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About KKJ

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  1. When I was tested, my IGa came back very low, nearly nil. Turns out that I have the most common form of immune deficiency called an IGa deficiency. So, my doc ran other tests to confirm/rule out celiac as well astook a biopsy, and for sure, all results showed that I have celiac. Many of us with IGa deficiency are asymptomatic and the thought among immunologists (at least mine) is that those of us w/o symtpoms likely have IGg in the areas were there'd be IGa and it's taken over the role of the missing / low IGa.
  2. I use Spicely. ALL their spices, even the combos, are certified gluten-free. You can find them at some Whole Foods, Lassen's, and other markets, BUT you can buy them on line directly from them at spicely.com. I've found their products to be very fresh and very flavorful.
  3. Let's be clear here that the issue is not lack of grains or gluten or too much protein that's causing this issue. It is the filler/cheaper protein that the companies add by way of added legumes (chickpeas, lentils, peas, etc.) that is the cause of the heart disease. This means you must do your homework, read ingredients labels, and if needed, call the company. Some companies are transparent about what percentage of the protein in the dry kibble comes from non-meat sources, others not so much. For example, Merrick grain free foods state on bag that 70% of the protein used in their grain free kibble comes from meat sources, not grain or legumes. My rule of thumb is that the first 2-3 ingredients must be quality (no ambiguous 'by products etc.) meats or egg. So, consumer beware, do your homework, make the phone calls, etc. It's a crazy world out there. :>)
  4. I do fine on a cafe misto, latte, or regular coffee. Unlike Panera or other coffee places that bake their breads etc., Starbucks' baked good are prepackaged and, in the 2 Starbucks I frequent, the ovens are at the other end of the counter from the coffee equipment. You can take your own gluten-free coconut milk. Flavors.....I'd check the allergan list on their website. Some are not gluten-free, for example, the carmel may not be, if my memory serves me correctly. I tend to avoid flavors unless I'm some place that has Monin or Torani, most of which are gluten-free except the carmels, BUT go to their websites and check your favorite flavors for gluten. You can find the info there. Also, I've eaten their gluten-free breakfast sandwich 3 times now with no issues at all. It is heated in the same sealed parchment wrapper that it comes in and does not get opened until you open it. Open it w a napkin however as they probably used the same tongs to touch the other heated baked goods as they used to grab your parchment wrapped sandwich.
  5. This is not uncommon. When you have celiac, your gut has been damaged and needs to heal. While going gluten free helps many fairly quickly, for others the journey to healing is a bit longer. The worse shape your gut is in at diagnosis, the longer healing can take. I noticed good results for the first 2-3 months and was eating mostly paleo because I realized I just was not digesting ANY carbs well, but then improvement leveled off. I found a nutritional therapist, NOT a dietician or nutritionist. A nutritional therapist is different training, food as medicine etc. and focuses on healing the gut. She also had celiac and was a wealth of info on the healing patterns of different folks. She suggested the GAPS diet for a while. So, I went through GAPs intro and then did full GAPS for about 7-8 months. That was exactly a year ago and I am just now able to put back rice, blue corn (yellow still a problem) and, in moderation, tapioca flour. I feel GREAT, but it has taken time. My suggestion is find a good nutritional therapist. If you are still eating LOTS of carbs, your gut may not be able to digest them. Does it take discipline? Yes. Does it mean you may have to learn to cook? Probably. For me, feeling great and being healthy is worth it's weight in gold and although I do get weary of always cooking, it's WORTH IT! Most packaged gluten free stuff (especially cookies etc) is truly not real good for you and will not help you heal. Be sure you are taking a good quality probiotic as well. MegaFood's Mega Flora is very good and safe for celiacs.
  6. There is no doubt that gluten exposure can cause psychological and neurological symptoms. Gluten causes a 'whole body' inflammatory response. Some of us have mood changes, brain fog, mental agility issues after ingesting gluten, while others have more gastric symptoms. I too, know I've ingested gluten when my mood tanks, anxiety and negativity set in, and I anger quickly. I also feel 'twirly,' not really dizzy, but weird and then I get brain fog. After 1-2 days of this, gastric signs like burning stomach and gas appear. So yes, your nervous system can respond! Below are some links to articles and to peer reviewed research on the topic. Is Gluten Making You Depressed? | Psychology Todayhttps://www.psychologytoday.com/blog/the.../is-gluten-making-you-depressed May 24, 2011 - Celiac disease, commonly thought of as only a GI disorder, can ... and use of neurotransmitters-brain chemicals that help modulate mood. It's Not Just In Your Head - National Foundation for Celiac Awareness https://www.beyondceliac.org/sitedata/docs/psychimpac/.../psychimpactwebinarfinal.p... Brain fog. Memory lapse. Headaches in up to 50% of people with celiac ... Coeliac disease and risk of mood disorders - a general population-based cohort ... Anxiety but not depression decreases in coeliac patients after one-year gluten-free diet: a longitudinal study G Addolorato - Scandinavian journal of gastroenterology, 2001 - Taylor & Francis Extraintestinal manifestations of celiac disease L Hernandez, PH Green - Current gastroenterology reports, 2006 - Springer ... Depression Common symptoms described in celiac disease include exces- sive anxiety, fatigue, and irritability, which are also found in depression, a common disorder in celiac disease patients [26,27]. In younger people these depressive symptoms may decrease after ...
  7. I am also IgA deficient. My doc took more blood and looked at 2-3 other markers in the blood work , transglutinase, and 2 others. My biopsy showed blunted cilia in sm intestine, but my IgA was low. He suspected Celiac due to cilia so ordered other blood tests. I also presented atypically, burny stomach and reflux...and very little else.
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