did. And I guess he didn't have time to research it since he's a GP and I would have needed a specialist like a gastroenterologist...
  10. CMCM
    When I was in Whole Foods the other day I saw this magazine on their newsrack by the checkout...title was "Alternative Medicine", and it has a big 6 page article about celiac disease! This is the April issue. It's an interesting magazine I hadn't seen before, and the article is good and informative. I guess this isn't a particularly mainstream magazine...
  11. CMCM
    I had tried this wonderful, gluten free Thai Kitchen brand Pad Thai....so when in Whole Foods the other day I grabbed a different box they had on sale...Annie Chun's Classic Pad Thai. I scanned the ingredient list, but missed the wheat for some reason because I was assuming it was also gluten free. So I made it and ate it, and THEN....discovered the fact...
  12. CMCM
    I just tried some of their own brand of Wheat/Gluten free (also casein free) banana waffles....much better than the Van's gluten free ones. I think they might have had other waffle flavors, but I only got this one. Very mild banana flavor, but great texture and toasted up great! I also get some Thai things there...Pad Thai mixes, stuff like that. I didn...
  13. CMCM
    I was just looking at the glutenfreeda web site...but you can't really look at anything unless you're a member. I was wondering if anyone has tried this...
  14. CMCM
    I'm very pleased with 2 Kinnikinnick breads I've tried...the Italian White Tapioca Rice Bread and the Brown Sandwich bread are both wonderful toasted. I keep them frozen, then when ready to toast I nuke a slice in the microwave for about 20 seconds, then toast it. I haven't tried to eat them just thawed out....but they seem nice and soft and not falling...
  15. CMCM
    I've been sort of thinking about a bread machine. I searched around and it looks like the best liked one is by Zojirushi....lots of totally positive reviews plus some positive one from gluten free owners. There's also a new one by Cuisinart for about half the price of the Zojirushi one, but no gluten comments (it has a gluten free cycle, apparently) but...
  16. CMCM
    I think what is upsetting is that there is now a fair amount of information out there about celiac disease, but doctors (when confronted with the possibility) don't put much effort into learning about it. If I, as a doctor, had done just a modicum of research I would have learned that celiac disease is extremely common in Europe and is routinely tested before...
  17. CMCM
    Would you ask Dr. Green more about what he said in his book....that wheat contained in shampoos etc. would not affect you. Many people here seem to disagree with that statement. He is the only person I've read to said that. It would be interesting to see what he has to say about why he thinks that. As for CC, perhaps we're all different, but you just...
  18. CMCM
    Same with me....I love various beans but they always kill me! Usually not worth it to eat them....even with Beano!
  19. CMCM
    Well, in my view this technique might address this immediate situation they mentioned of External Pathogenic Factors which can take hold if you have a compromised immune system such as might exist with celiac disease. And perhaps this technique could elimiante that part of things. HOWEVER....as I once saw celiac described, it is the ONE and ONLY autoimmune...
  20. CMCM
    I think with celiac you always have to look for additional sensitivites, which seem to vary from person to person. A lot of celiacs have trouble with dairy and soy as well. For myself, I tested sensitive to gluten and casein. Soy was negative, yet I definitely have trouble with it for whatever reason so a test doesn't tell yo everything. I've also discovered...
  21. CMCM
    I think for me the worst is the horrible burning pain I get sometimes (but not all the time!!). I'm in such pain all I can do for HOURS is lay down with a hot water bottle on my stomach area. I guess what's annoying is just the bloated, sick feeling followed sometimes by nausea and always by near D. And it's horrible if it hits later on when I'm not expecting...
  22. CMCM

    ARCHIVED I Love You Guys!

    CMCM replied to Megan's topic in Coping with Celiac Disease

    If you have to be eating the equivalent of 6 slices of bread a day to show up positive on a gluten blood test, I probably would have been negative for a couple of years, because I NEVER had that much ona daily basis. I'd suggest at the very least getting the gene test from Enterolab ($149), or if you want a more definitive answer, do the full gluten sensitivity...
  23. CMCM
    \ Dani.....I do my hamburgers on a small George Foreman grill....you don't put any grease at all on the grill, and any fat from the burger drips off. I also buy ground sirloin because the fat content is much much lower. Doing the patty this way doesn't bother me, but frying it would.
  24. CMCM
    NANCY....Coconut milk ice cream? Did you make it? Recipe?
  25. CMCM
    OH...I cannot recommend highly enough John Lee's book....it absolutely changed everything for me...for the better. I wish I'd discovered it long before I did.....I had what I now know were my worst perimenopause stuff going on in my early to mid 40's....then at about 48 I found the Lee book and really changed my diet (especially cutting out most sugar, limiting...
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