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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Which IGA do you speak of that came back "very elevated"? "IGA" is a category of antibodies, one of which is the tTG_IGA. But there are others. Are you referring to total IGA being elevated? Can you reproduce your total report in another post along with reference ranges? It is not uncommon to get a negative tTG-IGA and still have celiac disease. But that...
  2. trents
    Yes, there has been other recent research cited on the forum lately pointing to the high percentage of celiacs who experience villi inflammation from CMP. One study cited claimed as high as 50% of celiacs experience the same antibodies from casein as they do from gluten. This is something that needs more attention, both from the celiac community and the medical...
  3. trents
    In my own experience, I find there are some foods that I can eat occasionally and in smaller amounts without issues but if I eat them every day they cause me issues such as sinus/nasal congestion and migraines/headaches. Peanuts and some tree nuts are like that for me. Walnuts and pecans can make my throat scratchy right away sometimes but not others. What...
  4. trents
    Many of the same ingredients are in all three. If I were you I would compile a list of all the ingredients that all of them have in common. Having said that, my best guess would be that xanthan gum is the problem. Many celiacs do not tolerate this well but usually it generates GI issues. I also wonder what those "enzymes" are.
  5. trents
    Welcome to the forum, Jasmina! It sounds like to me you are having an allergic reaction to some ingredient in the gluten-free bread. Can you post back with the ingredient list?
  6. trents
    https://www.youtube.com/watch?v=7UfiCa244XE There you go, Cristiana.
  7. trents
    Thanks for the warning, PB but I don't take that one. But I do have a question for you with regard to Niacin and the flush. I've been reading that the flush is evidence that the Niacin is doing what it is supposed to do. But I also read that the flush eventually goes away as you continue niacin therapy over time. Does that mean it's no longer being...
  8. trents
    Welcome to he forum, Wibbli! One thing you need to realize is that celiac disease generally doesn't occur in a vacuum, isolated from other medical problems. Celiac disease may not be the cause of these other problems but one presentation of a deeper immune system dysfunction that simultaneously creates other medical issues that present along with celiac...
  9. trents
    https://www.beyondceliac.org/research-news/five-years-after-diagnosis-more-than-half-have-symptoms/ Some highlights: "However, when researchers looked at causes for ongoing symptoms in those who showed healing of the lining of the intestine through a follow-up biopsy, they found that physicians most frequently cited microscopic colitis or irritable...
  10. trents
    You were given a bum steer here. True, exposure to small or even trace amounts of gluten may not produce a discernable reaction but that does not necessarily mean that no inflammation is being produced in the SB villi. Having said that, there are situations we all find ourselves in in the real world where we have no choice (other than not to eat at all) but...
  11. trents
    Two slices of wheat bread daily should be sufficient. That is the recommendation of the Mayo Clinic.
  12. trents
    HD? I think you meant DH (Dermatitis Herpetiformis). I hope your doctor explained to you that you needed to be eating regular amounts of gluten until the biopsy is over. Otherwise, it may invalidate the test.
  13. trents
    Welcome to the forum, Joanne! First, the anti-Endomysial antibody IgA is very specific for celiac disease but not considered a sensitive celiac antibody test so if that is positive it just about guarantees you have celiac disease. Then when you add onto that a positive tTG-IGA (the single most common celiac antibody test ordered because it combines good...
  14. trents
    No, I cannot comment on that. Perhaps another forum member has experience with pancreatic enzymes. What I can tell you, however, is that undigested fat in the stool is one of the classic symptoms of celiac disease. Again, this goes back to the damage done to the SB villi.
  15. trents
    Yes, try the home test with baking soda and water. It is not precise but will be "in the ballpark" (an American expression) and tell you basically what you need to know. Yes, it is safe to do occasionally. Lots of sodium so you don't want to do it frequently.
  16. trents
    Lot of unknowns here and I agree with a previous comment that the patron is unlikely to be successful in his legal actions unless he can prove there was negligence and that will be difficult. The patron shot himself in the foot by not first making contact with the eatery to lodge a complaint but instead went straight to an attorney. And does he have medical...
  17. trents
    Thanks for the extra info, Elwin. You may be amazed at how much better you will feel if you get serious about eating gluten free. The constant gut inflammation caused by celiac disease, over time, destroys the villi that line the small bowel. These villi are where all of our nutrition is absorbed. So, even if we are eating well, the nutrients are not...
  18. trents
    My guess is somehow they removed or altered the gluten protein in the malt. There are other such products on the market that are made from gluten-containing grains but claim to be gluten free because they have supposedly removed the gluten and left just the starch component. This works okay for many celiacs but the more sensitive celiacs still can react to...
  19. trents
    So my Amazon order of nicotinic acid just arrived and the caplets are 100mg each. But I'm reading all over the place that 35mg daily is the safe upper limit for niacin: https://www.hsph.harvard.edu/nutritionsource/niacin-vitamin-b3/#:~:text=UL%3A The Tolerable Upper Intake,19%2B years is 35 milligrams.
  20. trents
    Welcome to the forum, Elwinfrost! I am not clear on the question of whether or not you have been officially diagnosed with celiac disease. Can you elaborate on that please? I'm not aware of any treatment for celiac disease apart from the gluten free diet. I understand that with your pancreatic ipmn fats are likely contraindicated. Yet, there...
  21. trents
    "I am not sure how long the serum antibody tests specific to celiac disease have been available but they are pretty accurate." Just found the answer to the question my own comment raised: "While in 1997, The role of the antigen tissue transglutaminase (TtG) in celiac disease is discovered." https://www.beyondceliac.org/celiac-disease/celiac-history...
  22. trents
    Stephen, welcome to the forum! Can you provide more details please? First of all, when you diagnosed in the 90's, what gluten disorder were you diagnosed with? How were you diagnosed? What tests were run? Did you have serum antibody tests run that are specific for celiac disease? Did you undergo an endoscopy with biopsy of the small bowel lining...
  23. trents
    Lactose is the sugar in milk. If your reaction to dairy mimics your reaction to gluten then I would suspect your are showing intolerance to the milk protein casein rather than lactose. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ You don't say but may we assume you are scrupulous in your efforts to eat gluten free?
  24. trents
    "Although the study confirmed the toxicity of this variety for patients with celiac disease from a histological and serological point of view, this ancient variety of wheat was clinically well-tolerated, suggesting a potential efficacy in patients suffering from other gluten-related diseases, such as NCGS..." Not for those with celiac disease but for...
  25. trents
    https://www.mayoclinic.org/diseases-conditions/bile-reflux/diagnosis-treatment/drc-20370121 Lifestyle and home remedies Unlike acid reflux, bile reflux seems unrelated to lifestyle factors. But because many people experience both acid reflux and bile reflux, your symptoms may be eased by lifestyle changes: Stop smoking. Smoking increases the...
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