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trents

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Everything posted by trents

  1. trents
    That sounds about right.
  2. trents
    Welcome to the forum, deirdre! Can you list the ingredients from the packaging for us? It is typical for celiacs/NCGS people to develop food reactions in addition to gluten.
  3. trents
    The author states in the Potential Celiac Disease or Latent Celiac Disease paragaraph with regard to NCGS: "People in either of these groups may have positive blood tests for celiac disease yet a negative biopsy." While this may be true, more commonly NCGS people have neither elevated antibody blood tests or villi damage. Nonetheless, a very helpful...
  4. trents
    Scroll up to the top of the page and locate the envelope symbol. That will allow you to send a persona message to Scott Adams, our administrator, and ask him about the issues you are experiencing. Do you have a computer you could use to check for more options on the user interface?
  5. trents
    Not sure. PM Scott Adams and ask that question. On many forums I have joined I did not have full privileges right away. But, there could be an issue with the software as it was recently updated. When you open up a new post window do you see a paperclip at the bottom with instructions about choosing files to attach or dragging them?
  6. trents
    No option for "Edit", huh? Could be that you are using your phone, I don't know for sure.
  7. trents
    Welcome to the forum, Arreietti! Please attach the pictures directly to your post. Use the three dots in the upper right corner of any new post window. There is a time window for editing so do it in a new post and don't wait too long. Linked items are not permanent and in time they may become invalid links.
  8. trents
    A pharmacy may be able to order a home test kit for you but I would be surprised if they had them in stock. Here is one I know is popular but not sure what postage/shipping costs would be where you live: https://www.imaware.health/at-home-blood-test/celiac-disease-screening Here is a primer for tests that can be run to detect celiac disease: https...
  9. trents
    Welcome to the forum, Unsure123! Your symptoms indicate possible celiac disease or NCGS (Non Celiac Gluten Sensitivity) and there is family history of a gluten disorder. You said, "My surgery isn't the best". Did you mean to type "surgeon" instead of "surgery"? Would you clarify what is meant by this? Did you have a C-section? I have had no personal...
  10. trents
    From your antibody testing, I have no doubt that you have celiac disease. The EMA test is not particularly sensitive but it is very specific for celiac disease. If you want further confirmation, you would need another endoscopy with biopsy of the small bowel lining done. If you do intend to get a SB biopsy done, you would need to continue eating regular...
  11. trents
    Okay, that explains why they didn't biopsy the small bowel lining. You have a number of autoimmune disorders it seems. Fact is, they tend to cluster. Not unusual.
  12. trents
    If you are interested in getting him genetically tested for celiac disease potential you can get that done through third party home kit suppliers like 123 and Me.
  13. trents
    The trouble with vitamin level testing is it only tests the amounts circulating in the blood and not what is actually getting into the cells. Symptoms are a better barometer.
  14. trents
    Welcome to the forum, Mmartin4444! You neglected to post what reference range was used by the lab to distinguish between normal and positive tTG-IGA levels. There is no industry standard for this and each lab uses there own reference ranges. Yes, there are some things besides celiac disease that can cause elevated tTG-IGA. Some other medical conditions...
  15. trents
    I'm a celiac, though not a really sensitive one. I got COVID back this summer and took the Paxlovid without any gut disapproval that I noticed. However, I was one of the 18% or so of people who got the COVID rebound after taking the antiviral drug.
  16. trents
    Sounds like they did not do a biopsy of the SB. How frustrating! They should have done it when they did the endoscopy as it's also an upper GI procedure. Was the endoscopy done before or after the antibody testing for celiac disease?
  17. trents
    There is a high correlation between celiac disease and Hashimoto's. But let me seek some clarification here. In your previous post you stated you had hyperplastic esophageal mucosa. Do you also have hyperplastic mucosa of the colon? You did not answer my question of whether or not they took a biopsy of the small bowel lining. Do you know if they...
  18. trents
    Welcome to the forum, KathyF. All your blood work screams of celiac disease. A positive EMA just about guarantees you have celiac disease. I assume they did a biopsy of the small bowel along with the endoscopy? Can you confirm this? The description of the endoscopy findings addresses the condition of the esophagus rather than the small bowel...
  19. trents
    You're welcome. Be aware also that food companies can and sometimes do change formulations on mainstream products. What was once gluten free many not be always be so continue to read labels and don't assume what was gluten free at a point in time will always be gluten free.
  20. trents
    Yes, total IGA is what I was referring to. Have you considered getting a genetic test for celiac done on your son? That would at least establish whether or not he has potential for developing celiac disease. Constipation seem to be a very common symptom for children when they have celiac disease. It is also possible he has NCGS (Non Celiac Gluten Sensitivity...
  21. trents
    Welcome to the forum, paxmom. Children's immune systems are immature and often don't respond in the same way to celiac disease. Was there a total serum IGA count done? If total IGS is low then it drives down individual IGA scores. This might be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Note these statements...
  22. trents
    As long as you reintroduce regular amounts of gluten (the equivalent of two pieces of wheat bread daily) for two months before your appointment with the gastroenterologist you should be able to trial a gluten free diet now. These are the Mayo Clinic guidelines for a pretest gluten challenge.
  23. trents
    Then I would not use it until you can locate an ingredient list. Can you pinpoint the exact product on Amazon that you bought? There are actually two concerns in these situations: 1. Does the product contain wheat, barley or rye as an intentional ingredient? Does one or more of those grains or their derivatives (such as malt or malt flavoring which...
  24. trents
    Marian12, welcome to the forum! Can you link the exact product so we can look at the ingredient list or at least give more details about which Knorr onion soup mix product you are asking about? Knorr offers several different onion soup mixes.
  25. trents
    Welcome to the forum, Anonimo9719! Several things I would point out to you: 1. The tTG-IGA antibody test for celiac disease misses 20% of those who actually do have celiac disease if they are of white European decent and 80% of those who actually have celiac disease if they are of black African decent. So, you can see that it is far from a perfect...
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