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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Should be. The advertisement on Amazon states it is gluten free.
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SIBO is not uncommon in the celiac population.
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Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)? The flatulence and it's odor you describe makes me think of that.
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Blindsided and confused
trents replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ginger38, The tTG-IGA is considered to be the best single antibody test available for diagnosing celiac disease. It combines good sensitivity with good specificity. The other tests are more specific for celiac disease but less sensitive. This means if they are positive, it more strongly points to celiac disease as the cause of symptoms. It also means... -
I would not think 800IU daily is enough to really make any difference. I take 4000IU daily and some are recommending more than that. Some years ago there was a lot of caution about taking too much D3 because it is fat soluble but those early limits have proved to be overly conservative and to result in sub-therapeutic administrations. Wheatwacked is really...
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There certainly is a place for being direct with people but usually it can be done in a kind spirit. I agree we should strive for quality information but that doesn't always have to be done in an edgy way. As forum moderators we endeavor to make this forum a welcoming place, not a hostile one.
- 16 comments
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@sc'Que, holding him to task could have been done in a gentler way by simply saying the article would have been more informative had the writer included data about the source of the ale.
- 16 comments
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Top Brands of Gluten-Free Cold Coffee Drinks
trents commented on Scott Adams's article in Gluten-Free Foods & Beverages
Why do you say that, Rachel? -
Am I Coeliac?
trents replied to carlisima's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just a heads up. Those who have been eating gluten free for some time typically discover that re-exposing themself to gluten during the challenge creates much stronger reactions. Not sure how that will be for you since it sounds like you were still getting some gluten all along. -
Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Mary, welcome to the forum! I am not familiar with locust bean gum but most likely the answer to your question boils down to individual sensitivities, as is the case with many non gluten substitute baking ingredients. And something can be safe but still cause you discomfort. Sugar alcohols are that way for me. You will just have to experiment. Concerning...- 173 comments
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Good information but I think you went to far to imply that Jefferson Adams is not a "respectable writer". As a whole, his articles have been very informative. After interacting with this article and it's comments recently, I went into my local Safeway grocery store, a large national chain, and could not find Red Bridge or any other gluten free beer on...
- 16 comments
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Nope, I think you got the science right. Must be something else. Give it more time. It commonly takes around two years for thorough healing of the villi after going gluten free in the mature adult population. Less time for children and young folks probably. Ferritin is about iron storage so it may take awhile for the stores to be built back up as opposed...
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MrsTurner, google "pernicious anemia". It is basically caused by an inability of the gut to assimilate B12, itself a necessary nutrient to the assimilation of iron. If you have this, you will not benefit from oral iron supplementation.
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Waiting for possible diagnosis
trents replied to Lisacnj3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Continue to eat a significant amount of gluten until all tests are complete or the testing may be invalid. -
By the way, aghasue, welcome to the forum!
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Celiac disease is not difficult to diagnose but you must be eating meaningful amounts of gluten prior to any kind of testing. Here is what the Mayo Clinic guidelines are: For the serum antibody tests: The daily consumption of gluten in the amount equivalent to at least 2 slices of wheat bread for 6-8 weeks leading up to the blood draw. For the endoscopy...
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Yes, it would seem the article left out the very important to the celiac community information of what grain or other carb source it is made from.
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I agree with Bob. I don't use alcoholic beverages of any kind anymore because they trigger migraines in me but several years ago I enjoyed Red Bridge and it seemed to really taste like beer.
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Celiac or Gluten Intolerance?
trents replied to Tyee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
NCGS (Non Celiac Gluten Sensitivity) is about 10x more common than celiac disease but it does not cause inflammation in the small bowel and should not produce elevated tTG-IGA or elevated tgg-igg. There is no test for NCGS. Celiac disease must first be ruled out. Celiac disease and NCGS share many of the same symptoms, however. NCGS is not an allergy. Although... -
Celiac or Gluten Intolerance?
trents replied to Tyee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Tyee! Please post back with reference ranges for your antibody test results, that is, what constitutes negative vs. positive. Reference ranges used by labs vary from place to place. There is not yet an industry standard. A "gluten allergy" would not produce positive celiac antibody values. Celiac disease is an autoimmune disorder... -
Blindsided and confused
trents replied to Shan-'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, both numbers do not need to be positive to indicate celiac disease. tTG-IGA is the centerpiece of celiac antibody testing but we frequently see it negative with other parallels tests such as IGG being positive. Especially in the pediatric population. Her number isn't really super high so I would hesitate to draw a definite conclusion without further testing... -
So that prompts the question in my mind if Dr. Fine would say NCGS is an autoimmune disease like celiac but one that attacks some other body system. Yes? No? Sometimes?
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A low total IGA simply means there is a greater chance that your tTG-IGA was skewed toward the negative range. I wouldn't go so far as to say it would tip the scale toward have celiac disease. You should have more answers in two weeks.
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Because the Diam iga is positive, you could be a celiac even though the tTG-IGA is negative, especially if the total serum IGA turns out to be low. Were you eating regular amounts of gluten (2 slices of wheat bread daily or the equivalent) for 6-8 weeks prior to the blood tests? Don't cut back on gluten until all testing is complete.