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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Just be aware that if you GI doc wants you to get another biopsy then you would need to go back to eating two slices of wheat bread daily (or the gluten equivalent) for two weeks leading up to the procedure. You might find stronger reactions to gluten after having eliminated it from your diet.
  2. trents
    We know that villi damage can be patchy. Many doctors will not sample enough areas to get get coverage and so will miss the damaged areas. A thorough sampling would take several samples from both the duodenum and the duodenum bulb. Foregoing the biopsy if tTG-IGA levels are 10x normal or greater is not a universal practice among UK physicians but became...
  3. trents
    No, it is not.
  4. trents
    About half of the celiac population is "silent". That is to say, they experience little or not discernible reaction to ingested gluten. This makes it difficult for them to know if they have been "glutened" unintentionally and makes it difficult to sort out cross contamination issues.
  5. trents
    @Kay baird, welcome to the forum! Yes, you do have several classic symptoms of celiac disease. The only advice about diet to give right now is not to attempt eating gluten free until all testing is done for celiac disease. Sounds like you are awaiting an appointment for serum antibody testing for celiac disease. That may be followed by scheduling an...
  6. trents
    So it looks like only two tests were run: tTG-IGA and total IGA. That is far from a "celiac panel". I'm wondering if more tests were run if there would have been some positives. Here is a primer for tests that can be run: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ We do know that the tTG-IGA is the most popular antibody...
  7. trents
    Yes, agree with Scott. Young children with celiac disease often don't have damaged villi yet. There bodies are so resilient.
  8. trents
    @Sabaarya, this is valuable information. Thanks for sharing. We have had scattered reports here and there of people having negative antibody results but positive biopsy. Any chance you could get a hold of the information about the specific antibody tests that were run so we have more detail? This is a valuable post which would be even more peruasive if we...
  9. trents
    Welcome to the forum, Graeme1! More than likely, you are still getting some gluten occasionally. Learning to eat truly gluten free is a challenge. This might help: It is also quite common for celiacs to develop intolerance to non-gluten foods such as dairy, oats and eggs, but not limited to those.
  10. trents
    @Sabaarya, just curious. What tests were included in your celiac panel?
  11. trents
    A diagnosis of NCGS is arrived at by first eliminating celiac disease. The antidote for both is the same, however, elimination of gluten from the diet. With celiac disease, the consumption of gluten causes inflammation of the villi that line the small bowel. In time, this can severely damage the villi leading to various health issues tied to nutritional deficiencies...
  12. trents
    You could also have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but for which there is not test. And it is 10x more common that celiac disease. Another option would be to trial a gluten free diet. But wait on that one until all testing is done for celiac disease or else the tests will be invalidated.
  13. trents
    Welcome to the forum, Taylorrenayee! We have had other forum contributors complain of left sided abdominal discomforts. In general, bloating and gas are classic symptoms of a gluten disorder. Your next step should be to get some antibody testing done that is specifically geared toward diagnosing celiac disease. It just involves a blood draw which is...
  14. trents
    My understanding is that the EMA is the most specific antibody test for celiac disease but also the least sensitive. Which means, when that one is positive it's pretty definitive for celiac disease. If it were my kid, I wold skip the endoscopy and trial a gluten free diet. If he improves, you have your answer. https://celiac.org/about-celiac-disease...
  15. trents
    Yes, but you still have to watch out for CC from the herbs and spices if you are a very sensitive celiac.
  16. trents
    Welcome to the forum Mystl3tainn! Because of the "leaky gut syndrome" that accompanies celiac disease, it is common for celiacs to have developed food sensitivities apart from gluten by the time they are diagnosed. Dairy (either the lactose or the protein casein), oats (even gluten free oats), soy and eggs are common ones. But it can be almost anything...
  17. trents
    Depends on the particular style of chili. Most of the companies make different styles. Hormel Chunky Beef Chilli with beans uses "textured vegetable protein" (made from soy flour) and states on the label it is gluten free. The formulation may also vary from country to country.
  18. trents
    Yes, one size doesn't fit all.
  19. trents
    I'm no expert on DH so I won't comment much on your question but I understand it has characteristic blisters that set it apart from many other skin outbreaks.
  20. trents
    Well said!
  21. trents
    The other thing that needs to be asked is, and forgive me if this ground has already been covered, what was the timing of the serology tests in relation to your efforts to avoid gluten free? When gluten is removed from the diet antibody numbers begin to decline because healing of the small bowel villi is occurring. Prior to a serology test for celiac disease...
  22. trents
    @HB333, can you be more specific about what serology tests you have had done for celiac disease? Many doctors will only run the tTG-IGA which misses about 20% of people of white European decent and 80% of people of black African decent who do have celiac disease as confirmed by biopsy. There are a number of other serology tests that can be run to detect celiac...
  23. trents
    "Gluten Free" and "Certified Gluten Free" are not the same.
  24. trents
    @Ashraq, keep in mind that celiac disease can onset at any stage of life. So, first degree relatives ideally should be tested on a regular basis. You want to catch it if at all possible before it has been smoldering under the surface and has done unnecessary damage to body systems. This is particularly true since so many are silent and don't exhibit symptoms...
  25. trents
    Welcome to the forum, Ashraq! Have you been diagnosed with celiac disease or NCGS (Non Celiac Gluten Sensitivity)? Bound up in your question is how sensitive you are to very small amounts of gluten. Our celiac community is all over the map in that regard. And it may take you a while to get a handle on that for yourself. So, what works for one family...
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