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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Perhaps the technology knows the location of the one checking the price on the Canadian vendor's website such that shipping to a U.S. location is much cheaper.
  2. trents
    Elevated liver enzymes are one of the known symptoms of celiac disease. In fact, this is what led to my own celiac diagnosis as there was no other reason for them being elevated. My GP tested me for all known viral hepatitis diseases and they were all negative. He didn't have a clue. Finally, after years of elevated liver enzymes and some other lab values...
  3. trents
    Welcome to the forum, Xsmama! Who was it that told you the biopsies would be negative? Even after you got those tTG numbers? They look like a "positive" to me. Do you have a reference range (what is postitive vs. negative) for that test? There aren't industry standard ranges for those antibody tests. Every lab uses it's own values. Please post the reference...
  4. trents
    The "gluten free" standard set by the FDA means the food product will contain no more than 20ppm of gluten per serving. Research was done to establish this as a safe level for "most" celiacs. But there is a subset of the gluten sensitive/celiac community that reacts to even smaller amounts of gluten. There are two internationally recognized certifying bodies...
  5. trents
    What about Walmart?
  6. trents
    Welcome to the forum, Josh! All gluten free foods that are certified gluten free will bear the logo of the certifying body on the label or box. You should be able to spot that from a picture of the product online. I don't know of any app that identifies foods as certified gluten free but it has been awhile since I used any of the apps that have been...
  7. trents
    Have you looked into an Amazon Canada "Prime" account. With the Prime account shipping on most items is free. Of course, there is an annual fee to be at the Prime account level but you would likely make that up in shipping costs very quickly if you do much online shopping at all.
  8. trents
    I see from the spelling of "Coeliac" on the report that you must be in the UK. It's too bad there isn't an actual numerical value given to the tTG_IGA. The higher the value the more likely it is that it is caused by celiac disease and not something else. Do you have a date yet for the endoscopy/biopsy? I note from other UK forum participants that these procedures...
  9. trents
    What "IGA value" do you refer to? The one you give numbers for seems to be within normal range. Is this total IGA? So you are saying there was no numerical value supplied for the tTG-IGA, just a "positive" notation? The tTG-IGA is just a slice of the total IGA.
  10. trents
    Welcome to the forum, Glutton33! Celiac doesn't cause Hashimoto's but there is a statistical correlation as there is between celiac disease and some other autoimmune diseases as well. Autoimmune diseases tend to cluster and my understanding is that this may be due to proximity of their genes in the genome. The tTG-IGA is pretty specific for celiac...
  11. trents
    Until reading this thread, I had never heard of A1 and A2 milk. I suspect I am not alone in this. For those of us in that boat, here is what I believe to be a balanced article on what the difference is between the two and what the implications of those differences are: https://www.healthline.com/nutrition/a1-vs-a2-milk#bottom-line It seems to me that...
  12. trents
    Yep, those are the choices. But again, if you decide to go in for actual testing again for celiac disease you would need to go back to eating regular amounts of gluten for 6-8 weeks (antibody testing) or two weeks (endoscopy/biopsy). Until you create the correct conditions for testing so as to not render the tests invalid you will always be guessing. And...
  13. trents
    No, Celebrex is still on the market. You're thinking of a different Cox 2 inhibitor that was taken off because it was found to increase heart attack rates.
  14. trents
    Instead of Naproxen, have you tried one of the Cox 2 inhibitors like Celebrex? They are supposed to be easier on the gut because they only inhibit one of he two inflammation response generators. Our body continually rebuilds our stomach lining in response to low-level inflammation from stomach acid. This is a natural and necessary process. This is good inflammation...
  15. trents
    Yes, it is overwhelming at first but over time it becomes the new normal. Over time, you develop a sort of sixth sense as to what might have gluten hidden in it. Take heart.
  16. trents
    Lower gluten eating is easy to achieve but eating truly gluten free is much more challenging than most people imagine at the outset. Gluten is tucked away in so many ways in so many every day foods you would never expect to contain wheat, like canned tomato soup and soy sauce for example. If you have celiac disease you will keep the inflammation smoldering...
  17. trents
    Nightwolf8769, You can't just eat something containing gluten right before going in for a test for celiac disease, whether it is a blood test or the endoscopy/biopsy. The tests aren't measuring gluten levels but the inflammation or the damage that consuming gluten over time causes. If you eliminate or severely curtail the amount of gluten you have been eating...
  18. trents
    Jim, have have you bee specifically tested for celiac disease. There are special antibody tests that are the first stage of diagnosis.
  19. trents
    Do you know if during the scoping they will be taking biopsies of the small bowel villous lining? If so, realize that this is considered the definitive diagnostic test for celiac disease. Celiac disease is an autoimmune disorder that causes inflammation to the small bowel lining when gluten is ingested. Over time, this inflammation damages the villi that...
  20. trents
    Here is an overview of what blood tests can be run for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The most common test doctors run for celiac disease is the tTG-IGA. But because individual immune responses may be atypical, it is a good idea to run a "full celiac panel". What one test may miss, others may...
  21. trents
    Can you be more specific about which tests for celiac disease were done? Do you have access to them and would you be willing to post them on the forum, along with the reference ranges for negative vs. positive? When I read that some tests were positive yet the practitioner's conclusion was that it means you are gluten sensitive rather than having celiac...
  22. trents
    Welcome to the forum, nightwolf8769! https://www.walmart.com/ip/Swanson-100-Natural-Gluten-Free-Chicken-Broth-48-Oz-Carton/10308003 In the gluten disorder world, terminology can be confusing and used variously by different people. Are you equating "intolerant" with celiac disease? Have you actually been tested for celiac disease?
  23. trents
    I would suggest researching foods that contribute to acid reflux. There are many that do and it is likely that you are consuming somethings regularly every day that you are not aware of as contributing to this. Some foods cause the LES (Lower Esogphagial Sphinctor) to relax which allows stomach contents to travel up into the esophagus. Coffee and other caffeinated...
  24. trents
    Amanda, another approach, one I have used numbers of times, is to call the manufacturer and ask that question. When I have done that I often find that the manufacturer will state that they do not there is no gluten in the ingredients per se but that they cannot rule out cross contamination in the manufacturing process since shared equipment is used. Are you...
  25. trents
    Welcome to the forum, Teresa! When the endoscopy is done, will the doctor also take biopsies to check for celiac disease? You don't actually say but I assume this to be the case since you mention you are purposely still eating gluten before the scoping.
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