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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Moomooandme13! There was a question mark at the end of "They said you're being tested for celiac with biopsy?" By that do you mean you are not sure of what they said? Do you l know for sure the biopsy they did was for the purpose of checking for celiac disease? Normally, the first step of celiac diagnosis is a blood draw to...
  2. trents
    If they are, they will be clearly labeled as such. At least I can say that with regard to their Kirkland Signature and Nature Made lines. They are not all necessarily gluten free but if they are they will be clearly labeled as such.
  3. trents
    I agree. It is a strange study. I still find it hard to believe that people who eliminate wheat from their diet are going to be really challenged in compensating the nutritional loss associated with enriched flour. That is, unless wheat products were the main part of their diet to begin with. I possibly can see it in third world settings but not otherwise...
  4. trents
    You might find this interesting: https://www.verywellhealth.com/celiac-disease-and-liver-diseases-562618 Ideally, your next diagnostic step would be to have an endoscopy with biopsy done to check for damage to the villi that line the small bowel. This is considered to be the gold standard diagnostic step for celiac disease. But in view of your job...
  5. trents
    I wonder if this study group included those who were supplementing?
  6. trents
    Just be aware that if you GI doc wants you to get another biopsy then you would need to go back to eating two slices of wheat bread daily (or the gluten equivalent) for two weeks leading up to the procedure. You might find stronger reactions to gluten after having eliminated it from your diet.
  7. trents
    We know that villi damage can be patchy. Many doctors will not sample enough areas to get get coverage and so will miss the damaged areas. A thorough sampling would take several samples from both the duodenum and the duodenum bulb. Foregoing the biopsy if tTG-IGA levels are 10x normal or greater is not a universal practice among UK physicians but became...
  8. trents
    No, it is not.
  9. trents
    About half of the celiac population is "silent". That is to say, they experience little or not discernible reaction to ingested gluten. This makes it difficult for them to know if they have been "glutened" unintentionally and makes it difficult to sort out cross contamination issues.
  10. trents
    @Kay baird, welcome to the forum! Yes, you do have several classic symptoms of celiac disease. The only advice about diet to give right now is not to attempt eating gluten free until all testing is done for celiac disease. Sounds like you are awaiting an appointment for serum antibody testing for celiac disease. That may be followed by scheduling an...
  11. trents
    So it looks like only two tests were run: tTG-IGA and total IGA. That is far from a "celiac panel". I'm wondering if more tests were run if there would have been some positives. Here is a primer for tests that can be run: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ We do know that the tTG-IGA is the most popular antibody...
  12. trents
    Yes, agree with Scott. Young children with celiac disease often don't have damaged villi yet. There bodies are so resilient.
  13. trents
    @Sabaarya, this is valuable information. Thanks for sharing. We have had scattered reports here and there of people having negative antibody results but positive biopsy. Any chance you could get a hold of the information about the specific antibody tests that were run so we have more detail? This is a valuable post which would be even more peruasive if we...
  14. trents
    Welcome to the forum, Graeme1! More than likely, you are still getting some gluten occasionally. Learning to eat truly gluten free is a challenge. This might help: It is also quite common for celiacs to develop intolerance to non-gluten foods such as dairy, oats and eggs, but not limited to those.
  15. trents
    @Sabaarya, just curious. What tests were included in your celiac panel?
  16. trents
    A diagnosis of NCGS is arrived at by first eliminating celiac disease. The antidote for both is the same, however, elimination of gluten from the diet. With celiac disease, the consumption of gluten causes inflammation of the villi that line the small bowel. In time, this can severely damage the villi leading to various health issues tied to nutritional deficiencies...
  17. trents
    You could also have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but for which there is not test. And it is 10x more common that celiac disease. Another option would be to trial a gluten free diet. But wait on that one until all testing is done for celiac disease or else the tests will be invalidated.
  18. trents
    Welcome to the forum, Taylorrenayee! We have had other forum contributors complain of left sided abdominal discomforts. In general, bloating and gas are classic symptoms of a gluten disorder. Your next step should be to get some antibody testing done that is specifically geared toward diagnosing celiac disease. It just involves a blood draw which is...
  19. trents
    My understanding is that the EMA is the most specific antibody test for celiac disease but also the least sensitive. Which means, when that one is positive it's pretty definitive for celiac disease. If it were my kid, I wold skip the endoscopy and trial a gluten free diet. If he improves, you have your answer. https://celiac.org/about-celiac-disease...
  20. trents
    Yes, but you still have to watch out for CC from the herbs and spices if you are a very sensitive celiac.
  21. trents
    Welcome to the forum Mystl3tainn! Because of the "leaky gut syndrome" that accompanies celiac disease, it is common for celiacs to have developed food sensitivities apart from gluten by the time they are diagnosed. Dairy (either the lactose or the protein casein), oats (even gluten free oats), soy and eggs are common ones. But it can be almost anything...
  22. trents
    Depends on the particular style of chili. Most of the companies make different styles. Hormel Chunky Beef Chilli with beans uses "textured vegetable protein" (made from soy flour) and states on the label it is gluten free. The formulation may also vary from country to country.
  23. trents
    Yes, one size doesn't fit all.
  24. trents
    I'm no expert on DH so I won't comment much on your question but I understand it has characteristic blisters that set it apart from many other skin outbreaks.
  25. trents
    Well said!
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