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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Marissa221, welcome to the forum! Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? How long have you been practicing gluten free eating?
  2. trents
    Do the itchy areas on your knees and thighs ever take the form of little pimples with blisters? You may know this already but there is a skin condition known as dermatitis herpetiformis (DH) that some celaics develop and it is definitive for celiac disease. There is no other known cause.
  3. trents
    The tTG-IGA test, which is the most common celiac disease test ordered by doctors, will miss 80% of African Americans who actually do have celiac disease.
  4. trents
    Yes, H. Pylori and other gut infections such as SIBO are more common in the celiac population. If your insurance allows you to schedule an endoscopy/biopsy without referral, go ahead and do it. You can always cancel the appointment if you or your physician decide it isn't needed. But most likely, if your blood antibody tests are positive, you will be recommended...
  5. trents
    A high percentage of celiacs cannot tolerate dairy, either because of the lactose or the dairy protein casein. For those with casein intolerance, the deal is that the protein must be similar enough to gluten protein that it causes a similar autoimmune reaction. Those with lactose intolerance sometimes outgrow it after going gluten free for a significant period...
  6. trents
    I use a heated mask to unclog eyelid oil glands but I found the bean-filled ones you heat in a microwave to be unsatisfactory. They just don't have enough staying power. They cool off too quickly. On Amazon I found ones that have a built-in heater powered by a USB plug that work much better. You can plug it into any USB source such as a laptop or a USB battery...
  7. trents
    KaileyC, this might be helpful to you: https://vimeo.com/486284734
  8. trents
    The one substitute sugar (actually it's a sugar alcohol) I have no issue with is erythritol. Erythritol is largely absorbed before it gets to the colon and therefore does not cause GI issues as do many of the other common sugar alcohol sugar substitutes like sorbitol and malitol which make it all the way to the lower GI track. By the way, all sugar alcohols...
  9. trents
    Yes, we certainly need legislation but we also need prosecution. A a couple of highly publicized law suites winning settlements against care facilities not giving attention to the dietary needs of celiac residents would do wonders for their care. By the way, this is one reason it is important to get an official diagnosis.
  10. trents
    Welcome to the forum, Claudia! First, the value of 78 you give is meaningless unless you tell us two things. One is, exactly which celiac antibody test does it apply to. There are a number of antibody tests that can be run to diagnose celiac disease. The most common one ordered is the tTG-IGA. The other thing we need to know is the reference range the...
  11. trents
    It basically boils down to how you define "disease". If you define it as a biological condition that puts you at a disadvantage in functionally engaging the culture in which you live, then being a celiac or being gluten sensitive is having a disease. If you look at being a celiac or gluten sensitive as a normal biological variation, like having red hair or...
  12. trents
    Welcome to the forum, KileyC! Let me assure you, the vast majority of celiacs have been diagnosed as adults and most of them are considerably older than your are. I think it takes a10 years on the average to get a diagnosis after the onset of symptoms. For me, it was 13 years. I was diagnosed at about age 50 and I'm 71 now. I would guess the average...
  13. trents
    Try eating totally gluten free for a few days and see if the pain band across your chest subsides. If it does, you would be warranted in assuming you have a problem with gluten of some kind.
  14. trents
    Possibly, yes. But the results are less than unequivocal for celiac disease. What are your symptoms? You might ask to have an EMA blood test done. It is not a particularly sensitive celiac disease test but it is pretty definitive if positive for celiac disease. You may have NCGS (Non Celiac Gluten Sensitiity) instead of celiac disease. They share...
  15. trents
    Welcome to the forum, Mdevz! Do you know what blood tests have been run by your doctors? There are specific blood test that need to be run in order to diagnose celiac disease. It cannot be diagnosed by running a CBC or CMP such as your doctor would commonly order for an annual physical to check for different kinds of blood cells, iron levels, sugar,...
  16. trents
    I would push for it, Danielle.
  17. trents
    Welcome to the forum, DianeF! Robotics? Also, you state you have been "extremely gluten intolerant for years!" Do you have celiac disease or NCGS (Non Celiac Gluten Sensitivity)? Do you have an official diagnosis for either? Are you on a strict gluten free diet?
  18. trents
    Sounds like you probably have some food allergies in addition to being a celiac. This is extremely common in the celiac community and due mostly to the leaky gut syndrome that accompanies celiac disease. You might want to look into ALCAT food sensitivity testing to get an idea of what foods may be the offenders.
  19. trents
    Some of our food intolerances/sensitivities can disappear after we get good healing of the gut. I am so glad to hear you are doing so much better. You have been great about keeping us updated.
  20. trents
    Welcome to the forum, mwalum! What do you mean by "good tolerance"? Good tolerance of what?
  21. trents
    It's important to choose a magnesium supplement that is readily assimilable. Magnesium glycinate or Magnesium citrate are preferred to magnesium oxide, for example. Magnesium oxide is what you commonly find in stores and is inexpensive and probably what you will find at Costco. I take the glycinate form and get it from Amazon. The more assimilable forms are...
  22. trents
    You are on several prescription meds. Many prescription meds block uptake or deplete stores of vitamins and minerals and physicians often do not make their patients aware of this. So, I think you would be wise to increase your supplementation.
  23. trents
    I'm concerned about the pantoprazole. As strange as it may seem, GERD is often caused by low stomach acid (i.e., high PH). Proton Pump Inhibitors like Pantoprazole raise the PH even higher such that you still have reflux but you don't notice it. In addition, raising the PH of the stomach and the gut interferes with the normal digestion of food and uptake...
  24. trents
    Welcome to the forum, theOK! Are you on any prescription medications?
  25. trents
    Excellent point, Russ H! Most people don't understand that the 20ppm was not intended be an end in itself but a means to an end. What really counts is the total amount of gluten consumed over 24 hr.
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