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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I do not think it means there is no damage being done to the small bowel villi which is what they are looking for in a biopsy. It's saying that the cells that normally secrete the IGA antibody markers of inflammation are missing or at least abnormally low and this can skew serum IGA antibody tests toward the negative end. I think it's simply saying that when...
  2. trents
    Welcome to the forum, Glutenfreesuriname! I think you are the first person from Suriname to join this forum in the years I have been participating on it. Seems like you are on the right track with your gluten free diet. It is not uncommon for people to lose weight on the gluten-free diet as it eliminates a major source of calories for most people. Have...
  3. trents
    Welcome to the forum, Chickenugget88! Iron infusion should make you feel better very quickly. Have you been checked for pernicious anemia? This is a particular kind of anemia that is caused by the inability of the body to assimilate vitamin B12, B12 being necessary in turn for the assimilation of iron. Are you eating gluten free yet? You never actually...
  4. trents
    What was your tTG-IGA score and what reference range was used for negative vs. positive? There are some other medical conditions and some meds that can generate elevated tTG-IGA antibodies. Usually, when it is caused by non-celiac factors the score is not high, however. Were any other antibody tests run for detecting celiac disease besides the tTG-IGA?
  5. trents
    TeriFord, welcome to the forum! You are not the first professional baker to ask this question on the forum. There is no scientific evidence that gluten can bloodstream through contact with the skin, though we do have some forum members who claim to get "glutened" by handling wheat flour products or applying topical lotions containing gluten. I would...
  6. trents
    I've been using this one: https://smile.amazon.com/dp/B00I080C48?psc=1&ref=ppx_yo2ov_dt_b_product_details
  7. trents
    You wrote: "and constipated. I have also experienced GERD and gastritis which I don't know if they are confused with having gluten. The above symptoms last almost immediately from the ingestion of gluten until 3-4 hours later" It does sound like you have some GI distress related to consumption of gluten. The symptoms of celiac disease are quite varied...
  8. trents
    If you will be going in for celiac antibody bloodwork you should be consuming the equivalent of 2 slices of wheat bread daily for 6-8 weeks leading up to the day of the blood draw. This is the recommendation of the Mayo Clinic. If you have discontinued gluten already you should consider rescheduling your blood draw to give you opportunity for the full pretest...
  9. trents
    There are currently no tests for NCGS. Celiac disease must first be ruled out. There are specific tests for celiac disease. And as Scott said, you need to be consuming an amount of gluten equivalent to two slices of wheat bread daily for 6-8 weeks prior to celiac antibody testing and for two weeks prior to an endoscopy/biopsy in order for testing to be valid...
  10. trents
    Yes, you need to be consuming a regular amount of gluten until all testing for celiac disease is complete.
  11. trents
    Welcome to the forum, NNThomas! Yes, we have had a number of forum participants take that "backward" diagnostic path of have the biopsy first and then the blood work to check for celiac antibodies. Though, I would have to say that the biopsy is still considered the gold standard of celiac disease diagnosis. There are only a handful of other things that...
  12. trents
    I would go for the serum antibody test before a scope. And that's what most doctors do first as it is very cost effective. Ask for a full celiac panel including total IGA, tTG-IGA and Deamidated gliadin peptide (DGP IgA and IgG). Many doctors don't know much about dx celiac disease and will only order the tTG-IGA. That is the best single test but can miss...
  13. trents
    Ddowada74, you asked: "Wondering which type of doctor to go to for this testing?" Vitamin level testing is really not very useful in many or most cases. It only measures that which is floating around in the blood, not what is actually making it into the cells that make up our tissues and organs. Symptoms of deficiencies are much more useful in dx them...
  14. trents
    Welcome to the forum, Ddowda74! Many of us have been tested in various ways for food allergies in addition to gluten. It is very common to have other food allergies and intolerances in addition to gluten for those who have celiac disease or gluten sensitivity. I have allergies to 30+ foods and air-born allergens. Too many to address them all so you have...
  15. trents
    You said: "Understand that the will heal somewhat, but my doc told me I could go gluten-free. Bestdvice, talk to your docs." It is the common experience of users on this forum that most general practitioners are woefully underinformed about celiac disease and things pertaining to it's diagnosis. From the National Celiac Association: It is...
  16. trents
    The villi in the small bowel will begin to heal if you eliminate gluten before the endoscopy/biopsy. Consider this, the gluten challenge period is only two weeks long for the endoscopy/biopsy where as it is 6-8 weeks long for the antibody test. That tells me the physical damage begins to disappear long before the serum antibodies do. That seems counter intuitive...
  17. trents
    Ned, make sure you do not begin the gluten free diet until after all tests are complete, including an endoscopy/biopsy should the GI doc want to go forward with that.
  18. trents
    Welcome to the forum, Dan! If I may offer an internet safety tip, it's never a good idea to post contact information which will be viewable to the online public. There are too many evil people out there who can use it to do harm to you in one way or another. This forum, as do most online communities, has a PM (Personal Message) tool that interested people...
  19. trents
    First, celiac disease is not a food allergy. It is an autoimmune disorder that triggers inflammation in the lining of the small bowel when gluten is consumed. The celiac's immune system incorrectly responds to the gluten protein as it would an invader. The small bowel lining is made up of little finger-like projections and is the area of the intestinal track...
  20. trents
    Welcome to the forum, Ned! Yes, sometimes we get posters who report that their physicians gave them scant information about their testing and nothing more than "positive". I think some doctors assume most patients would not comprehend any additional information beyond that anyway. Do you have access online to your medical chart that you can see if there...
  21. trents
    At the end of the day it really doesn't matter, does it, if you have an official diagnosis or not? Either way, you now know you must avoid gluten. If you have trouble in the future getting a PCP to order antibody tests so you can check your progress, realize you can order home tests from companies like imaware for around $100 US. Also, what vitamin and...
  22. trents
    Good start. Make sure they are gluten free. But for neurological health you probably should be taking a high potency B-complex and D3 as well. Costco's Nature Made and Kirkland brands are a good choice and will clearly state on the label if they are gluten free. You needn't worry about toxicity when taking high doses of B vitamins as they are water soluble...
  23. trents
    I would not be surprised at all if they cooked the gluten-free pasta in the same water as wheat spaghetti noodles. Scott Adams, the founder and administrator of celiac.com tells the story of that exact thing happening to him when eating out at an Olive Garden. They boiled the gluten-free noodles in the same pot as they were using for wheat noodles. He got...
  24. trents
    Welcome to the forum, jackmac32! No, eating truly gluten free does not equate with "0" antibody scores. But it should equate with negative scores instead of positive scores in relation to the reference ranges. This one might be cause for concern if you have been truly gluten-free for two years: Tissue Transglutaminase IgA Ab 64.4 U/mL (15 Ref)....
  25. trents
    And also a history DH. I emailed the following inquiry to Celiac.org: A couple of us moderators at Celiac.com noticed from https://clinicaltrials.gov/ct2/show/NCT04248855?term=kan101&draw=2&rank=1 that the exclusionary criteria for participating in the KAN-101 study included having the DQ8 gene and a history of DH. Do you have any knowledge...
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