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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Your next step would seem to be to get a skin biopsy specifically for DH. If it turns out to be DH, like I said, that would be definitive for celiac disease. There is no other known cause for DH. My understanding is that a proper biopsy for DH involves taking the samples from an area close to the eruption but not from the eruption itself. The logic there...
  2. trents
    Welcome to the forum, Hb333! First, a colonoscopy cannot be used to diagnose celiac disease. celiac disease is an autoimmune condition that damages the villi that line the small bowel. Colonoscopies do not go up that far. Actually, an endoscopy with biopsies are used to diagnose celiac disease. And as you know, there are also blood antibody tests...
  3. trents
    I would think only if there had been spilled wheat/barley/rye four that was cleaned up, i.e., a significant concentration of gluten containing flour being stirred up and made airborne.
  4. trents
    Welcome to the forum, Lea89! Sorry to hear of all your struggles. Sounds like a bummer of a way to live from day to day. You said, "I am seriously considering quitting this diet, though I am celiac, I didn’t have any of those problems before." But it does sound like some of your symptoms (hair loss and constipation) were present before your diagnosis. ...
  5. trents
    Watermelon is also high in sorbitol and probably the reason many people can't handle much watermelon.
  6. trents
    Eating gluten free is not as simple as people imagine it to be at the outset since gluten can be hidden and disguised in so many ways in processed foods or through CC (Cross Contamination, i.e. when gluten-free food comes into contact with gluten containing food). This might help:
  7. trents
    As Scott said, watch out for the class of alternative sweeteners know as "sugar alcohols". Sorbitol is one example and they are very common in processed foods these days. They are also known as "pre biotics". They give many of us digestive problems such as you describe. One sugar alcohol that does not give digestive problems is erythritol. I am currently...
  8. trents
    It is a misconception that people with celiac disease will necessarily be underweight. Actually, some celiacs eat more to make up for the poor utilization of vitamins and minerals from the damage done to the small bowel villi and therefore consume more calories, leading to weight gain. But the much of the medical community is woefully uninformed about gluten...
  9. trents
    Welcome to the forum, Kim! Equivocal means the test results would be marginally positive as opposed to strongly or clearly positive. Do you have access to the details of the test results yet, as in do you have a hard copy or can you view them online? There are a number of tests that can be run to specifically check for celiac disease and "TTG" and "Gliadin...
  10. trents
    Welcome to the forum, dwspaanem! Does the bloating happen if you were to eat meat alone? And is it the stomach that bloats up or is it lower down? I'm thinking you might have SIBO.
  11. trents
    Some food items, just by the nature of what they are and by nature of the manufacturing processes they undergo, simply would not contain gluten so it would be superfluous to put "gluten free" on the labeling. A good example would be milk. The only remotely possible connection I could see soda pop having with gluten would be caramel color.
  12. trents
    Lisa, welcome to the forum! Try googling, "Gluten free drugs" or "gluten free medications". Another option is to contact the companies that manufacture these drugs and ask that question. Your pharmaceutical provider can supply you with the names of the manufacturers. I have done this many times and what I usually run into is that the drug may not intentionally...
  13. trents
    The "codex standards"? What is that?
  14. trents
    About 10% of celaics react to oats like they do wheat, barely and rye. There are two potential problems with oats, radele. One is that the oat protein, avenin, is similar enough to the gluten protein to cause some celiacs to react to pure oats like they do gluten. The other potential problem is that mainstream oatmeal brands are often cross-contaminated with...
  15. trents
    Welcome to the forum, radele! No. Not having gluten for 12 hr. or so would not cause a false negative. The Mayo Clinic guidelines for a pretest gluten challenge are 2 slices of wheat bread daily (or the gluten equivalent) for 6-8 weeks leading up to the celiac antibody test. So, you can see it takes weeks for the antibodies to build up to the point where...
  16. trents
    Cyanna, welcome to the forum! Unfortunately, I would not expect your testing numbers to be valid after only two and a half weeks of gluten exposure, especially when consuming very limited amounts as you describe. But what do you mean when you say, "Normally, without doing this, my numbers are quite high anyway."? Are you talking about celiac antibody test...
  17. trents
    But you say you are dairy intolerant. How does dairy normally affect you.
  18. trents
    As far as the taste and texture difference of the meats when grain or corn fed my guess would be the fat content. I do know that grain fed beef (and pork) has higher fat content than grass fed. That is why it is more tender and tastier (according to most people). Not sure if it works that way for chickens but I don't see why not. But that wouldn't necessarily...
  19. trents
    What's really unusual about your story is that between March and June of 2022 you went from no villous atrophy to almost complete blunting. Did they do a biopsy with the first EGC? Such an ordeal! You have truly been through the ringer! Thanks for the narrative.
  20. trents
    AmyLou, I take it your villi were completely warn down, or almost so, and you were severely malnourished in order to have been put on TPN. Was all this due to long-term misdiagnosis that someone finally figured out was celiac disease. We would be interested in hearing your story as it might be a wakeup call for someone else going through a similar experience...
  21. trents
    Make sure all your vitamin and mineral supplements are gluten free. Wheat starch can be used as a filler in pills. Costco's Nature Made and Kirkland Signature lines are good choices and will clearly state on the label if they are gluten free. B12 sublingual B-complex 5000IU daily of D3 Magnesium glycinate or magnesium citrate (not magnesium...
  22. trents
    Welcome to the forum, olavodogNOR! Nearly all of the symptoms you describe fit either Celiac Disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. The difference is that Celaic Disease damages the villi that line the small bowel and thus generates medical problems related to malnutrition. Even though we may be eating...
  23. trents
    Welcome to the forum, AmyLue! May we ask what is your age? For mature adults it typically takes two years or more for total healing of the villi once a gluten free diet is being consistently followed. Has there been a follow-up biopsy to check the status of the villi after less than four months of being on TPN? Having said that, there are many...
  24. trents
    There are some things that can generate positive tTG-IGA values. Crohn's disease, some tropical parasitic infections, some medications and even the dairy protein, casein, in some people. You can develop celiac disease at any time in life. Some experts believe that gluten sensitivity (NCGS) can be a precursor to celiac disease. You can trial gluten free eating...
  25. trents
    https://nimapartners.com/products/nima-partners-gluten-sensor
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