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CMCM

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Everything posted by CMCM

  1. CMCM
    I really think restaurants are a minefield....after all, pretty much the only thing the cook's etc. would know is that you can't eat wheat. Period. They don't really know what gluten is and don't know all the items and names it can hide under. Plus, restaurants use a lot of prepared multi-food ingredients they buy from restaurant suppliers and they might...
  2. CMCM
    My feeling about Dr. Green's book was that it wasn't particularly original, and it really didn't contain anything new and enlightening. On my list of "celiac books to read" it would probably rate at the bottom of everything I've read thus far. It had simple explanations and useful facts in it, and was clearly organized, but just not all that impressive...
  3. CMCM
    My tests took exactly 2 weeks. If you are doing the gene test as part of the larger celiac panel, I believe that one is sent out to another place, so they probably wait until it comes back to compile all the results. There are so many symptoms and other possible disorders connected to celiac, it's always hard to know what is going on. Getting the tests...
  4. CMCM
    I hadn't seen this quote before from Enterolab's site" "However, it seems for gluten sensitivity to result in celiac sprue (i.e., result in villous atrophy of small intestine), it requires at least 2 other genes also. Thus, not everyone with DQ2 or DQ8 get the villous atrophy of celiac disease. However, my hypothesis is that everyone with these genes will...
  5. CMCM

    ARCHIVED Interesting Info

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    My mom is very careful with mayonnaise....she gets a good one from Trader Joe's. As for vinegar, she only gets it if she knows the source of the vinegar. I don't know if she has had trouble with these items or if she's still just super-careful. When she was first diagnosed 40 years ago, labeling was terrible and she really had to be careful.
  6. CMCM
    I think you're so right! The gluten free goodies don't have gluten, but they are high high high in sugar and a whole bunch of icky sounding ingredients. They are definitely NOT health foods. A lot of them have sugar as the first, main ingredient. I was testing a bunch of these things in the beginning, but had to back off for now because the upset wasn...
  7. CMCM
    I agree with you 100%. When I was eating gluten, it definitely set me up for cravings and binging on things. Wheat/gluten has addictive properties too, which probably explains why America eats so much of it, every day, almost every meal. Gluten druggies!
  8. CMCM
    This is getting interesting....definitely a trend slanted towards Ireland and Northern Europe! And a few people mentioning Native American, which I would expect since that population would have had the shortest exposure to gluten. It would be interesting to see what the incidence is with 100% Native Americans....I'll bet it's very high. I've seen a couple...
  9. CMCM
    Your Enterolab results should have had the info I'm posting below. This stuff applies to your test too: "The gluten sensitive, celiac genes are HLA-DQB1*0201 and HLA-DQB1*0302 (HLA-DQ2 and HLA-DQ8, respectively)." Having two copies of a gluten sensitive or celiac gene, means that each of your parents, and all of your children (if you have them...
  10. CMCM
    Read all you can and then do the diet absolutely seriously. You might also keep an eye out for other possible sensitivities....like casein (dairy protein). I found I had to give up both gluten AND all dairy. If you can stick to the diet properly for a good amount of time, then a small cheat with gluten and/or dairy will definitely show you a strong reaction...
  11. CMCM
    Now I'm getting depressed again. One thing after another gets tossed out of my diet due to gluten or casein. Let'se see now...I can eat eggs, chicken, some fish, veggies but not nightshades or anything with starch, no rice, no this, no that. No wine! One of my few pleasures that was left! Time for a pity party I guess. Boo hoo hoo
  12. CMCM

