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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Have you considered NCGS (Non Celiac Gluten Sensitivity)? It shares many of the same symptoms with celaic disease but does not damage the small bowel villi, so there are not antibodies produced to detect. It is 10-12x more common than celiac disease. The antidote is the same, avoidance of all gluten. Some experts consider it to be a precursor to celiac disease...
  2. trents
    Had you already started eating gluten free prior to the antibody test?
  3. trents
    Heather, welcome to the forum! We can't answer your question without reference ranges for what is negative vs. positive. There are no industry standards for these parameters so every lab uses different reference ranges. Do you have that info?
  4. trents
    The Mayo Clinic recommendation for a pretest gluten challenge is two slices of wheat bread (or the equivalent) daily for 6-8 weeks leading up to the day of antibody testing. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity). It shares many of the same symptoms with celiac disease but does not damage the small bowel villi and so,...
  5. trents
    Welcome to the forum, FiveApples! You said: "I got the reflux under control myself after a couple of months (reduced coffee, dairy, gluten), then started doing at home tests to try and figure out the root issue. " By reducing your gluten intake before you did the antibody testing you likely sabotaged the results. Also, when you post antibody test...
  6. trents
    How many calories per day are you taking in? Realize that when we cut out gluten we typically eliminate a major source of calories in our diet. Have you been checked for SIBO and H. Pylori? Pain under the ribs might be gallbladder issues?
  7. trents
    Ferritin is a storage protein I believe. Hemoglobin numbers speak to the "now" amount of iron in the blood where as ferritin numbers address the amount in reserve. There is a type of anemia called "pernicious anemia" that is caused by the inability of the gut to assimilate B12, a B vitamin necessary in the formation of hemoglobin.
  8. trents
    But you could have expressed your gripe about the article including a political slant without adding in your personal experience as a political victim. It added nothing to the point you were making IMO. It came across to me as you using it as an opportunity to vent about your own experience as believing you were a victim of partisan politics.
  9. trents
    About 18% of celiacs have elevated liver enzymes. That was what eventually led to my celiac diagnosis. Certainly your diarrhea is a classic symptom and dairy intolerance is common among celiacs because of damage to the small bowel villi that line the duodenum. Can you describe he appearance of your hives? There is a skin disorder called dermatitis herpetiformis...
  10. trents
    Well, it's sort of a chicken or the egg question. But we can say that those with celiac disease are more likely to have or to develop other autoimmune diseases than is the general population.
  11. trents
    Bob, judging from the little bit of information you supply about your experience, I'm probably on your side of the ideological street, for the most part, but I hope you realize you just criticized this article for being political by using a politically charged argument yourself.
  12. trents
    How true. And it shows up in food you would never expect to find it. Like canned tomato soup and soy sauce.
  13. trents
    Mayon Mayo clinic recommendations are two slices of wheat bread or the equivalent daily for 6-8 weeks leading up to the antibody testing. Not sure that two crackers will suffice.
  14. trents
    But condoms have never been made from animal products, at least not in modern times. I guess I just don't see a legitimate marketing angle there.
  15. trents
    Welcome to the forum, Ann! Your desire to use the contacts you have with other professionals in your field is a blessing to the celiac community. We are always fighting an uphill battle it seems with regard to awareness and by and large, the medical community has not been much help. So tapping into the resources of the educational sector would be a great...
  16. trents
    Welcome aboard LCAnacortes! Thanks for all you kind words.
  17. trents
    But a week of gluten free eating is probably not going to be long enough to tell much. And so many of OP's symptoms point to a gluten disorder. Since you got to start somewhere in your testing, it just seems smart to go with something that is easily testable and matches so many of her symptoms. And like OP said, it is concerning that the physician would reference...
  18. trents
    Unfortunately, there still is an appalling lack of awareness in the medical community concerning gluten-related diseases. It's slowly getting better, however. Sometimes you have go to appointments armed with information, being prepared to be appropriately assertive and take them by the hand.
  19. trents
    I mean really, is this product necessary? Are there really condoms that do contain gluten? Sounds more like a marketing scheme playing upon peoples' anxiety about their health. This strikes me as the same approach when I go to the supermarket and see a gallon of milk labeled "Gluten Free".
  20. trents
    Two things: 1. Get a different doctor who will listen to you. There is also the option of purchasing a home test for celiac disease for about $100. Imaware is one company that sells these. 2. Don't try to go gluten free until all testing is complete. You will invalidate the testing if you do. The tests will throw negatives for celiac disease and...
  21. trents
    Welcome to the forum m and m14! Yes, it feels overwhelming at first. We've all been there and done that! There is a significant learning curve in arriving at a truly gluten-free lifestyle. Learning how the food industry hides gluten through terminology is part of it. Learning where gluten is included in places you would never expect like Campbell's tomato...
  22. trents
    Welcome to the forum, DanilClent! The Mayo Clinic guidelines for a pretest gluten challenge are as follows: For the serum antibody test: Daily consumption of two slices of wheat bread (or the equivalent) for 6-8 weeks leading up to the day of testing. For the endoscopy/biopsy: Same amount of gluten as for the serum antibody test but for only...
  23. trents
    Colonoscopy? Are you having an endoscopy (upper GI) or a colonoscopy or both? A colonoscopy is not used to diagnose celiac disease. The part of the intestinal track affected by celiac disease is the part right below the stomach (duodenum). A colonoscopy can't reach that far.
  24. trents
    Depending on several things like the resolution of the scope used, the extent of damage to the small bowel villi, and the experience level of the physician doing the scope, you may have a tentative answer right after the scoping. Otherwise, the results await the microscopic evaluation of the biopsy by a lab. I hope the GI doc takes several samples from different...
  25. trents
    Welcome to the forum, Lilly! You need to know that if you attempt to eliminate gluten before being tested you will invalidate the tests. The serum tests you are looking at are designed to detect the antibodies produced in response to the inflammation that gluten causes in the small bowel lining (the "villi"). If you eliminate or even significantly cut...
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