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trents

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Everything posted by trents

  1. trents
    Okay, in reading back through your posts, I think what I see is that you were eating gluten free for two years and then had celiac panel testing done because your neurologist suspected celiac disease as the cause of your ataxia. Is this correct? If so, the celiac panel testing results would not be reliable. Even if someone does have celiac disease, if you...
  2. trents
    The "abnormal" gliadin IGG could indicate celiac disease. Do you have a reference range for that one? What is normal? Different labs use different reference ranges so there isn't a standard. When this testing was done, were you already trying to eat gluten free by any chance?
  3. trents
    You said your gliadin antibody was "abnormal". I took that to mean that you were tested for celiac disease and were positive. Can you clarify what testing you have had done and post the numbers please with reference ranges? By "gliadin antibody" are you referring to total serum IGA or some specific IGA component?
  4. trents
    https://gluten.org/2021/03/23/43-foods-where-gluten-may-be-hidden/
  5. trents
    Excellent link, Kyndryl! Thanks. I will book mark that one for use here on the forum.
  6. trents
    Did you leave out "eat" or "grow"? Did your friend have a corn allergy?
  7. trents
    ??? Looks right to me.
  8. trents
    It likely indicates you are not truly eating gluten free. Gluten is probably getting into your diet from unexpected sources. Research shows that most people who claim to be eating gluten free are actually eating low gluten. Do you still eat out at restaurants? Have you checked your pills and supplements? Do you live in a household where others are not eating...
  9. trents
    Just wondered since you referred to it as a food allergy in your post. Not meaning to be picky but this is a very common misconception that we in the celiac community are constantly trying to educate people about so they have a better understanding of what we are dealing with.
  10. trents
    For the biopsy test, the Mayo Clinic recommends being on gluten for at least two weeks to give valid test results. They recommend the consumption of an amount of gluten found in two slices of wheat bread daily or the equivalent.
  11. trents
    "Very importantly, the team's mapping-by-sequencing of an agronomic trait related to water-use efficiency creates a roadmap for potentially creating strains of more water efficient oats and other cereals." This scares me as many experts feel this is whey modern day wheat causes problems for celiacs. They kept hybridizing it to make it drought and disease...
  12. trents
    Their proteins may be similar enough to gluten to cause reactions in some celiacs.
  13. trents
    Are you referencing your gluten free diet or hers? If your daughter has already been eating gluten free there will have been healing in the small bowel and it will likely void the biopsy results.
  14. trents
    It is certainly possible to avoid those expensive gluten free foods and stick to main stream foods once you learn to avoid the ones that might contain gluten. Like others have said, foods made from gluten free flours will be largely void of nutrition since gluten-free flours are not required to be enriched/fortified by the FDA as are wheat and other mainstream...
  15. trents
    If you are referring to celiac disease, it is not a food allergy. It is an autoimmune disorder.
  16. trents
    You should have not just your other children tested but both their parents tested. Absolutely! A large study done last year by the Mayo Clinic found that 44% of first degree relatives of those with confirmed celiac disease also had active celiac disease themselves. Previous studies had found a much lower incidence among family members, more like 10%...
  17. trents
    Chris, you should be feeling better by now unless you are continuing to get glutened from other sources besides the beer. And don't rule out the possibility of something else going on besides your recent experience with the dark beer. What you are experiencing is atypical I would think.
  18. trents
    Chris, D3 is an extremely important vitamin that is involved in many biochemical bodily processes. Bare minimum is certainly not optimum. I would add about 5000IU daily to your supplementation. That is certainly a safe amount.
  19. trents
    Chris91, you need to know that if you start the gluten-free diet before all testing is complete you will invalidate the test results. The Mayo Clinic pretest gluten challenge guidelines are the daily consumption of two slices of wheat bread (or the equivalent amount of gluten) for 6-8 weeks before the antibody testing and if you should go on to get an endoscopy...
  20. trents
    I do not believe there is really a test for NCGS. Celiac disease must first be ruled out and the ALCAT testing is not designed for that. There are specific serum antibody tests designed to detect celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ I would strongly suggest you get some actual celiac disease testing done...
  21. trents
    Also, the damage to the villi can be patchy and is sometimes missed by doctors who don't take samples from various areas including the duodenum bulb.
  22. trents
    Why would he need a yearly flu jab? What other tests?
  23. trents
    Or, you caught the celiac disease at an early stage. At the end of the day does it make any difference? You need to eliminate gluten either way.
  24. trents
    If you aren't positive for celiac disease you could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but is 10x more common. No test for it. It doesn't damage the villi of the small bowel or throw antibodies. Celiac disease must first be ruled out. Same antidote as celiac disease and that is elimination of...
  25. trents
    And you even lived to tell about it!
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