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trents

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Everything posted by trents

  1. trents
    MerryA, welcome to the forum! Recent studies have demonstrated that most people who claim to be eating gluten-free are actually eating lower gluten. They are unaware that they are getting gluten contamination from various sources even though they are (somewhat) conscious of trying to avoid gluten. The studies show that the number one source of this gluten...
  2. trents
    There is a difference between the label "Gluten Free" and the label "Certified Gluten Free". You can be sure the latter has been tested and it has been tested to confirm that it complies with the Certified Gluten Free standard of 10ppm or less of gluten which is stricter than the FDA standard of 20ppm. 20ppm is not good enough for some of the more sensitive...
  3. trents
    Developing a truly gluten-free lifestyle is not as easy as many people think because of cross contamination issues (CC) and the multitude of ways gluten is hidden in the process food supply. This might help: You also would do well to get some good gluten-free vitamins and supplements. Celiac disease generally results in nutrient deficiencies...
  4. trents
    Walter, are you taking any vitamin and mineral supplements? Have you been checked for anemia?
  5. trents
    Your numbers are unequivocal for celiac disease. I see no reason for you to have an endoscopy/biopsy. But you do need to concentrate or cleaning up any remaining cross contamination sources of gluten and identifying any other food intolerance crossovers you may have.
  6. trents
    jeriM, the numbers look high enough to be pretty conclusive for celiac disease but without the reference ranges for what the lab used as negative vs. positive, we can't say for certain. Labs used different reference ranges so can you post those as well?
  7. trents
    https://www.lupus.org/resources/about-drug-induced-lupus
  8. trents
    Yes, kissing can get you glutened. I wouldn't throw away your cookware. I would scrub it real good though, especially wooden and cast iron stuff. Only the very most sensitive celiacs have to worry about throwing cookery away. Wait and see how you react using what you have. I think you aren't really that close yet in eliminating other sources of CC besides...
  9. trents
    I do not know the answer to that. It might depend on how fresh the breakout is. Can you describe the rash for us? DH has little blisters in the rash.
  10. trents
    Reaction to oats can be caused by the oat protein itself, not an CC with gluten.
  11. trents
    Wheatwacked, are you advocating the diet in Table1? I do not believe avoiding fats is a good idea. Fat soluble nutrients require fats.
  12. trents
    There's really no point in that as the B-vitamins are water soluble and there's rally no risk of overload toxicity. You just pee out any extra not used. We now know that large oral doses of B12 accomplish the same things as injections. To prescribe B12 injections for pernicious anemia tells me the doctor is operating from an outdated knowledge base.
  13. trents
    Anne, Costco's Nature Made brand of supplements will state that a product is gluten free if it is. And most of their Nature Made products at Costco are gluten free.
  14. trents
    Yes, it could be. If they don't specify the source of the starch (wheat? corn? potato?) I would not trust it. Contact the manufacturer to get a definitive answer. Even then, their formulation can change over time. In the U.S. most "modified food starch" is made from corn. I'm thinking that more recent FDA regulations required the source to be specified by...
  15. trents
    Dermatitis Herpetiformis (DH) is definitive for celiac disease. There is no other known cause for it. So if driftwood7 has DH then there is no question that celiac disease, not NCGS, is the culprit behind the symptoms. So, another Dx rout would be to have the rash biopsied for DH.
  16. trents
    Have you checked to make sure your vitamins and supplements are gluten free? Wheat starch is sometimes used in pills as a filler.
  17. trents
    You have discovered, as many of us have, that once you get off gluten, the symptoms are worse if you go back on. We lose whatever tolerance to it we had. Do you need an official diagnosis for some reason? Seems to me your experience tells you what you need to know.
  18. trents
    Beware that if you go gluten-free for six months and then go back on it for testing, your symptoms will likely be more intense. We tend to lose whatever tolerance to gluten we once had if we go off it for any length of time.
  19. trents
    Yes, your GP can order a celiac antibody blood test but he/she seems to have deferred to a GI. But you must have been eating 2 slices of wheat bread (or the equivalent) daily for 6-8 weeks prestest for it to be valid. Ask him to order the tTG-IGA, the total serum IGA and Deamidated gliadin peptide (DGP IgA and IgG). https://celiac.org/about-celiac-disease...
  20. trents
    Unfortunately, most general practitioners are pretty ignorant about celiac disease and testing for it. We often here the story from forum participants that their doctor did not give them proper information for a pretest gluten challenge and many patients drop gluten to alleviate their symptoms before they get tested. Then the tests come back negative and...
  21. trents
    Gluten allergy? Do you mean celiac disease? Celiac disease is not an allergy. It is an autoimmune disorder in which inflammation in the lining of the small bowel is triggered by the ingestion of gluten. The inflammation damages the villi that line the small bowel and also produces antibodies which can be detected by a blood test. Actually, there are several...
  22. trents
    Anne Jorey, This might be helpful to you: Oats (even gluten free oats), dairy and eggs are some other foods that commonly give celiacs problems so you might look at those with regard to your symptoms if they continue.
  23. trents
    Welcome to the forum, Anne Jory! I have not heard that the vaccine triggers celiac disease but I think there is still a lot we don't know about the effects of the vaccine long term. I believe we do know that people who have celiac disease are more susceptible to contracting COVID and we also know that those with the genetic potential for celiac...
  24. trents
    Seems like you have all the evidence you need to make a connection between the two. Your daughter may also have NCGS for which there is no test yet.
  25. trents
    I think it would not have much affect on the endoscopy/biopsy results if you would take a day or two off each week until the test. But do you absolutely need the additional confirmation when your antibody tests were both positive?
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