Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,403

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Grandma Mary! Every food known to humanity has been implicated in some kind of dietary danger. The key is to experiment and find out what YOU need to avoid. What makes problems for YOU. If you take all of that stuff too seriously you will starve to death.
  2. trents
    Welcome to the forum, Arseling! Avoid eating out like the plague. This also may be helpful: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/
  3. trents
    The main thing is to focus on buying fresh meat, fresh vegetables and fresh fruit when available. Avoid seasonings apart from salt and black pepper as some seasonings are cross contaminated with gluten in production processes. Cook your own meals. Avoid eating out like the plague. Fix simple things that don't have coatings or crusts. Do you share a house...
  4. trents
    Costco's Nature Made line is an excellent choice. Many or most of their products are gluten free and will clearly state so on the bottle.
  5. trents
    Welcome to the forum, versace114. Carti? You don't have to rely on processed "gluten free" food in order to avoid gluten. It is not that difficult to avoid gluten while resorting to main stream food if you are careful. Much ordinary food is naturally gluten free such that you only need to be concerned with cross contamination.
  6. trents
    Have you had genetic testing done?
  7. trents
    It is confusing when you say you have no immune system, yet celiac disease is an autoimmune disorder. So, at least some facets of your immune system are still present.
  8. trents
    Jesschica, may we assume you are experiencing these ongoing problems even though you are practicing a strict gluten free diet?
  9. trents
    It is recommended that when the scoping is done, the physician take several samples from both the duodenum and the duodenum bulb. Many will not be this thorough. But it's something maybe you should consider asking beforehand. Maybe a patter like this would be appropriate: "I've done some research on biopsy for celiac disease and I understand the villi damage...
  10. trents
    No, it would not necessarily mean that she does not have celiac disease. We do see this pattern sometimes with children who actually have celiac disease. And it does not mean that down the road she will not develop damage to the villi lining the small bowel if gluten is not withdrawn. It is possible she has NCGS (Non Celiac Gluten Sensitivity) but with the...
  11. trents
    Yes it is. We see this occasionally and mostly with children. Their bodies are so resilient and their immune systems are not fully developed so the immune responses are not always typical.
  12. trents
    The Mayo Clinic guidelines for the pretest gluten challenge is: 1. Celiac serum antibody testing: daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading up to the test 2. Endoscopy with biopsy testing: same amount as in 1. but necessary for only two weeks leading up to the test By all means,...
  13. trents
    Some of those labs are marginally out of range. It is common for celiacs to experience anemia. So, some run of the mill bloodwork as you have done can indirectly reflect active celiac disease. If you want an official diagnosis then you need to ask for testing that is specifically designed to detect celiac disease. You may need to get appropriately assertive...
  14. trents
    "The proof is in the pudding", as we like to say in the USA. When you go off gluten you feel better and your symptoms improve. What more proof do you need? It seems obvious to me you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Do you know specifically what tests were run to detect celiac disease? Do you have access to the results...
  15. trents
    Since you are not able to provide reference ranges for the TTG-IGA I cannot say for sure that your test results are "mild". But let me just say we sometimes see those numbers in the hundreds. But no, it does not mean you can be more relaxed than others in your commitment to avoid gluten if, in fact, further testing confirms these initial results. The "mild...
  16. trents
    You had two tests run: 1. TTG-IGA 2. IGA endomysial AB #2 was negative so I am assuming, #1 (the TTG-IGA) was positive, though not specifically stated. The TTG-IGA antibody test is the most common test run for celiac disease as it combines good specificity with good sensitivity. The IGA endomysial AB is even more specific for celiac...
  17. trents
    Welcome to the forum, Becky! We need a reference range for the TTG-IGA to determine whether 29.1u/ml is a positive or a negative. There is not an industry standard for reference ranges among laboratories so we need to know what that particular lab used for a reference range on that test.
  18. trents
    It is hard! Especially at first. It takes a while to learn the ropes of living truly gluten free. You will make mistakes. But learn from them. Took my wife and I about two years to get a firm grasp on how and where gluten is hidden in the food supply and through cross contamination, especially when you eat out. But now, it's like we have this sixth sense...
  19. trents
    Do you intend to keep punishing your body by this experimentation? Whether you have celiac disease or NCGS you are risking harm by not committing to a totally gluten free lifestyle.
  20. trents
    I think we've pretty much covered all the options. Now you have to decide which direction to go.
  21. trents
    Welcome to the forum, by the way! Wish we could help you more but we just don't have enough information. The first think I would ask for would be a hard copy of the lab report. I have a feeling there was more testing done than what you have been able to share with us. Either that, or the physician was uninformed/incompetent with regard to diagnosing...
  22. trents
    LGA? Did you mean to type IGA? And can you please post the reference ranges with your particular numbers? Your numbers don't help us much if we don't have anything to compare them to with regard to what is positive/negative. Different labs used different reference ranges. There is no industry standard. Were any tests run besides IGG and LGA (IGA?)? It...
  23. trents
    But how different would it be if you just assumed you have celiac disease and refused your neighbor's offer of beer and soda bread? Would you refuse their offer if you did know by testing that you had celiac disease? For the sake of your own health, I hope you would. And if you have NCGS that doesn't necessarily mean you would escape the long term health...
  24. trents
    Welcome to the forum, Michelle! Do you know which test or test the doctor ran recently? Do you have access to the results and can you post them along with reference ranges? Unfortunately, many doctors will run only the tTG-IGA test instead of a fuller celiac panel consisting of other antibody tests. Had you been eating good amounts of gluten regularly...
  25. trents
    Welcome to the forum, Dixzechic! Love your user name! Very creative. Sugar alcohols and me don't get along either. Mostly they just give me the toots as far as I can tell. Intolerance to sugar alcohols is not uncommon.
×
×
  • Create New...