    ARCHIVED Interesting Info

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    Wise words! We're much better off not fighting the inevitable! When I recently got to that point, where eating the food isn't worth the upset and pain associated with it, then food loses a hold over you and it's actually fairly easy to stay away from things. At least, that's what I'm finding lately. I suppose it could change....but I don't think it will...
  13. CMCM
    Casein is the milk protein, whereas lactose is the milk sugar. Two completely different things. I supposed you could actually be both at the same time. I also had my worst reactions from milk and ice cream. In fact, the thing that made me the sickest was milk and cereal (I loved Wheat Chex!). Sometimes I did ok with low fat yogurts, and some cheese...
  14. CMCM
    Well, my symptoms weren't the exact same thing every time. But generally, almost continual upset stomach, gas which seemed trapped inside a lot of the time, bloated belly, sometimes a burning pain down the esophagus into my stomach (when I would eat wheat things!!), occasional sharp pain in the stomach which would last for hours and hurt so bad I couldn...
  15. CMCM

    ARCHIVED Interesting Info

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    That UK site was very interesting...set up a lot different from this one! I swiped this bit of info from there...kind of interesting. _________ Gluten free - what is it and do we need it? Professor John H Cummings Professor of Experimental Gastroenterology University of Dundee ....no one really knows how much gluten can safely be...
  16. CMCM
    It's probably hard to say because each person is different. Using myself as an example, I'm 56 and had certain symptoms as an infant (I couldn't tolerate milk). I don't remember problems in my teens, maybe not even in my 20's, but I always had a feeling I had problems with dairy....when the idea of lactose intolerance became a buzz word, I figured it was...
  17. CMCM
    No, most doctors you encounter would not know a thing about Enterolab. Doctors study specific, recognized methods of testing in medical school in their 10 minutes on celiac disease, and Enterolab is NEW. Generally, if a doctor doesn't know about something it's not valid in his/her mind. Enterolab is cutting edge, but getting more and more recognition...
  18. CMCM
    It makes perfect sense to me. Awareness is the key....but knowing the genes from both parents is great because then you really have a firmer idea. Obviously if you have been diagnosed celiac you have at least ONE gene, but if like me, you find out you have TWO genes, then you know for sure your kids have at least one problem gene. For me, the wild card...
  19. CMCM

    ARCHIVED Interesting Info

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    Nikki...I'm curious...are doctors in the U.K. any more knowledgeable than they are here (which is not much in most cases!) in terms of diagnosing celiac? Is there more awareness there? It's such a battle here, it often seems like the only ones who know much and are clued into this are the celiacs themselves!
  20. CMCM

    ARCHIVED Not A Good Day

    CMCM replied to CMCM's topic in Coping with Celiac Disease

    Wow, well that's interesting about a 10 day time frame. I guess I have never considered that...my reactions are fairly quick...within a day for the worst of it, and then I guess I always figured it was over and something else might be bothering me. Or perhaps....and does this make sense???.....after a major gluten episode maybe the residual effect of that...
  21. CMCM
    Thanks Nancy. There goes another thing I like to eat down the drain.
  22. CMCM
    This really is like a huge can of worms. I can see my major problems were with gluten and dairy, but as I was eating most things I liked, it was just a snowball effect most likely. So I eliminate gluten and dairy, and all the other stuff comes to the forefront. You mentioned in your signature about sugar...I also think that affects me in a huge way. But...
  23. CMCM
    After Enterolab diagnosed me as positive for casein, I asked them about it...here's the reply: "If you do not take gluten and casein out of your diet, you could eventually incur intestinal damage. Dr. Fine encourages a lifetime elimination of both gluten and casein once you are positive. You may not have the same symptoms after a period of elimination...
  24. CMCM
    I put this post under "travel", but thought many might miss it so I'm putting it here too. I thought this info was interesting.... ____ In the book "Living Well with Celiac Disease...Abundance Beyond Wheat & Gluten" by Claudine Crangle, she makes this comment: "In Europe the celiac diet is considered "gluten restricted" rather than gluten...
  25. CMCM
    In the book "Living Well with Celiac Disease...Abundance Beyond Wheat & Gluten" by Claudine Crangle, she makes this comment: "In Europe the celiac diet is considered "gluten restricted" rather than gluten free. Trace amounts of gluten in a product are permissible...food products can still contain a minute amount of gluten and and be marketed to those...
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