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Sugarcube

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Everything posted by Sugarcube

  1. Sugarcube
    Esophagitis can itself can cause an elevated ttg without celiac. The celiac genetic test could help rule out celiac if he doesnt have the genes. The DGP test would be useful also.
  2. Sugarcube
    Just to update this thread. I recently had a repeat ttg test (on a normal gluten diet). My ttg are now within the normal range. This proves the theory that other conditions e.g. parasites (especially Giardia) can temporarily mimic celiac until they cleared.
  3. Sugarcube
    The Celiac genetic test has limited diagnostic value as can be present in about 40% of the general population. Although your ttg is negative, they should consider running the Anti-deamidated gliadin IgA & IgG test for a more complete picture. Sometimes the ttg can be a false negative even if you are not igA deficient.
  4. Sugarcube
    Sealy-yak - Can you confirm if they did the Full Celiac Panel? Some Celiac blood tests are more reliable than others.
  5. Sugarcube
    Yeah each of the Celiac tests is negative meaning its highly unlikely that you have Celiac at the moment.
  6. Sugarcube
    FYI its difficult to detect parasite from stool tests. I had similar symptoms that you describe in your first post. My Parasite was only detected after an endoscopy.
  7. Sugarcube
    Apparently there is a new celiac blood test (tTg neo-epitope [tTg-neo]), which is said to be more reliable than the current favourite: (anti-tTg). Does anyone have any more info on this test and when it will become widely available? Some quotes that i could glean from a google search: "More novel diagnostic antibodies for celiac disease" In...
  8. Sugarcube
    Sterling - in London my NHS hospital was happy to provide copies of blood tests & the biopsy to my GP. I was then able to obtain the results via the GP. The EMA test is actually the most specific for celiac, whilst the genetic test has no diagnostic value, as 25%-40% of the general population will test positive. The genetic test only has some value...
  9. Sugarcube
    Sterling, please can you advise which blood tests had indicated Celiac? False positives are possible with ttg, but the EMA endomysial test is supposed to be near 100% specific for celiac.
  10. Sugarcube
    I cant understand why your GI would tell you to go gluten-free, especially considering your mild symptoms. Nevertheless, a full celiac blood panel with the celiac gene test, could help shed light on your celiac status.
  11. Sugarcube
    You mention that you might have had a stomach bug at some stage? So in addition to celiac, I would also suggest testing for giardia / other infections. My Giardia had caused many of the symptoms (abdominal pain, nausea, constipation, loss of appetite, fatigue etc) that you mention. Giardia can become chronic and may not clear itself without antibiotic...
  12. Sugarcube
    Yes, without damaged/flattened Villi and negative blood tests, it seems unlikely that you currently are a celiac. Did they run the Celiac gene test? If you dont have the celiac gene then your risk of ever becoming a celiac is negligible.
  13. Sugarcube
    I couldnt open the attachment. But as per the below study has your GI ruled other the other causes of increased intraepithelial lymphocytes (IELs) ? Per this study, Increased IELS would not appear to be entirely celiac related. Open Original Shared Link "Increased IELs in small bowel mucosa have also been associated with autoimmune disorders...
  14. Sugarcube
    Several conditions other than Celiac, can elevate ttg readings including autoimmune diseases, a parasitic disease/infection etc. Also for some patients the ttg can be a false positive. Which is why I think its helpful to have the full panel, to make an interpretation. Your GI/Gut specialistic can run the full panel on the NHS. Which is what they did...
  15. Sugarcube
    Several conditions can cause increased lymphocytes in the duodenum including Celiac. The blood test will help confirm /rule out Celiac. If your villi is normal along with negative celiac blood test, then this would make celiac unlikely. Do you know which blood test has been requested now and two years ago? Its possible that something could...
  16. Sugarcube
    It sounds like you have just had the ttg blood test. Hopefully when you are seen by the gut specialist/GI he will run the full celiac panel as well as the celiac gene test. Your intial results are potentially suggestive of celiac, but ttg can be falsely postive particularly if you have other auto immunte / gi issues.
  17. Sugarcube
    My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t...
  18. Sugarcube
    JamesW - ttg & Deamidated Gliadin Peptide measure different things. So its not correct to state that DGP is only required if ttg is negative. Actually the DGP test can be superior to ttg. DGP would be useful in confirming the Celiac, indicated by your ttg readings. If your DGP levels are also elevated, then i think your celiac is almost certainly...
  19. Sugarcube
    Cyclinglady - "The NHS probably only authorizes the TTG test" - From my experience I can confirm that this is not correct. The NHS (at the gastro clinic), were able to run the following additional coeliac relating panel tests for me. So these don't necessarily need to be arranged privately. Its possible that the GP can only request TTG, but...
  20. Sugarcube
    Kyz1981 - Coincidently, im also from the UK. My Gastro was able to run the below tests during my clinic appointment. They also checked my bone density as celiac is known to be a risk factor for osteoporsis. -Endomysial AB IGA -Gliadin IgG -Gliadin IgA -IGA
  21. Sugarcube
    Kareng - There is no harm in having all the information upfront to use as a basis for comparison later and to be certain I also had an 'exceptionally' positive ttg >150. (normal range 7), but after treating my giardia (but remaining on a normal diet) the ttg levels have dramatically decreased by>70% just 3-4 months after giardia treatment. I...
  22. Sugarcube
    What blood tests were specially included in your celiac serum? Was it only just the ttg iga test? Then its possible that this could be unreliable if you are IGA deficient
  23. Sugarcube
    I think it would also be helpful to run the full celiac panel at this stage. This would then help for tracking progress on a gluten-free diet.
  24. Sugarcube
    The Anti-ttg is a good starting point for celiac testing.. Might be necessary to do a full celiac panel depending on the result.
  25. Sugarcube
    I think it would be helpful to do the celiac genetic test next. It can help rule out celiac.
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