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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There are only a few things that can cause villi blunting in the duodenum, celiac disease being the most common: Have you been tested for H. Pylori and for SIBO? These additional maladies are not uncommon among the celiac population. How are your liver enzymes (ALT, AST, Bilirubin)?
  2. trents
    I see nothing in the original statement from the article, which you quote, which contradicts your alteration. The author never states they don't contain gluten at all, therefore allowing for exactly what you stated. Please read these articles more carefully before you start calling people liars. If anything, your beef should not be with Jefferson Adams but...
  3. trents
    Welcome to the forum, Marina! It is possible you were misdiagnosed but it is also possible you have something else going on in addition to celiac disease. But first things first. Can you share more information about how you were diagnosed with celiac disease? What tests were run and do you have the test numbers? I am assuming you had blood antibody testing...
  4. trents
    The problem with your suggestion, Doug, is that not two people will agree on which are good and which are not. In my experience in recommending gluten-free sliced bread for people just starting on the gluten-free journey, what I think is the best, they hate. And what they find they like, I don't. It such an individual thing. But if you want my input...
  5. trents
    Do you know exactly what antibody tests were run on our son? Children's immune systems are immature and frequently don't respond the same way as an adult's would. We see a lot of this on the forum. Many physicians will only run the tTG-IGA instead of a full celiac panel. Do you have access to more information about what tests were run? https://celiac...
  6. trents
    Your argument is one based on logical extremes. That often is not valid.
  7. trents
    It should not be too difficult to compensate for the nutrition found in wheat products. Almost 95 percent of the white flour in the United States is enriched with iron and four of the B vitamins: thiamin, niacin, riboflavin and folic acid. By contrast, fortified flour may contain folic acid in amounts that exceed those present in whole-wheat flour. Calcium...
  8. trents
    Exactly! All these people reporting being "glutened" may be either super sensitive or reacting to some other ingredient besides gluten. But for them to say things like, "Don't eat this pizza unless you want to get poisoned" is way overdone.
  9. trents
    There are home test kits available from different companies to test for celiac IGA anitbodies: https://www.imaware.health/at-home-blood-test/celiac-disease-monitoring I believe there are other companies besides Imaware that offer these. But again for the tests to be valid you must be eating significant amounts of gluten daily for a couple of months before...
  10. trents
    Not actually true. The only gluten containing grains are wheat, barley and rye. Gluten is a very specific protein found only in those three grains. Informally, you will hear of "corn gluten" but it is a misnomer. Having said that, it is no secret that many celiacs have additional food intolerances not related to gluten that generate very similar reactions...
  11. trents
    Looks like you have celiac disease to me. Your results in the IGA antibody tests, which are the most important, are unequivocal. It is likely that your GI doc may want to order an endoscopy with biopsy so don't cut down on gluten yet or you will sabotage any additional testing. The endoscopy with biopsy is considered the gold standard diagnostic test...
  12. trents
    Are you on prenatal vitamins? Celiac disease typically creates vitamin and mineral deficiencies because of the damage done to the lining ("villi") of the small bowel where all nutrition is absorbed. I wold certainly make sure you are on a folate supplement to guard against neural tube defects in the womb as your baby develops. And as others have said, B vitamins...
  13. trents
    I think that is everything.
  14. trents
    Welcome to the forum, Sam! First, some who actually do have celiac disease don't produce tTG-IGA antibodies. We get this effect not infrequently from forum participants. That's the value of getting a "full celiac panel" done and not just the tTG-IGA. A full celiac panel would include a total IGA count. If total IGA is low then it will suppress the tTG...
  15. trents
    A little dated but nonetheless, a good find, Russ! I also note that four of the people in the test group who did have celiac disease did not have elevated tTG-IGA values. That agrees with the experience some of our forum participants of late and reinforces the value of getting a full celiac panel run rather than just the tTG-IGA.
  16. trents
    My reactions to getting glutened happen within 2-3 hours of consuming it. Hours of intense gut cramps, intractable vomiting followed by a few hours of diarrhea. I have celiac disease, not NCGS.
  17. trents
    Vonnie, the way this was presented was confusing to me. "screened 4,24,788 newborn infants" There's a digit missing there somewhere between the first and second commas I believe. "HLA" One or both genes that have been identified with celiac disease potential? "While the rsults of these three studies suggest that one extra clice of bread (about...
  18. trents
    Kyle, you need to read this. Going truly gluten-free is not as easy as most people think when they start the journey:
  19. trents
    Glad to hear you are picking up on the vitamin/mineral supplementation. All of the nutrients from the food we eat is absorbed in the same area of the intestinal track that is damaged by celiac disease. So, development of nutritional deficiencies over time is part of celiac disease and is responsible for many of the symptoms associated with it. NCGS also seems...
  20. trents
    Plenty of people have this pattern. Leading up to the blood draw, had you already begun cutting back on your gluten consumption? Is the tTG-IGA the only test your physician ordered? If he/she had run a "full celiac panel" you might have a more complete picture. The tTG-IGA is considered the best single test for celiac disease in that it combines good specificity...
  21. trents
    You already know that gluten is bad for you because when you stop eating it you get better. The only thing you don't know is whether you have celiac disease or NCGS. But the antidote is the same. Total abstinence from gluten for life. What would change if you tortured yourself by going back on gluten to get tested? The only difference would be that your wallet...
  22. trents
    Good decision. It is nearly impossible to avoid getting "glutened" unless the whole household goes gluten free.
  23. trents
    If it doesn't break down the gluten protein then why would it benefit NCGS people?
  24. trents
    There us currently a study being done on the effectiveness of GliaddinX's main active ingredient: https://clinicaltrials.gov/ct2/show/NCT04788797 . The study was put on the back burner due to the COVID overload of the healthcare system but is due to be complete in December of 2022. docaz is the inventor of the product, a sponsor of this forum and an...
  25. trents
    The most common test run for detecting celiac disease is the tTG-IGA (stands for Tissue Transglutimase Immuno Globlulin Antibody or something similar. There are others that can be run but that is considered the centerpiece. Can you just look at your test results, either hard copy or online, and post them?
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