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trents

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Everything posted by trents

  1. trents
    MCAS (Mast Cell Activation Syndrome) and histamine intolerance often go together, that's why I put the forward slash between them. It is common for celiacs to have these conditions because the cells in the gut that make DAO (Diamine Oxidase) are damaged. Diamine Oxidase is the enzyme that breaks down histamines in our body. Histamines are produced in the...
  2. trents
    Looking at the list of things you eat I can see that most of them are high histamine foods and/or foods that block histamine breakdown in the body. Have you considered histamine intolerance/MCAS?
  3. trents
    Are you still eating oats (even gluten-free oats) and dairy? Xanthan gum is found in many gluten-free products and famous for not agreeing with many of our tummies. Maybe you should keep a food diary for awhile.
  4. trents
    Here is a primer for getting a handle on what a "full panel is": https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ One thing that should always be checked is total IGA. If that is low, it skews the other IGA test downward. I would also ask for an EMA. Please realize that if you start a gluten-free diet before all testing is done...
  5. trents
    Welcome to the forum, Ericaagl! I wonder if you are reacting to other things in your diet that mimic a gluten reaction.
  6. trents
    Welcome to the forum, GfreeOH! "Sections show pieces of duodenal mucosa. These show some areas with villous flattening." This indicates possible celiac disease, as the report noted. The "flattening" is patchy, however, which is not unusual with celiac disease. There are a few other medical conditions besides celiac disease that can cause damage to the...
  7. trents
    Welcome to the forum, Odiesmom! Your symptoms are classic for either celiac disease or NCGS (Non Celiac Gluten Sensitivity). The two share many of the same symptoms but NCGS is 10x more common. There currently is not test to directly diagnose NCGS so celiac must first be ruled out. In either case, the "cure" is lifelong abstinence from gluten. Do...
  8. trents
    Yes,. OP is juggling a number of issues that are likely related but the solutions for each one may be in conflict.
  9. trents
    Maybe not "Gentle Iron" but "Slow Iron". The adjectives should give it away.
  10. trents
    It will tell you on the packaging if it is buffered. "Gentle iron" is one such product but it may not contain C and B12. You can always add those in with separate supplements, however. The purpose of the vitamin C is to create an acidic environment to increase assimilation of the iron. Coffee or orange juice would do the same thing.
  11. trents
    Iron supplementation can contribute to constipation so watch for that and can be hard on the stomach. You might want to look for a buffered iron product.
  12. trents
    Good to hear! Sounds like it could be some movement in a positive direction.
  13. trents
    You should get checked for pernicious anemia, which is caused by the inability to assimilate B12 which, in turn, is necessary for the absorption of iron. Get you B12 levels checked.
  14. trents
    Louise, the acid blocker you have been taking likely contributed to the borderline anemia you have. To be absorbed well, iron needs an acidic environment in the gut. Also, the borderline anemia may be related to B12 deficiency caused by celiac disease. B12 is necessary for assimilation of iron.
  15. trents
    I don't have a good feeling about the serum testing you had done initially. It just doesn't seem to me they knew what tests to order.
  16. trents
    So, the Anti-tissue transglutamase level was negative?
  17. trents
    Thanks for the update. To help with the hunger, try increasing your fat intake. Fat has staying power. It has a lot of calories and is burned more slowly than starches and sugars. Sounds like you are moving toward a ketogenic style diet.
  18. trents
    We didn't know your gender. You might consider adding that info to you Sig.
  19. trents
    Testosterone is the hormone responsible for "maleness". Estrogen is the hormone responsible for "femaleness". Both men and women produce both but the proportions of them are drastically different. Low testosterone levels can have many symptoms but some of them are: low proportion of lean muscle mass, low energy levels, depression and cognitive issues. It...
  20. trents
    The article doesn't say the enzymes "need" the heat. It says they are deactivated by heat during processing and cooking. As for pills and powders that might be sold separately and swallowed I see the problem might be that stomach acid would break them down before they could go to work.
  21. trents
    There usually is a learning curve in truly attaining a gluten-free lifestyle and it can take a couple of years to get a handle on the many places gluten is found that you would never expect. Perhaps this will help:
  22. trents
    That would be a good experiment to separate reactions to CC from nuts vs. the nut protein itself. Many people have an intolerance or an allergy to tree nuts and peanuts.
  23. trents
    And this has a bearing on hair loss? I'm just looking at the original topic.
  24. trents
    In my experience since being diagnosed with celiac disease over 20 years ago I have developed a number of food intolerances/sensitivities. For the most part they manifest themselves in headaches and brain fog but with occasional GI involvement. They include eggs, coffee, nuts in general but especially peanuts (a legume). I believe I also have histamine intolerance...
  25. trents
    Welcome to the forum, Allyson V.! Many spices can be a problem because of cross contamination during production but I have not heard of that being true for salt. Personally, I wouldn't worry about it. Are you a super sensitive celiac?
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