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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, celiac disease can onset at any stage of life. There is a genetic component that predisposes people to celiac disease but about 40% of the population carry one or both of the genes that (so far) have been linked to the development of celiac disease. Since only about 1% develop active celiac disease it is obvious that most with the genetic potential never...
  2. trents
    What symptoms do you have and how severe are they? We hope your endoscopy/biopsy can be scheduled within a reasonable time frame so that you don't have to put off beginning the gluten free diet for a long time and can begin healing.
  3. trents
    You may have discovered a cure for morning sickness among the pregnant celiac population. Seriously, I suspect the emesis temporarily changed your gut biology or in some way temporarily reset the gut brain axis communication. How long ago was this episode of vomiting? Or, you may be coincidentally past the morning sickness phase of your pregnancy. At any...
  4. trents
    There is suspicion that taking acid blockers creates gut dysbiosis which can trigger celiac disease in the person taking the acid blockers. The question then would be does the acid blocker taken by the mother affect the gut of the child in utero. I don't know the answer to that. But if both your daughters have celiac disease, both parents should be tested...
  5. trents
    Welcome to the forum, Hypo! According to the research I have done, it is a misconception that light brown stool color indicates a health issue. Healthy stool color varies from dark brown to light brown. However, if you are getting "floaters" with oil and mucous, that would be a definite sign you are not breaking down fats and oils.
  6. trents
    That sounds about right.
  7. trents
    Welcome to the forum, deirdre! Can you list the ingredients from the packaging for us? It is typical for celiacs/NCGS people to develop food reactions in addition to gluten.
  8. trents
    The author states in the Potential Celiac Disease or Latent Celiac Disease paragaraph with regard to NCGS: "People in either of these groups may have positive blood tests for celiac disease yet a negative biopsy." While this may be true, more commonly NCGS people have neither elevated antibody blood tests or villi damage. Nonetheless, a very helpful...
  9. trents
    Scroll up to the top of the page and locate the envelope symbol. That will allow you to send a persona message to Scott Adams, our administrator, and ask him about the issues you are experiencing. Do you have a computer you could use to check for more options on the user interface?
  10. trents
    Not sure. PM Scott Adams and ask that question. On many forums I have joined I did not have full privileges right away. But, there could be an issue with the software as it was recently updated. When you open up a new post window do you see a paperclip at the bottom with instructions about choosing files to attach or dragging them?
  11. trents
    No option for "Edit", huh? Could be that you are using your phone, I don't know for sure.
  12. trents
    Welcome to the forum, Arreietti! Please attach the pictures directly to your post. Use the three dots in the upper right corner of any new post window. There is a time window for editing so do it in a new post and don't wait too long. Linked items are not permanent and in time they may become invalid links.
  13. trents
    A pharmacy may be able to order a home test kit for you but I would be surprised if they had them in stock. Here is one I know is popular but not sure what postage/shipping costs would be where you live: https://www.imaware.health/at-home-blood-test/celiac-disease-screening Here is a primer for tests that can be run to detect celiac disease: https...
  14. trents
    Welcome to the forum, Unsure123! Your symptoms indicate possible celiac disease or NCGS (Non Celiac Gluten Sensitivity) and there is family history of a gluten disorder. You said, "My surgery isn't the best". Did you mean to type "surgeon" instead of "surgery"? Would you clarify what is meant by this? Did you have a C-section? I have had no personal...
  15. trents
    From your antibody testing, I have no doubt that you have celiac disease. The EMA test is not particularly sensitive but it is very specific for celiac disease. If you want further confirmation, you would need another endoscopy with biopsy of the small bowel lining done. If you do intend to get a SB biopsy done, you would need to continue eating regular...
  16. trents
    Okay, that explains why they didn't biopsy the small bowel lining. You have a number of autoimmune disorders it seems. Fact is, they tend to cluster. Not unusual.
  17. trents
    If you are interested in getting him genetically tested for celiac disease potential you can get that done through third party home kit suppliers like 123 and Me.
  18. trents
    The trouble with vitamin level testing is it only tests the amounts circulating in the blood and not what is actually getting into the cells. Symptoms are a better barometer.
  19. trents
    Welcome to the forum, Mmartin4444! You neglected to post what reference range was used by the lab to distinguish between normal and positive tTG-IGA levels. There is no industry standard for this and each lab uses there own reference ranges. Yes, there are some things besides celiac disease that can cause elevated tTG-IGA. Some other medical conditions...
  20. trents
    I'm a celiac, though not a really sensitive one. I got COVID back this summer and took the Paxlovid without any gut disapproval that I noticed. However, I was one of the 18% or so of people who got the COVID rebound after taking the antiviral drug.
  21. trents
    Sounds like they did not do a biopsy of the SB. How frustrating! They should have done it when they did the endoscopy as it's also an upper GI procedure. Was the endoscopy done before or after the antibody testing for celiac disease?
  22. trents
    There is a high correlation between celiac disease and Hashimoto's. But let me seek some clarification here. In your previous post you stated you had hyperplastic esophageal mucosa. Do you also have hyperplastic mucosa of the colon? You did not answer my question of whether or not they took a biopsy of the small bowel lining. Do you know if they...
  23. trents
    Welcome to the forum, KathyF. All your blood work screams of celiac disease. A positive EMA just about guarantees you have celiac disease. I assume they did a biopsy of the small bowel along with the endoscopy? Can you confirm this? The description of the endoscopy findings addresses the condition of the esophagus rather than the small bowel...
  24. trents
    You're welcome. Be aware also that food companies can and sometimes do change formulations on mainstream products. What was once gluten free many not be always be so continue to read labels and don't assume what was gluten free at a point in time will always be gluten free.
  25. trents
    Yes, total IGA is what I was referring to. Have you considered getting a genetic test for celiac done on your son? That would at least establish whether or not he has potential for developing celiac disease. Constipation seem to be a very common symptom for children when they have celiac disease. It is also possible he has NCGS (Non Celiac Gluten Sensitivity...
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