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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Glad to hear that! I assumed you had gotten sick from eating there on that occasion but looking back on your post you didn't actually say that.
  2. trents
    We're the croutons not visible? Trying to understand why you ate the tomato bisque.
  3. trents
    It is as I feared. Your doctor ran only the tTG-IGA and the total serum IGA tests instead of a more complete celiac diagnostic panel. I wish he/she had also run the Deamidated gliadin peptide (DGP IgA and IgG) and maybe even the IgA Endomysial antibody (EMA). Some celiacs have atypical immune system responses and are missed by the tTG-IGA. https://celiac...
  4. trents
    BushbabyLou, can you share with us exactly which serum antibody tests were run, their scores and their negative-positive reference ranges? Many doctors don't run a full celiac panel but only order the tTG-IGA. Some people with celiac disease will show negative in this test but positives in other blood tests that can be run for celiac disease. Histamine...
  5. trents
    The number of acetaminophen containing products containing gluten may be much longer list than you realize. It could be a daunting or impossible task to accomplish, especially since new products come out all the time. This is exacerbated by the fact, as the article indicates, companies can and do change their formulations over time. So, it's still on the...
  6. trents
    Thanks, Yvonne. Great info. Made me think of my wife's uncle who has developed this really strange gate and been tested for all the usual suspected causes without any answers.
  7. trents
    The other thing, Javid, is that you were only back on gluten for three weeks before the retest. The Mayo Clinic guidelines for a pretest gluten challenge are 6-8 weeks of daily consumption of two slices of wheat bread (or the equivalent) for 6-8 weeks before tests are done. You ask, "I think I might have Non Celiac Gluten Sensitivity but can NCGS have...
  8. trents
    Welcome to the forum, Karen65! The test names and numbers you provide are a little confusing. Was there a tTG-IGA done? Was there a total serum IGA test done? If not, they should have been. And you would also need to supply reference ranges with regard to what is negative vs. positive, since different labs use different reference ranges for the same...
  9. trents
    Sounds like a wise approach to me.
  10. trents
    Woodie, I was reacting to your critical spirit of what was an informative article. The very thing you criticized it for was actually clearly stated in the article itself: "Many people with Celiac disease and gluten intolerance have reported an allergic reaction to xanthan gum. Symptoms include bloating, gas, stomach cramps, diarrhea, skin rashes and...
  11. trents
    They would have to do that for essentially every ingredient. You can find someone who is allergic to or can't tolerate for almost any ingredient. I suggest if the gums bother you don't eat them but let those who tolerate them well enjoy them.
  12. trents
    But it is still true that many celiacs don't have a problem with these "gums" or all of them or some of them. So the article is accurate as it stands. Each of us who suffer from gluten-related disorders is going to be different and we all have a responsibility to sort other sensitivities/intolerances as individuals rather than assume one size fits all. I...
  13. trents
    "IgA Endomysial antibody (EMA): The EMA test has a specificity of almost 100%, making it the most specific test for celiac disease, although it is not as sensitive as the tTG-IgA test. About 5-10% of people with celiac disease do not have a positive EMA test. It is also very expensive in comparison to the tTG-IgA and requires the use of primate esophagus...
  14. trents
    High MCHC values can be caused by inflammatory processes that cause clumping of blood cells. From some of your spellings I gather you are in the UK. I don't know how much say you have there in what the doctor orders for tests but for celiac disease diagnosis but I would recommend a minimum of the tTG-IGa, total serum IGA and the Deamidated gliadin peptide...
  15. trents
    I think there may be some vegetarian sources of B12 that involve fermentation processes: Natural Vegan B12 Sources When it comes to vegan sources of vitamin B12, it’s widely agreed upon by medical and nutritional professionals that the most reliable are B12 fortified foods and supplements. While there are some natural plant sources of B12...
  16. trents
    The exact terminology is not what I'm used to but it probably has to do with checking for iron deficiency anemia. As I said earlier, celiac disease damages the small bowel villi (duodenum and duodenum bulb). This area of the intestinal track is where essentially all nutrition is absorbed. When the villi are damaged this causes impairment in nutrient absorption...
  17. trents
    M4RK, welcome to the forum! First of all, specifically, what was the name of the one positive test the physician spoke of? Do you have that information and can you post the result value along with the reference ranges for negative vs. positive? Different labs used different standards so the raw number without reference ranges is not helpful. Second...
  18. trents
    Yes, that is the etiology of pernicious anemia. One of our other mods corrected me on my own misunderstanding of pernicious anemia a while back when I posted incorrectly that it was caused by damaged villi. Actually, the parietal cells are found in the stomach. I was grateful for the correction as I don't want to be passing on misinformation.
  19. trents
    I certainly agree with Wheatwacked that the MDR for vitamins and minerals is adequate. The only vitamins you need to be careful with as far as overdosing are the fat soluble ones, like A, D and E. And even then, the RMD may be over conservative.
  20. trents
    Most likely cause for continued DH and other celiac symptoms is getting gluten from some unexpected source. So, yes. Double down on your efforts to find and eliminate that possibility. Having said that, there are some people who jus don't respond to the gluten-free lifestyle. It's called refractory celiac disease but it is rare.
  21. trents
    Sunlight on the skin produces D naturally so the right light box could imitate that effect. But it would need to be a light box that produced the right spectrum and it would have to be super bright. Taking a D3 supplement is probably cheaper and more convenient.
  22. trents
    Wheatwacked, I'm not sure at all that pernicious anemia and anemia of chronic disease are the same thing. If you look at the outline presented in the article from your first link the two are separate numbers on the outline and when I google that question I do not find they are equivocated. However, both seem to have a common component in their genesis and...
  23. trents
    Welcome to the forum mMkay24! You say that your gliadin peptide IGA was strongly positive but then you say, "I am also curious if this is positive." Those two statements seem at odds with one another. What exactly are you asking about as being positive? Can you please post the whole of the test results, along with reference ranges?
  24. trents
    Unless the gastro doc doing the biopsies took several samples from both the duodenum and the duodenum bulb, damage to the villi could have been missed. We get reports on the forum all the time of biopsies that were less than thorough in this sense. Frankly, even many GI docs are not that knowledgeable about celiac disease. But your labs and your symptoms...
  25. trents
    Yes, it is certainly possible to have celiac disease without significant gastrointestinal issues, at least until the disease gets pretty advanced and there is significant damage to the villi. We call that "silent celiac disease" and it is not uncommon. But the pain in your gut when you consume wheat products is certainly a classic symptom of celiac disease...
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