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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    With NCGS, cross contamination can be less of a factor but not necessarily. Individuals vary greatly in their sensitivity. It's certainly not something to bank on and I would always say it is better to be safe than sorry, even with NCGS.
  2. trents
    Don't forget the possibility of NCGS for which there are no tests. Celiac disease must first be ruled out to conclude NCGS when the symptoms are common to both.
  3. trents
    But keep in mind that any kind of testing, whether it be serum antibody testing or an endoscopy with biopsy, would require your daughter to have been eating regular amounts of gluten for weeks (6-8 weeks for the antibody test and 2 weeks for the biopsy) in order to yield valid results. So, if she is eating gluten free she would need to go back to eating gluten...
  4. trents
    By the way, the Imaware celiac home test kit does not require a blood draw, just a finger prick.
  5. trents
    Yes, it is all very intimidating at first because it demands a radical change to eating and social patterns. Eventually, it becomes the new norm. Over time you learn workarounds. Things like taking your own food to social events, focusing on being the host instead of the hosted, helping family and friends understand how they can (when necessary) cook a safe...
  6. trents
    Learning to eat truly gluten free involves much more of an education curve than most people realize. It not only entails eliminating major sources of gluten such as bread and pasta but hidden sources that you never expect. Almost all canned soups use wheat starch as a thickener. Did you realize the Campbells tomato soup has wheat in it? Did you ever think...
  7. trents
    COVID is a viral infection, not an autoimmune disease. Autoimmune diseases are ones in which the body begins to attack its own tissues. However, viral infections can trigger autoimmune disease genes that have been in a latent state to become active.
  8. trents
    Can you also include the reference range for the tTG? What is normal range with that lab? There are no industry standards at this point so each lab uses a different reference range. Just from experience, however, in the sense of seeing many of these tTG scores posted by forum participants, I would feel pretty confident that it is a strong positive for...
  9. trents
    You might want to bump your D3 up from 2000IU to 4000IU. 2000IU isn't much and the MDR of most vitamins is really suboptimal. Wheatwacked will back me up on this.
  10. trents
    With a tTG-IGA score of 250u/ml, IMO, you certainly do not need to pursue a biopsy. Especially since you are already seeing improvement after beginning the gluten-free diet. And if you are not willing to go back on gluten for further testing, that answers your own question since getting tested after going gluten free will invalidate any kind of testing anyway...
  11. trents
    As Wheatwacked indicated, make sure you get plenty of folate as lack of it can result in neuro tube defects in the baby. My wife and I actually had this happen with one of her pregnancies and my daughter in law did as well. What supplements are you currently taking? B12 and the entire B-vitamin group should be in your supplement routine as well as D...
  12. trents
    avenue? Actually, it is "avenin".
  13. trents
  14. trents
    Also, it generally takes around two years for complete healing of the villi once going gluten free. If you are experiencing consistent cross-contamination then it keeps the fires smoldering. What about pills and supplements? Have you checked all those pills to make sure none of them contain wheat starch as a filler?
  15. trents
    The problem with oats is not necessarily cross contamination with wheat. For some celiacs, it is the oat protein avenin which closely resembles gluten. As far as dairy goes, everyone assumes the issue is lactose intolerance. And it often is. But for some celiacs, the dairy protein casein is the problem as it can mimic the effect of gluten and can damage...
  16. trents
    Make sure the chia seeds are gluten free. There can be significant cross contamination in products like this and much of it comes from countries where it may be difficult to confirm whether or not they are gluten free. But they are an excellent source of fiber and are very filling. They are a favorite with those on ketogenic diets.
  17. trents
    Are you still consuming oats (even gluten free oats)? Are you still consuming dairy? Are you still consuming processed meats (things that use "meat glue")?
  18. trents
    HaleyR, it would be ideal if you were to actually get tested for celiac disease. There are antibodies that can be looked or for after a blood draw that indicated celiac disease if positive. Thing is though, you would need to go back on regular amounts of gluten for 6-8 weeks for the testing to be valid. Sounds like you are not digesting fat properly thus...
  19. trents
    One of the questions that comes up from time to time on this forum is the prevalence of celiac disease among various racial groups. As it turns out, the question is complicated by differing responses to antibody testing between racial groups. This study done by the University of Alabama Birmingham sheds some light on that with regard to the differential results...
  20. trents
    Welcome to the forum, debbrewer58! Deb, almost missed the actual text of your post. There is a huge gap of blank at the beginning and I had to scroll way down to see what you actually posted. Can you repost your entire celiac lab values including reference ranges for negative vs. positive. Different labs used different reference ranges so the test...
  21. trents
    There are also home celiac test kits available from companies like imaware for around $100.
  22. trents
    Sure, you can trial a gluten free diet first. But if she eats gluten free for a significant time and then goes back on gluten for testing then you may find she has more intense reactions to it as we typically lose all tolerance of gluten if it has been withdrawn for a significant period of time. The Mayo Clinic guidelines for the pretest gluten challenge...
  23. trents
    Celiac disease does have genetic base to it and so does run in families. Most research has pinned the likelihood of developing celiac disease by first degree relatives of someone who is a celiac at about 10%. However, one recent large study done by the Mayo Clinic with over 300 people found that 44% of first degree relatives of people with celiac disease...
  24. trents
    Googling can sometimes give helpful gluten info about products. Something like, "Is xxxxx gluten free?" Many foods, medicines and personal hygiene products have actually been tested by celiac groups. I find the best way is to contact the manufacturer and just ask them. Often you will get answers like, "We don't intentionally add gluten to the product but...
  25. trents
    As you probably know by now, there is a statistically higher incidence of Hashimotos in the celiac population than in the general population. Autoimmune diseases tend to cluster. Make sure all your meds and supplements are gluten-free. Sometimes wheat starch is used as a filler in pills.
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