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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Atrophy of the duodenal bulb mucosa, especially if it is visible to the naked eye, points to celiac disease. I guess I'm having a hard time understanding why you hope the biopsy results come back normal. If there is damage to the villi in the small bowel then that would confirm celiac disease and you would have your answer as to what is causing your...
  2. trents
    Welcome to the forum, 101! How long have you known from the biopsy that you have celiac disease? Have you started the gluten free diet yet? There is a real education curve tied to that. It's not hard to avoid the big sources of gluten such as bread and pasta but it's the unexpected ones and the little ones that trip up newbies. Gluten is found in so...
  3. trents
    Cost savings, perhaps, on ingredients?
  4. trents
    I am not familiar with the test kit you link above. I would trust this one, however, if it is available to you: https://www.imaware.health/at-home-blood-test/celiac-disease-screening Do you not have access to public healthcare where you live?
  5. trents
    Welcome to the forum, Tyler! Yes. Your symptoms line up quite well with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) but, as you said, could be due to other medical issues as well. The first diagnostic step you need to take is getting serum-based celiac antibody testing done. This is a simple blood test that checks for antibodies...
  6. trents
    Welcome to the forum, Slayxbella! Yes, eating out is the number one threat to gluten free eating. Even when you order gluten free items from the menu, they may be cooked along with foods containing gluten or handled with the same utensils. We call this cross contamination. The wisest course of action is to pack your own meals prepared at home and take...
  7. trents
    Kristin, is part of the problem that gluten free food does not taste as good or taste the same as things made with wheat?
  8. trents
    Welcome to the forum, Kristin! Those two statements seem contradictory. Can you clarify? Also, serum testing for vitamin deficiencies is not necessarily reliable since they only measure the vitamin levels in circulation and not what is actually being taken up by the cells. Deficiency symptoms are much more helpful. Have you been checked for anemia...
  9. trents
    Welcome to the forum, ACEed! One thing you need to realize is that gluten is addictive in the same sense as are opioids. It interacts with the brain cells in the same way: https://justthrivehealth.com/blogs/blog/you-may-be-addicted-to-gluten Some people with celiac disease or NCGS (Non Celiac Gluten Sensitivity) experience withdrawal from gluten when...
  10. trents
    Not familiar with SELFCHECK but more so with home test kit products from Imaware which I believe are pretty reliable. I just want to caution you that until all testing for celiac disease is complete you should continue to eat regular amounts of gluten. If you cut back too much beforehand you will invalidate the tests.
  11. trents
    Can you substantiate this? What do you mean by fillers? Are you saying coffee manufacturers are adding wheat in order to dilute the coffee grounds in order to lower their costs? Typically, the term "fillers" is used to speak of ingredients that are added to take up space. This is a common practice when making pills but I'm having a hard time seeing how this...
  12. trents
    It occurs to me that you may be experiencing histamine intolerance, a subset of MCAS (Mast Cell Activation Syndrome). I suggest you google these two problems. Here's a starter: https://allergyasthmanetwork.org/health-a-z/mast-cell-diseases/#:~:text=Diagnosis involves blood tests%2C including,for various mast cell mediators. These two conditions are closely...
  13. trents
    Welcome to the forum, itaratchiu! How long does it take between the time you eat and when the symptoms occur?
  14. trents
    Thanks for the additional data. May I ask your age? Out of the several antibody tests designed to diagnose celiac disease, you have one that is positive (high), namely the tTG-IGG, but it is not strongly positive. It definitely would be helpful for diagnostic purposes to have the endoscopy/biopsy done as that is considered to be the diagnostic gold standard...
  15. trents
    Welcome to the forum, Conner! Elevated liver enzymes are very common in the celiac population but generally, once going gluten free, they return to normal. This is my story and chronically elevated liver enzymes are what eventually led me to a celiac diagnosis. Having said that, like many other health threats, if left to its own too long it can result...
  16. trents
    Vitamin tests measure the amount of vitamins circulating in the blood but do not address the more important question of how much of that is actually getting into the cells.
  17. trents
    Seems like your are stuck in no man's land. I certainly would advise starting some gluten-free vitamin and mineral supplements. A lot of health issues are tied to nutritional deficiencies and if you do have celiac disease the chances are very high you have some deficiencies, especially with your restricted diet.
  18. trents
    I'm not sure I would trust that doctor. He doesn't seem to know some of the basics about testing for celiac disease. Do you have options for choosing another physician? Even so, you would need to go back on gluten for any kind of testing.
  19. trents
    This paragraph is confusing. First, you talk about the GI doc wanting to do an endoscopy with biopsy but then you say he told you you had to be back on gluten for two weeks before the blood test would be valid. Do you mean to say he wanted to do a blood antibody test for celiac disease before he did an endoscopy/biopsy? The other thing that is confusing...
  20. trents
    First, to assume you can't have celiac disease because you don't have DQ2 or DQ8 genes may not be a valid conclusion. Research is showing those may account for the overwhelming percentage of celiac cases, there is a small percentage of those with celiac disease who don't have either of those genes. We just don't have all the genetic factors nailed down yet...
  21. trents
    It would take approximately 3500 cyanocobalomin B12 tablets consumed in a single day in order to ingest a lethal amount of cyanide. Cyanide is found naturally in the seeds of many fruits. The same amount of cyanide in 3500 B12 tablets is found in only 18 crushed apple cores. https://www.multivitaminguide.org/blog/is-cyanocobalamin-vitamin-b12-toxic/ Assimilation...
  22. trents
    I think you meant to type "cross reactivity" instead of "course reactivity".
  23. trents
    Update! Indeed there is a connection between spleen dysfunction and celiac disease. I have had mild pain off and on in upper left quadrant of abdomen just under the bottom of my rib cage. Remembering that the spleen is located in this area, I did some research. Here is a concise article: https://glutenfreern.com/celiac-disease-and-your-spleen-ep029/
  24. trents
    With a tTG-IGA that high I wouldn't have much doubt you have celiac disease. Most of the other causes of high tTG-IGA seem to give marginal positives.
  25. trents
    Celiac disease is not an "allergic reaction". It is an autoimmune disorder. Are you saying you are also allergic to gluten (or wheat)? That is certainly possible but an allergic reaction engages an entirely different immune system pathway than a celiac reaction.
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