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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, Lil rory! Do you have the actual tTG-IGA score and the reference range used by the lab? Were any other antibody tests for celiac disease run besides the tTG-IGA? There are some foods, some medications and some diseases that can mimic celiac disease but this is not common. Yes, you would do well to be checked for other autoimmune...
  2. trents
    "correlation is recommended"?
  3. trents
    I don't think there is gluten in Coca-cola. Was it diet coke or regular with all that sugar?
  4. trents
    Welcome to the forum, Eleigh123. Actually, the endoscopy with biopsy is considered to be the gold standard of celiac diagnosis. However, we do get reports from forum participants occasionally where the antibody testing was positive but the endoscopy/biopsy was negative. This can happen for several reasons: 1. The gluten free diet was begun after...
  5. trents
    I can't say but since you are already scheduled for the endoscopy/biopsy you might as well go forward with it. It's a little late to cancel I would think. And maybe the countrified old saying is true: "You gotta dance with whom you brung." Whatever the condition of your villous lining is, you're bringing it to the dance today.
  6. trents
    Welcome to the forum, suisuisui! Were you eating gluten free prior to the holiday binge? In my mind that is a more important question than have you eaten enough gluten since terminating the holiday binge. The Mayo Clinic guidelines for a pretest gluten challenge are the daily consumption of two slices of wheat bread (or the gluten equivalent) for...
  7. trents
    This is true. How confident are you that you have achieved a truly gluten free state? "I have already taken steps to remove gluten" sounds like it is a work in progress.
  8. trents
    Welcome to the forum, Merry Berry! Have you been officially diagnosed with celiac disease or even been tested for it? The reason I ask is that DH is a classic manifestation of celiac disease and there is no other known cause for it. Have you had antibody testing done for celiac disease or an endoscopy with biopsy to examine the damage done to the small...
  9. trents
    It is true that pressure cooking disables lectins in beans and veggies, as does soaking in water and normal cooking, but probably to a lesser extent than pressure cooking. However, there is no good scientific evidence for the blood type diet: https://www.healthline.com/nutrition/the-blood-type-diet-review Studies purporting to link blood types to...
  10. trents
    So, you had the biopsy repeated and are now waiting on the microscopic lab report but the one who did the scoping reported that nothing looked abnormal to the naked eye? Is this correct?
  11. trents
    What is confusing?
  12. trents
    I added to my last post while you were typing. Please go back and read it.
  13. trents
    How long were you eating gluten before the gastroscopy? Being gluten free for a period of time and then eating one gluten meal immediately before the procedure will not give valid results for the biopsy. You would have needed to be eating regular amounts of gluten for at least 6-8 weeks beforehand. And with three different positives from your blood antibody...
  14. trents
    GERD is Commonly called "heart burn" but it's chronic instead of occasional.
  15. trents
    Gastro Esophageal Reflux Disease
  16. trents
    Going gluten free with vitamin and mineral supplementation is certainly a logical option if you don't need the government subsidies to offset the cost of gluten-free food that an official diagnosis qualifies you for . . . and as long as you are a disciplined person. Many find that they need the psychological fortification in order not to rationalize and cheat...
  17. trents
    In any recent blood work you have had done did they check for albumin and total protein levels?
  18. trents
    The Mayo Clinic guidelines for the pretest gluten challenge is the daily consumption of 2 slices of wheat bread (or the gluten equivalent) for two weeks leading up to the endoscopsy/biopsy. So, maybe you could tolerate that much gluten for that long and not have to torture yourself the whole time while you are waiting.
  19. trents
    Thanks for catching that typo, WW.
  20. trents
    No! If you intend to get a biopsy, do not start the gluten-free diet immediately. She gave you a bum steer. Most doctors are woefully behind the knowledge curve when it comes to gluten disorders. Think about it. What if substantial healing occurs in the small bowel lining between now and the biopsy because you start the diet now such that you are put in the...
  21. trents
    Welcome to the forum, Jackland79! First, there is no doubt in my mind that you have celiac disease with the numbers for those two antibody tests. Please realize that if you go gluten free for three months until the endoscopy/biopsy there may be considerable healing of the small bowel villi and there is a strong risk of invalidating the test results....
  22. trents
    knitty kitty lives in the U.S.. When she checks the price from the U.S., she gets a different shipping rate than you do and therefore a different price. Just be cause the website (walmart.ca.com) is Canadian-based doesn't mean the product referenced is shipping from Canada. That's my theory.
  23. trents
    Perhaps the technology knows the location of the one checking the price on the Canadian vendor's website such that shipping to a U.S. location is much cheaper.
  24. trents
    Elevated liver enzymes are one of the known symptoms of celiac disease. In fact, this is what led to my own celiac diagnosis as there was no other reason for them being elevated. My GP tested me for all known viral hepatitis diseases and they were all negative. He didn't have a clue. Finally, after years of elevated liver enzymes and some other lab values...
  25. trents
    Welcome to the forum, Xsmama! Who was it that told you the biopsies would be negative? Even after you got those tTG numbers? They look like a "positive" to me. Do you have a reference range (what is postitive vs. negative) for that test? There aren't industry standard ranges for those antibody tests. Every lab uses it's own values. Please post the reference...
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