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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Qrummed! We in the celiac community are those who have the most reason to be up on the most current research rather than a doctor who got out of med school 30 years ago and still thinks the incidence of celiac disease is 1 in 5000 people. Why do you think it takes so many years on the average to get diagnosed with celiac disease...
  2. trents
    I'm not sure I entirely buy into difference #2 as it was stated. If someone with NCGS is experiencing frequent bouts of diarrhea from consuming gluten, there would seem to be a danger of nutritional deficiencies as food would be passing through the gut so quickly there would not be time for it to be well absorbed. I think the article would also have done...
  3. trents
    CRC would likely produce blood in the stool at some point. Have you noticed any of that or have you had a hemoccult test done to detect such? I could be wrong but I don't think CRC produces diarrhea. More than likely it would be the opposite I would think, i.e., blockage.
  4. trents
    Welcome to the forum, Johariellis! Unfortunately, it's not possible to distinguish the two based on symptoms since celiac disease and NCGS share many of the same symptoms. That is a big part of why we encourage the testing for celiac disease. In view of the fact that you will be tested in a few days I trust you did not make the mistake of already starting...
  5. trents
    The Mayo Clinic guidelines for the pretest gluten challenge are 2 slices of wheat bread (or the gluten equivalent) daily for 6-8 weeks leading up to the day of the blood draw and for 2 weeks leading up to the day of the endoscopy/biopsy. If it is not possible for you to carry out the regimen suggested by the Mayo, then you would need to trial the gluten...
  6. trents
    Molly, to answer an earlier question that I missed, your Gliadin IgA at 182.6 is quite high. No, that is not normal. Anything above 19.8 is not normal. You really do need to have an endoscopy with biopsy of the small bowel lining to check for celiac disease. It is the most likely culprit given the data you have supplied. There is the high Gliadin IGA and...
  7. trents
    Keep us posted. A word of caution, though. Don't attempt to reduce your gluten consumption until all testing is complete for celaic disease. If you do decide to trial the gluten free diet, you would need to go off it at least two weeks ahead of time and go back to consuming the amount of gluten equivalent to two slices of wheat bread daily. If you would...
  8. trents
    So was I. And as a middle-aged adult I was put on extended low dose tetracycline for a stubborn sinus infection.
  9. trents
    If I were you, I'd push for an upper GI with biopsies taken of the duodenum and duodenum bulb (the two areas of the small bowel where celiac disease damages the villi that line the area). This would be to check for celiac disease but in the process he would also look at your esophagus and your stomach for ulcers and a biopsy should be done to check for H...
  10. trents
    No. I'm not thinking any kind of cancer at all. My first guess would be celiac disease. My second guess would be NCGS (Non Celiac Gluten Sensitivity). My third guess would be IBS. Do you have any pain or cramping? Can we ask your age?
  11. trents
    No. Hemoglobiin A1C is a test for elevated blood sugar history (diabetes). Please go back and reread my previous post as I edited it and added some things. I was asking about iron in relation to anemia which could explain your fatigue. A very common phenomenon connected with celiac disease. How about Hematocrit?
  12. trents
    As Elvis used to croon, "Good golly miss molly!" Welcome to the forum! Yep, need reference ranges for negative vs. positive since each lab uses different standards for these tests. Oh, I see you have now posted these? The significantly elevated Gliadin IGA could indicate celiac disease. Now, this is assuming that by Gliadin IGA they intend it to...
  13. trents
    Debbie, unfortunately, achieving a consistently gluten free state is more challenging than most ever realize at the outset. Most people have no idea how pervasive gluten is in the food supply. Would you ever expect gluten to be in soy sauce, tomato soup or chocolate syrup products? Pill and vitamin supplements? And would you ever expect that the naturally...
  14. trents
    If you eliminate or cut back on gluten before all testing is complete you will undermine the results. Since you say gluten doesn't bother you, you should be able to weather that period without undue suffering. Can you do dairy and eggs without discomfort so as to meet protein needs? The Mayo Clinic Guidelines for the pretest gluten challenge leading...
  15. trents
    If you eliminate or cut back on gluten before all testing is complete you will undermine the results. Since you say gluten doesn't bother you, you should be able to weather that period without undue suffering. Can you do dairy and eggs without discomfort so as to meet protein needs?
  16. trents
    Likely a combination of both as both not having and appendix and antibiotics would alter gut biome populations. Then too, many of us were regularly subjected to antibiotics as children because of tonsillitis and ear infections. Back in the 1950's, penicillin was the silver bullet for all infections and a quick go to for docs.
  17. trents
    Fairy92, Every antibody test known to man was run on you and all were positive! How can your GP conclude you don't have celiac disease? On top of that, you are feeling definitely better now that you are on a gluten free diet. But if you have any more testing done, say your gastro doc wants to do another endoscopy with biopsy, it will likely have been...
  18. trents
    Welcome to the forum, LP023! Can you also supply the reference range for negative vs. positive? Without that it is not possible to say whether or not your score represents a strong positive as each lab uses a different standard. Yes, it is possible that this represents a false positive but not likely. The tTG-IGA is considered to a celiac test with...
  19. trents
    One of the challenging dimensions of gut dysbiosis studies is that there is isn't yet a consensus on what constitutes a healthy gut biome. I also wonder if there is a connection between appendectomies and undiagnosed celiac disease.
  20. trents
    Have you been tested for celiac disease?
  21. trents
    During the first Pandemic wave I did notice there was a shortage of gluten-free products but at least in my part of the US that seems to have relaxed and we don't have any problem getting what we want, either ready made things like bread or raw baking ingredients. However, all of it is considerably more expensive. I would estimate that prices are 40% higher...
  22. trents
    Welcome to the forum, Fred C! My what? I think you left out a key word. I personally have gone through allergy desensitization shot therapy but it has been more than 20 years ago.
  23. trents
    Be careful with using dried lentils. Gluten Free Watchdog sampled dried lentils and found them to be heavily cross contaminated with wheat.
  24. trents
    Welcome to the forum, verity15! Different laboratories use different ranges for negative vs. positive, as you have found out. So, if the physicians in your "local area" all use the same laboratory for celiac antibody testing then the 10u/ml would be meaningful. At any rate, your numbers seem to be either borderline or weakly positive. Your physician...
  25. trents
    Can you link the site?
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