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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Histamine intolerance is a subset of MCAS. It can exist apart from MCAS but often they occur together with Histamine intolerance being one dimension of a bigger problem.
  2. trents
    Total IGA is made up of the sum of all IGA components. If total IGA is low then individual IGA component scores (like tTG-IGA) are lowered along with it.
  3. trents
    Let's remember that the bread stacked in supermarket bread isles is wrapped so that any gluten is contained. Furthermore, when I think about this, an immediate reaction to airborne gluten or gluten fumes or whatever people think they are inhaling when walking down the bread isle of a supermarket can't possibly be a celiac reaction. Even if, in this situation...
  4. trents
    Actually, I don't know why they don't have a standard reference range for each of these celiac antibody tests. But I know they don't. Someday there might be a standard but for now it may be a legacy phenomenon left over from the early days of when these tests were first developed which I believe was in the early 90's and everybody was sort of doing their...
  5. trents
    Welcome to the forum, asaT! When you say you look online and get different range values for positive than what was stated for your test results, do you mean you looked at your own medical record report for this test? You need to know that different labs use different reference ranges. There is no standard. You would need to compare your test result...
  6. trents
    Welcome to the forum, MaureenB! Arthritis - does anyone get joint pain/swelling with even the smallest glutening? If so, how long does it take for your joints to feel better? (Getting work up for rheumatoid arthritis at the moment but hard to tell if it's all just because of gluten) Yes, this is a very common medical condition associated with gluten...
  7. trents
    This may help for name brand meds: https://dailymed.nlm.nih.gov/dailymed/ Otherwise, you would need to contact the manufacturer if it is a generic or store brand. What practical measures have you taken to combat the GERD such as diet changes and elevating the head of your bed? Long term PPI usage presents some serious health risks in and of itself...
  8. trents
    I think this is a very enlightening article and should help the average celiac who is not particularly sensitive to CC relax a little. But still, it doesn't address the needs of those who are sensitive. The rinsing of the noodles is the most important take away for me and all celiacs should inquire about this when eating out or insist that their gluten-free...
  9. trents
    Are you certain the multivitamin you are taking is gluten free? Wheat starch is sometimes used in pills and supplements as a filler. Not sure where you live but in the USA manufacturers of supplements are not required to report allergens I believe. Do you still eat out?
  10. trents
    Absolutely!
  11. trents
    I think genetic testing through 23andMe costs around $200 USD. It won't establish whether or not you have celiac disease but whether or not you have the genes that can potentially result in it. There are two primary genes that have been linked to the development of celiac disease. Most who have them don't develop celiac disease as it also requires some kind...
  12. trents
    The potential problem I see with a pescatarian diet is the potential for heavy metal toxicity over time.
  13. trents
    If I was going to freak out when walking down the bread aisle at the supermarket it would be because the smell of sour dough makes me crave real bread.
  14. trents
    Yes, but whether or not it does and whether or not it does in sufficient amounts to actually cause a reaction is the very question I was addressing. It's just hard to know since there are those who claim it is happening to them and we have no objective way of determining whether it is real or imagined.
  15. trents
    Good question, Russ. I wonder about that too. The problem is that sensitivity varies so much within the celiac community that its really hard to get a handle on what is effectively gluten free and what is not.
  16. trents
    Neuropathy is associated with both celiac disease and NCGS. We have lots of people on this forum who have NCGS who suffer from neuropathy. But looking at your symptoms in toto, there are a lot of things that suggest celiac disease and the nutritional deficiencies that invariably accrue from celiac disease. To your supplementation I would suggest adding a...
  17. trents
    Welcome to the forum, John! You frequently mentioned cutting out gluten and problems you perceive to be connected to gluten. You also say, "I did a stool test that showed my gut was all out of whack in terms of bacteria and most importantly that my Anti-gliadin immune response was over 500 U/L." But what you do not say is whether or not you have...
  18. trents
    I suspect there is something going on here that has something to do with the de-glutened wheat starch itself that is causing so many to react to it like the gluten had not been removed. I'm thinking there is something left behind that is enough like gluten to cause gluten-like reactions in a significant number of people but not in many others with celiac...
  19. trents
    Welcome to the forum, Nancy! What specific info about Udis' bread are you looking for? Do you have any dietary issues besides avoiding gluten that you need to address?
  20. trents
    https://www.glutenfreesociety.org/can-gluten-cause-muscle-and-joint-pain/
  21. trents
    Celiac disease can result in inflammation in various parts of the body. Choose only vitamins and supplements that are labeled gluten-free. Choose the glycinate or citrate forms of magnesium. They are more expensive but absorbed better than Magnesium oxide, the most common form you see in the stores. The better the magnesium is absorbed the less likely...
  22. trents
    So, I would suggest trying to elevate the head of the bed. Were you diagnosed with celiac disease by blood antibody testing only or did you also have an endoscopy/biopsy performed? Sounds like with your symptoms you should have an upper GI scoping done if you have not done so. Takes around two years or so for complete healing of the small bowel...
  23. trents
    Vitamins and supplements are not required to report that kind of information so I wouldn't rely on the labels. Better to get vitamin and supplement products that specifically say they are gluten free. Costco's Kirkland Signature and Nature Made lines will say on the label if they are gluten free and many or most of them are.
  24. trents
    Have you screened the vitamin and supplements you take for gluten?
  25. trents
    Welcome to the forum, Gamma! First, let me offer this primer on getting a handle on gluten free eating because it's much more involved than most people imagine when they first start out on the gluten-free journey. Most people who think they are eating gluten-free are actually eating a lower gluten diet than the general public but not truly gluten free...
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