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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I don't know about the math in all this but what I can tell you is that one small bowl of egg drop soup made with regular wheat-containing soy sauce has enough gluten in it to make me ill. And I am not a particularly sensitive celiac and I have no issue with soy per se. I eat soy frequently in other things that do not have gluten.
  2. trents
    This might be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ I would ask for: 1. Total IGA 2. tTG-IGA 3. Endomysial IGA 4. Deamidated gliadin peptide (DGP IgA and IgG)
  3. trents
    So, you're wanting the serum antibody testing this time around, correct?
  4. trents
    What testing do you refer to? Since you have been gluten free you would have to go back to eating regular amounts of gluten (equivalent of two slices of wheat bread daily) for 6-8 weeks if you want to get retested for serum antibodies. If you do this I would certainly request a "full celiac panel" and not just the tTG-IGA. If you are referring to a repeat...
  5. trents
    Welcome to the forum, Amy R. ! Recent studies show that eating out is the number one sabotaging activity of those trying to eat gluten free. One major problem in that setting is the fact that what you order may be inherently gluten free but gets significantly cross contaminated in the cooking and handling back in the kitchen where it is not separated...
  6. trents
    Are you a very sensitive celiac? Do you normally react to cross contamination?
  7. trents
    Welcome to the forum, Mapampmfp! Please realize that not everyone with celiac disease experiences cramping and diarrhea. Many celiacs are "silent" celiacs, meaning they have little or no GI distress, at least until the damage done to the small bowel villi becomes severe. But some of your other issues are quite common to celiacs, namely bloating anxiety...
  8. trents
    If he cannot endure the pretest gluten challenge in order to ensure the testing is valid then I see no other choice but to trial a gluten-free diet. By gluten-free I don't mean cutting down on gluten but rather working to totally eliminate it. If he is inconsistent with it the results will leave uncertainty. This would mean eliminating all forms of wheat...
  9. trents
    You need to get testing done specifically for celiac disease which produces characteristic antibodies in the blood: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ But you would need to be eating regular amounts of gluten (equivalent of 2 slices of wheat bread daily) for 6-8 weeks for the serum testing to be valid. Going off...
  10. trents
    Welcome to the forum, Lindsey! I was not aware that DGP IGA is 100% specific for celiac disease. I do know that Endomysial IGA is specific for IGA but that is a more expensive test and less sensitive than some others. DH (Dermatitis Herpetiformis) is definitive for celiac disease. NCGS (Non Celiac Gluten Sensitivity) is another possibility and shares...
  11. trents
    Broccoli for breakfast? No way!
  12. trents
    10 cups of cooked broccoli? Yuk!
  13. trents
    You say, "3 endoscopies and 2 colonoscopies have shown villious blunting but biopsy negative for celiac". But if there is villous blunting how can that be considered negative for celiac disease? Villous blunting is what defines celiac disease. That is what they look for when when celiac disease is suspected and villous blunting is the hallmark symptom...
  14. trents
    About 18% of celiacs have elevated liver enzymes. I was one of those and it is what eventually led to my celiac disease diagnosis. Within three months of going gluten free those enzymes were back into the normal range. If elevated liver enzymes go on too long, however, it can lead to irreversible liver disease. I'm not trying to scare you but before you can...
  15. trents
    CMP is "Complete Metabolic Panel". CBC is "Complete Blood Count" which checks counts for different kinds of blood cells like reds, whites and platelets. CMP will check liver and pancreas enzymes, kidney function, blood sugar, cholesterol, etc.
  16. trents
    Welcome to the forum, Alexa. How do you know it's your liver that is causing the pain? Are you sure it's not your gallbladder or your pancreas or maybe a peptic ulcer. There's a lot of stuff in there crammed into a relatively small area and it can be hard to tell what's what when it comes to pain. You need to know that for weeks leading up to testing...
  17. trents
    Sounds like an allergic reaction to gluten and vegetables in the nightshade family but not necessarily celiac disease.
  18. trents
    There is also a gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease and is 10x more common. There are no definitive tests for NCGS, however. Celiac disease must first be ruled out.
  19. trents
    Yes, you can be allergic to yeast extract. Literally, anything with protein or protein fractions in it can cause an allergic reaction. And not all yeast is the same which adds to the complexity of your question. Heirloom varieties of wheat contain much less gluten than modern hybridized cultivars. Barley and rye are also gluten containing grains.
  20. trents
    The absence of bloating diarrhea and GI symptoms certainly does not rule out celiac disease. Yes, those are classic symptoms but we now know celiac disease produces a huge array of non-GI symptoms and that many celiacs do not manifest GI symptoms at all, or at least until damage to the small bowel villi becomes severe. Celiacs that don't manifest discernable...
  21. trents
    "Other forms of non-celiac gluten sensitivity, as signaled by IgG class antibodies against gliadin, are seen in 10% to 12% of the general population." (Underlining is mine.) I'm not sure about this. "Thus, testing for non-celiac gluten sensitivity, may offer many of the benefits that testing for celiac disease offers. Your patient and I are asking...
  22. trents
    Thanks for sharing this. We have scattered reports here and there of seronegative celiac disease coupled with negative biopsies. But it is a real thing and your report helps confirm that.
  23. trents
    There is also a gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity). It shares many of the same symptoms with celiac disease but there currently is no way to test for it. Celiac disease must first be ruled out. And NCGS is 10x more common than celiac disease. Some experts feel it can be a precursor to celiac disease.
  24. trents
    By the way, I hope you did not start eating gluten-free before testing was done. That will invalidate the testing, whether the serum antibody testing or the endoscopy with biopsy. Don't start withdrawing gluten from your diet until all testing is complete. The Mayo Clinic guidelines for the pretest gluten challenge is the daily consumption of an amount of...
  25. trents
    DH is definitive for celiac disease. There is no other known cause for DH. My understanding is that DH has a distinctive appearance with little blisters. It would be a good idea to get the skin outbreak biopsied during an active outbreak. A small percentage of celiacs with DH will have negative SB lining biopsies and negative serum antibody tests. In other...
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