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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Hm. How can we help you or did you just want to vent? By the way, we all need to vent at times so that is perfectly okay. But do you have a question for us? Usually, we see the opposite with celiacs in that they themselves try to connect all their medical problems to celiac disease while the medical professionals are looking everywhere but that.
  2. trents
    Did you mean to type tTG-IGA? But what is the reference range used by that lab to determine negative vs. postive?
  3. trents
    Check my previous post as I added some to it.
  4. trents
    Judging from the way you spelled "coeliac" I'm guessing you are in the UK where I understand there is some kind of government assistance to offset the additional cost of gluten free foods. But apart from that, whether you have celiac disease or NCGS, may be largely an academic question since both would require you to adopt a gluten free lifestyle in order...
  5. trents
    Excellent question! My impression based on what I have read and what others have reported is that a picture is emerging with regard to gluten disorders that is not as black and white as we once thought. Some experts believe NCGS is a precursor to celiac disease. It is also becoming apparent to me that there is considerable variability in immune system response...
  6. trents
    If the gastro only took three samples it doesn't sound like he did a thorough job. Six or eight (three or four from both areas, duodenum and duodenum bulb) would indicate more thoroughness. There is also something called NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not damage the villi of the...
  7. trents
    Luls, how long have these symptoms been going on? Several things: 1. My understanding is that the EMA is the most specific but one of the least sensitive of all the celiac serum antibody tests. "The EMA test has a specificity of almost 100%, making it the most specific test for celiac disease, although it is not as sensitive as the tTG-IgA test...
  8. trents
    I'm reasonably certain that I suffer from histamine intolerance but I already supplement with magnesium. I think my issue is probably insufficient DAO production. A couple of days ago I started on a DAO supplement and I am bumping up my zyrtec from one to two tabs daily. Next time I get to Costco I'm switching to Allegra 24 hr. as their new formulation is...
  9. trents
    Marie, going gluten free for two months before testing will likely invalidate the testing. You should not go gluten free until all testing is complete. When you go gluten free, the inflammation caused by the ingestion of gluten (if you have celiac disease) will begin to subside and may not be detected. Did your doctor not warn you about this? Many docs don...
  10. trents
    How long ago were you diagnosed as celiac with the blood antibody test? If you have been on a gluten free diet for months or years then the villi should be healed or healing. Just thought I'd mention that in case the biopsy doesn't show the damaged villi characteristic of celiac disease.
  11. trents
    An endoscopy will only examine the small bowel, the part of the intestines near the stomach outlet. It might be wise to seek a colonoscopy as well if the endoscopy doesn't reveal the cause of the red material in your stool. But looking at the picture you supplied it doesn't look like mucous to me. Looks more like incompletely digested food like maybe...
  12. trents
    I'm guessing the gluten sniffing dogs are only used when someone gets so sick from eating only tiny amounts of gluten by accident or cross contamination that they might die. Personally, I don't know of any celiacs who have gluten sniffing dogs and I know a lot of celiacs.
  13. trents
    Maybe your mom and dad could go online and do that for you. I don't know what Marsh level I was when they did the biopsy 20 years ago. Recently, I went to that doctor's office to get my medical records but that information was not recorded when they did the biopsy. Not sure they were using Marsh back then.
  14. trents
  15. trents
    Maddie, the reason is some food items may not list gluten on the label but may still contain gluten because it was made with machines that also processed foods containing gluten. Not all foods that do not list gluten on the label (or wheat, barley or rye) will be entirely free of gluten. Some people who are very sensitive to even tiny amounts of gluten might...
  16. trents
    They don't use a blood test to assess the damage done (Marsh scale) to the villi that line the small bowel. They use an endoscope. They first may sedate you so you don't fight the scope as in the sensation of choking and then pass the scope into your mouth, down your throat, past the esophagus, through the stomach and into the first part of the intestine...
  17. trents
    Here are some basics to keep in mind. 1. There are only three grains that contain the protein called gluten: wheat (in it's various forms that go by other names like, kamut and khorasan), barley and rye. About 10% of celiacs react to the protein "avenin" in oats like they do to gluten). 2. Wheat and barley derivatives like "malt" and "malt flavoring...
  18. trents
    Yes, it could be wrong. The numbers are not unequivocal. They are marginal. But my best guess would be you caught celiac disease at an early stage before much damage was done to the small bowel villi and other body systems. And there are plenty of high fiber alternatives that don't involved gluten-containing grains. Buckwheat (a relative of rhubarb) and quinoa...
  19. trents
    Hi there! I'm not clear on what information you are seeking in relation to your pending gallbladder removal. Are you wanting advice as to whether or not to go through with it or advice about what eat and what not to eat afterwards?
  20. trents
    Also, the endomysial antibody test is very specific for celiac disease. It is the most specific test available but the least sensitive. To me, that says a lot when it is positive. Kudos to your physician for running a full celiac panel instead of just the tTG-IGA.
  21. trents
    Cristiana gives good advice. But you may be surprised to know it is not all that uncommon to have positive antibody tests and with a negative biopsy and still have celiac disease. We have had forum participants report that combination a number of time since I have been participating on this forum and most of the time it is with young children. Celiac children...
  22. trents
    Maddie, I believe you are referring what is known as the Marsh scale. It rates the damage done by celiac disease to the villi that line the small bowel. They take samples from the lining of the small bowel with a scoping tool and then send it to a lab for viewing under a microscope. The amount of damage to the villi is given a rating of 1-4.
  23. trents
    Welcome to the forum, Maddie!
  24. trents
    Thanks for the update on your liver enzymes, Susan. That is good news.
  25. trents
    This is very useful information and accords with a growing body of data showing more variability in celiac disease manifestation than we ever realized just a few years ago. The disease is proving to defy our neat little diagnostic categories.
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