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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Thank you for the additional information. Your antibody numbers are still higher than what I would have expected after five months of truly gluten-free eating. But truly gluten-free eating is much more difficult to accomplish than most celiacs realize at the outset of the journey. It's easy to cut out the major sources of gluten in our diets such as bread...
  2. trents
    Welcome to the forum, Maja57! Can you be more specific about which celiac antibody test was gave the 250 score? And can you also post the reference range for that test? Without the reference range used by the lab the raw number of 250 is not that meaningful. There are a number of antibody tests that can be run for celiac disease. Was the one you reference...
  3. trents
    Focus on fresh meat, eggs, fruit and vegetables and cooking your own meals. Go easy on the fruit because it usually high in fructose but don't avoid fruit entirely since it is loaded with nutrition. Avoid processed foods and eating out. There is still a lot you can eat. Potatoes and rice and beans can provide the carbs you need. You can still eat many grains...
  4. trents
    With celiac disease, damage to the villi inhibits the absorption of fats in our food such that they go undigested and remain in our stool. Mucous in the stool is probably the damaged lining of the bowel soughing off.
  5. trents
    Do you ever notice mucous in your stool or an oily residue? Does it float or sink?
  6. trents
    Sounds like you are experiencing a systemic inflammatory response. Do you have any gut pain or GI distress when you consume gluten?
  7. trents
    I am glad the food services at your school is now getting up to speed on really understanding what gluten free involves. I hope they actually have gained the necessary insight to serve truly gluten free food and keep you and others safe. I have never heard of a yeast infection being mimicked or DH going internal. But we are learning more about gluten...
  8. trents
    It absolutely could be the gluten. Ataxia is common to the celiac community and the NCGS community.
  9. trents
    Welcome to the forum, Katie! May we assume the yeast infection you refer to is vaginal? Yeast infections can occur in other places such as feet and mouths and even intestines - any place that stays moist and shielded from sunlight and air. Yeast feeds off sugar and carbohydrates so if your eating habits include a lot of these, you should look at that...
  10. trents
    I see no reason for you to go forward with the biopsy. When you look at the celiac antibody test scores, other subpar labs that point to celiac and classic symptoms, and improvement with the gluten-free diet, everything points to celiac disease. Unless, that is, psychologically you would need the additional confirmation in order to stay on track with the...
  11. trents
    In the blood work you have had done, did they check your liver enzymes? These tests would be in what is called a CMP (Complete Metabolic Panel) but would not be included in an ordinary CBC (Complete Blood Count). What about thyroid hormone levels? Your physical changes make me wonder if there is some metabolic dysfunction going on. Also, have you had...
  12. trents
    So, it sounds like you are saying you have lost muscle mass which has been replaced by fat such that your body weight has remained the same but there have been changes in your appearance. I do not have any insight into the structural changes in your face besides that. What I can tell you is that prolonged, unattended celiac disease invariably results in nutritional...
  13. trents
    Have you experienced significant body weight loss during this time?
  14. trents
    You could have NCGS instead of celiac disease. Either way, gluten is the culprit and would need to be eliminated from your diet. Most people find that when they go back on gluten for testing purposes that they are more ill than before. When we go off gluten we lose all tolerance of it. I suffer from migraines myself or at least cluster headaches...
  15. trents
    As far as histamine intolerance goes, keep in mind that it's the total histamine load in your body at any given time that is what counts. So, it may vary from one time of year to the next depending on pollen and dust counts or other things you are allergic to in your environment (inhaled allergens). So, it's not just food things. But if you can lower the...
  16. trents
    Celiac disease is an autoimmune disorder with a genetic base. Two genes, HLDQ2 and HLDQ8, have so far been identified as the culprit but there are others that are being discovered that may also come into play. But these seem to be the main ones. Having either DQ2 or DQ8 only establishes the potential for celiac disease. Having one or both genes does not mean...
  17. trents
    https://www.healthline.com/health/histamine-intolerance#diagnosis The testing sounds like it is not a cut and dry thing, however. Mast Cell Activation Syndrome (MCAS) is often the underlying cause of Histamine intolerance and there is specific testing for that. Google it.
  18. trents
    Yes, histamine intolerance is a real thing and common in the celiac community. I'm reasonably certain I am one of those. Cutting down on high histamine foods can also help. You might also look into a supplement known as DAO (diamine oxidase). The problem is created by the damage done to the gut lining by celiac disease where DAO is produced in the body. DAO...
  19. trents
    No, don't wait. Taking an antihistamine will have no impact on celiac disease testing but may alleviate some of your nasal/sinus distress. Zyrtec and Allegra are newer antihistamine products that shouldn't produce drowsiness as would Benadryl (diphenhydramine). So they shouldn't impair function when trying to work, drive or study.
  20. trents
    Concerning your nasal swelling and blockage. That is likely a histamine reaction triggered by gluten/celiac disease. Celiac disease is an autoimmune disorder, not an allergy but years of untreated celiac disease typically results in allergies and intolerance to some other (non-gluten) foods. You could also be allergic to wheat or to the gluten component of...
  21. trents
    Welcome to the forum, Daniel! Your symptoms scream of either celiac disease or NCGS (Non Celiac Gluten Sensitivity). NCGS and celiac disease (Celiac Disease) share many of the same symptoms. Untreated Celiac disease causes damage to the villi of the small bowel because of the constant inflammation. Untreated NCGS can do damage to the body in other ways...
  22. trents
    I would say the probability of you having celiac disease is close to 100%. In fact, it is common practice in the UK, if the tTG-IGA values are 10x normal range, for an official celiac diagnosis to be made without ordering an endoscopy/biopsy. So, if you lived in the UK you likely would not have to go in for that additional procedure in order to confirm.
  23. trents
    Welcome to the forum, Nbella2155! Unfortunately, you will most likely have sabotaged serum antibody testing for celiac disease by beginning the gluten free diet two months ago. Two months (actually, 6-8 weeks) is the amount of time you should be eating regular amounts of gluten (defined as two slices of wheat bread daily or the gluten equivalent) leading...
  24. trents
    There are better and safer alternatives to Imodium: https://www.dailybody.net/is-imodium-gluten-free/ You might also consider that the real issue with Imodium is the lactose (first ingredient) rather that any gluten it may contain. Many celiacs cannot handle dairy products. Please tell us more about your experience. Are you having diarrhea much of the...
  25. trents
    Depends on the sensitivity level of the individual celiac mostly but it is also true that at least one Trader Joe's gluten-free product that I know of was mislabeled as being gluten-free and it wasn't. It was a frozen battered fish item. You do understand, don't you, that to qualify to use the label "Gluten Free" isn't the same as saying there is no gluten...
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