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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I'm saying there is no safe way to experiment with it. Goodness, most of us get "glutened" anyway, at least occasionally, despite our best efforts to avoid it without having to "experiment" with purposeful exposure.
  2. trents
    felicity31r, what number are you referring to? There are a number of serum antibody tests that can be run to detect celiac disease. The most common one is the tTG-IGA. Can you be more specific about the tests run and can you supply the reference ranges used by the lab to differentiate between what is negative and what is positive? There is no standard reference...
  3. trents
    This "someone" who advised you to continue exposing your daughter to small amounts of gluten . . . were they qualified to give such advice? Nearly all of us who have lived with celiac disease for years will tell you that it is true that once you have been without gluten for a significant amount of time you lose whatever tolerance to it you might have...
  4. trents
    I don't know how much gluten is in beer but the Mayo Clinic guidelines for a pretest gluten challenge is two slices of wheat bread (or the gluten equivalent) daily for two weeks leading up to the endsocopy/biopsy.
  5. trents
    Yes you do. If you stop gluten now, the damaged small bowel villi will begin to heal and the biopsy restults will be compromised.
  6. trents
    Though the gut is damaged that is not the same as nonfunctional. It is still functional and capable of absorbing nutrients to some degree, just less efficiency than when healthy. So, for the sake of illustration, say the gut is only absorbing D3 at 50% efficiency. If you double the amount of D3 you take that would equal an uptake equal to what was being absorbed...
  7. trents
    I can't access the article, Plumbago, without taking out a subscription. Have you seen the pizza commercial about this with Shaquil O'Neil and "Shaqflation"?
  8. trents
    Good words, Lyrica.
  9. trents
    @tracybarth66, this might help: Sounds like you might need to pay attention to CC (cross contamination). This happens when food items that are naturally gluten free have been contaminated with gluten because of having come in contact with gluten containing grain products during production in the field, transporting, storage and processing (on shared...
  10. trents
    It might be a good idea to get tested for celiac disease. There are specific serum antibody tests designed to detect celiac disease. On what basis did your doctor say you don't have celiac disease? specific tests must be run to either confirm it or rule it out. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You can also order a...
  11. trents
    By eating regularly, do you mean you included gluten back in your diet? Have you officially been diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)?
  12. trents
    Please reread my post above as I edited it after your reply. Color is important.
  13. trents
    Blood in the stool is not likely the result of gluten damage. Are you seeing this blood regularly or is this a temporary happening? To occasionally see blood in the stool is not unusual. It can simply be the result of a capillary bursting in the colon or rectum. If it is bright red it would be coming from the lower end of the intestinal track. Celiac disease...
  14. trents
    You should not be taking supplements if you are anticipating a vitamin/mineral deficiency test. Deficiency tests, IMO, have limited value since they only measure serum concentrations of vitamins and minerals and not what is actually getting into the body's cells. Symptoms are a more reliable indicator IMO of vitamin and mineral deficiencies. Furthermore,...
  15. trents
    Have you considered SAD (Seasonal Affective Disorder)? Many people suffer with this. It has to do with the decreased amount of sunlight as we leave the summer season and enter winter. One thing you can and should try is adding about 5000IU of vitamin D3 daily to your diet. Sunlight striking our skin causes our body to make D3 naturally but so many spend most...
  16. trents
    Auto immune disease tend to cluster. Having one increases the likelihood of having others. Celiac disease is an autoimmune disorder.
  17. trents
    A few weeks later than what? Is there more to the story? Did you have other celiac antibody tests run besides EMA? Usually, they don't run that one unless tTG-IGA is negative. But positive EMA is pretty definitive for celiac disease. It is relatively expensive test so Docs don't order it very often. Yes, stress can and typically does exacerbate the symptoms...
  18. trents
    Thanks for the additional information. We can't delete posts but there really is no reason to. The discussion it led to may be of help to someone else. You should know that celiac disease does not always produce significant "bloating, pain, cramping, diarrhea". Many who have celiac disease have very minimal or no discernible GI distress. We call them "silent...
  19. trents
    You are correct, David. Thanks for catching that.
  20. trents
    I still would not rule out celiac disease. Young children often just do not exhibit the same physiological response to gluten even though they do have celiac disease. I certainly would trial a gluten free diet at this point. If his symptoms improve you have your answer.
  21. trents
    Welcome to the forum, Cyleet! So, we need some clarification. Have you been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity)? In describing your symptoms your never mention GI distress of any kind but then at the end you remark you want some "gut and skin healing". Can you clarify about the gut issues? Essentially...
  22. trents
    Probably some other ingredient besides gluten common to the bread and the gluten-free Oreos. Xanthan gum is a common tummy upsetter found in many gluten-free processed foods. But it could be anything.
  23. trents
    I doubt that the tiny amount of gluten from cross contamination in "gluten free" dog food would do harm to the dogs. That I know of, celiac disease or NCGS has not been documented in canines though I agree that feeding them dog food whose main ingredient is a grain is probably not good for them. But why do you mention that you are extremely sensitive to gluten...
  24. trents
    Evan, what makes you say that the vitamin deficiencies you speak of have existed only since you started eating gluten free 5 months ago? I doubt that is actually the case but realize that gluten free foods that substitute gluten free flours for wheat flour will be lower in nutritional value because the gluten free substitute flours are not required by the...
  25. trents
    Welcome to the forum, Janmac! Coffee is a trigger for my migraines as well. I started in again on drinking a cup in the morning and my migraines started becoming more frequent until I was having them almost every day. I stopped drinking coffee about two weeks ago and the migraines have almost disappeared. I don't get auras. But I do get some nausea,...
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