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BB22

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  1. BB22
    P.S.S. Oh yeah the leg cramps too. Something awful. And indeed, post glutening that came back too. The symptoms are so long & so diverse - I guess I want to give them, the docs, some credit for not figuring it out - but alot of me is pissed off. On my behalf & on everyone in my family's behalf. Did you also have restless leg syndrome? I sure...
  2. BB22
    I too have weird symptoms. I have nodes growing on my thyroid & a liver covered w/ little cysts. Thyroid functions apparently ok, liver off. - what else weird? I swear I've been weird since I was born.
  3. BB22
    Oh yeah, neck pain & back pain. I too thought it was from a car accident, well me as pedestrian vs. car, & the neck pain & jaw pain & joint pain & head pain and foot pain. All seemingly better Gluten-free Casein-free soy free.
  4. BB22
    p.s. I also have funky fingernails. Ridges & spots & especially not so good post chemo. and all the other odd symptoms & allergies. injected Iodine. I love salt. I guess I should be iodine free. And all the bleeding episodes and the bruising and the bug bite allergies & the not wanting to eat anymore. What about Hansen's natural...
  5. BB22
    I wake up at about 2-3:00am . I feel famished. Like I'm starving. Either I'm hungry or thirsty or I need to go to the bathroom. Continues - post Gluten-free Casein-free soy f.
  6. BB22
    I want my sister to join this conversation. I just e-mailed her this page. She has been so sick for so long. She gained weight with chronic d. I lost weight, but thought it was due to stress. I spent my life savings on dental guards because I started breaking teeth (molars). I was sure I had a brain tumor - the headaches were that bad. Finally a diagnosis...
  7. BB22
    Wow - I so recognize my own symptoms. Only I'm 45 & have been doing this since I was your age. It started with my hair falling out, then lactose intolerance then headaches then TMJ & more migraines. I could never get off the couch I have been so tired. so tired. Then I started vomiting & getting dizzy spells. Then freak body pain, depression...
  8. BB22
    It was the pain that kept sending me to doctors. It started in my feet & got so bad that I begged for a wheelchair. The pain spread and flashed everywhere. Before that it was the TMJ after that it was terrible migraines. Pain Pain Pain. Neurontin helped me walk again. Chemo helped & then everything got bad again. And the pain was now a dull...
  9. BB22
    Hi, Wish I knew what "I so posted to this" meant? Does posted mean pissed? & are you talking to me? Did I offend? I certainly did not mean to. I wonder, is the blood work really do-able in 8 hours? & I wasn't suggesting that the tests not be run. I've just been in so many hospitals & it is hard to stop a rolling train. The work we all...
  10. BB22
    If you want to try this route. (anti-depressants) You have to be willing to try. The first or second might not be right, but if you double the third's dosage that might be just the ticket. A doc doubled my dosage about 3 weeks ago. Gluten-free Casein-free & soy free + anti-depressants have changed my life. Now, that the pain has abated, perhaps...
  11. BB22
    Hi, I too am in Seattle, north end. Do y'all go to any of the local support groups? Or is this the place? bb22
  12. BB22
    Hi, I hope your entire family is hanging in. But can I just say that a day before surgery is a hard time to make dramatic decisions. What does your Mom want? What does your Dad say? I am new to Gluten-free Casein-free (november) self-diagnosed. My sister figured it out for herself & I followed. We think celiac explains all the medical...
  13. BB22
    Hi New to all this, both message boards and Gluten-free Casein-free (soy restricted). I want to print out all your good recommendations, but I seem to get "everything" - is there a print friendly version available for your messages? Thanks BB22
  14. BB22
    Hi I'm new to this too. I've been searching like a mad woman. Gluten-free Casein-free soy-free since November, I gluttened myself this past weekend. Oh I Never again will doubt. Like most of you, I am a new person on the diet. I found a great page somewhere on the www, I printed it & gave it away to one of my docs & now I can't remember...
  15. BB22
    Hi. new to this site & message boards in general. I just posted somewhere under post diagnosis recovery/treatments. I'm not offically diagnosed - but - Gluten-free Casein-free diet since November has changed my world. Pain has always been one of my main & many complaints. Joint pain, foot pain, hand pain, TMJ, headaches, flashing pain, dull aches...
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