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trents

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Everything posted by trents

  1. trents
    It is unlikely that you have total inability to absorb nutrients so may you just need to increase the dosage of vitamin and mineral supplementation to increase the amounts that are being absorbed to the point where they are therapeutic.
  2. trents
    Welcome to the forum, Orshi! You say, "I thought about checking 23&me for markers and I guess I have one of the genetic markers for celiac disease." Are you saying you have not yet checked with 23&me but your best guess is that you do have at least one celiac genetic marker? The way you phrased it makes it difficult to decide if you do have a...
  3. trents
    Welcome to the forum, Nancie! Celiac disease damages the villi that line the small bowel, the section of the intestines just below the stomach. The colon is on the far end. Celiac disease would not be detected by a colonoscopy but rather an endoscopy. Endoscopies enter the scope from the mouth, go down through the esophagus, the stomach and into the...
  4. trents
    Well, you LES (Lower Esophagial Sphincter) must be sealing the top of the stomach off well and not allowing stomach juices to get up into the esophagus. And there was no mention of a hiatal hernia in the report.
  5. trents
    Hyperplasia of the Brunner's gland means it is enlarged. These glands reside in the small bowel "Brunner’s glands are duodenal glands localized predominantly in the submucosa of proximal duodenum. They secrete alkaline fluid composed of mucin (Muc-6) which protects duodenal epithelium by counteracting the acid chime from stomach". It is possibly w...
  6. trents
    Nope, doesn't look like celiac disease but if you have celiac-like symptoms you may very well have NCGS (Non Celiac Gluten Sensitivity). But, were you consuming significant amounts of gluten before the biopsy? If you had already gone gluten free for weeks or months then the testing would be invalidated. Did you also have celiac serum antibodies tested...
  7. trents
    Welcome to the forum, Parkrunner! What makes you think you are atypical in your celiac experience and "standard deviations" from the norm? There are many "silent celiacs" who don't have major GI symptoms but get diagnosed via other health problem pathways. I'm one. Elevated liver enzymes led to my diagnosis. Yeah, I had some minor GI distress but nothing...
  8. trents
    About two years ago I started giving attention to eliminating foods that contribute to acid reflux. I had been on a proton pump inhibitor for the reflux for a number of years and it worked for the reflux. But I became more and more concerned about the other problems that long term PPI can cause. So, I made up my mind to get off the PPI but it was very difficult...
  9. trents
    There is genetic testing for celiac disease potential through 123 and me. There are two primary genes that (so far) have been linked to the potential for celiac disease: HLADQ2 and HLADQ8. Having both genes increases the risk of developing celiac disease over having just one. The DQ2 gene is associated with high sensitivity and more severe reactions to gluten...
  10. trents
    There is a gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease and is 10x more common than celiac disease. Diagnostically, the difference is that NCGS does not damage the villi and does not, therefore, produce antibodies. Some experts believe it can be a precursor to celiac disease...
  11. trents
    Thanks for the additional info. Concerning her anemia, the intestinal metaplasia might come into play. Has any doctor talked to you about pernicious anemia? The parietal cells that line the stomach produce something called "intrinsic factor" which is an enzyme necessary for the absorption of B12. B12, in turn, is necessary for the absorption of iron...
  12. trents
    Natalie S, you seem to be double-posting for some reason.
  13. trents
    KK, I was not commenting on whether or not beef from grass fed cows is generally healthier but the idea that eating beef from grain fed cattle poses a gluten-reaction risk for celiacs or NCGS people. Admittedly, I didn't read your post that LCAnacortes reacted to but I made an assumption it was about getting glutened by eating beef from grain fed cows. That...
  14. trents
    Look for products in the stores that are labeled "Certified Gluten Free" instead of just "Gluten Free". CGF indicates stricter standards were used.
  15. trents
    Can you be more specific about which IGA test or tests were run? Would you be willing to share the test names and numbers, including reference ranges? There is profound lack of knowledge about celiac disease and diagnosis in the medical community as a whole. Many doctors, especially general practitioners, will only order one IGA test (tTG-IGA) which can miss...
  16. trents
    First, how old is your daughter? She doesn't have an H. Pyori bacterial infection so that it is not causing the "intestinal metaplasia" or the duodenitis. Mild reactive gastropathy with focal Intestinal metaplasia means there are changes in the cells that line either the stomach or the esophagus (or some of both) such that they are becoming more...
  17. trents
    In my research of this issue I have found no scientific evidence to support the idea.
  18. trents
    Yes, this is not uncommon.
  19. trents
    jenford244, do you have documentation that this OWYN protein powder is manufactured in a facility that also processes wheat? Julia from OWYN says otherwise. Since you are so sensitive to so many foods, perhaps your reaction is to another ingredient, even perhaps to something else that you consumed around the same time.
  20. trents
    It may be quicker and easier just to get an appointment with a GP and ask him to run a full celiac panel blood test: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Don't let the doc get away with just ordering the tTG-IGA. You can also purchase a home celaic test kit from Imaware for about $100 US. It involves a finger prick...
  21. trents
    Lean meat, fresh fruits and veggies are what all of us celiacs would do better with if we were living on it entirely. I'm sure I could lose the 20 lbs I would like to shed if I was eating like you. Your current diet is exactly what we often recommend to those who start the celiac journey with very badly damaged villi. How long have you been eating truly gluten...
  22. trents
    I would advise against going gluten free until you have been tested for celiac disease. If you go gluten free any testing will be invalidated. I imagine you are suspecting you might have DH (Dermatitis Herpetiformis) which is definitive for celiac disease. But you really don't know if the rash is actually DH. Maybe the shortest testing trajectory in this...
  23. trents
    If you can't handle animal based-proteins I certainly hope you are using B12 supplements.
  24. trents
    Okay, just thought I'd ask.
  25. trents
    Have you been checked for pernicious anemia? It's a kind of anemia that results from an inability to assimilate B12, a necessary nutrient in the assimilation of iron itself? People with pernicious anemia lack "intrinsic factor" needed to assimilate vitamin B12.
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