trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Welcome to the forum, sunflowers! We here many stories on this forum that mirror yours. That is to say, only one test in the celiac panel turns out positive. But that's why they run the multiple tests that make up the panel and not just one or the other. I do believe you have celiac disease based on the symptoms and the testing. We also get people who... -
Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
I'm not sure you understood what I shared in the previous post. If you are being tested for celiac disease you must not quit eating gluten until all tests are over. And if your doctor okayed that he or she doesn't know what they are talking about. The Mayo Clinic guidelines for a pretest gluten challenge are the daily consumption of two slices of... -
Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Do you think it might be time to get tested for celiac disease? You would need to be eating regular amounts of gluten (two slices of wheat bread or the equivalent) daily for 6-8 weeks leading up to the test. -
It could still be an allergic reaction to dairy due to the protein "casein".
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Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
What blood tests were run exactly? Was this just a run of the mill CBC and CMP or were specific tests designed to detect celiac disease run? -
Allergies can develop at any time. It might be a good idea to keep a food diary to see if there are patterns.
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Lactose is the sugar component in dairy. Allergic reactions are caused by proteins.
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I would look for some ingredient common to both those eating experiences? Was egg used in the cucumber dip?
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As you probably know, autoimmune diseases tend to cluster. It is often the case that when you get one, eventually there are others that develop. All this is related to an immune system that is in some ways dysfunctional, hypervigilant. Have you been checked for Hashimoto's?
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I would definitely ask for some more thorough GI workup. One of the mistakes I fear the gluten sensitive/celiac community makes too often is assuming every physical problem they experience is related to their gluten disorder. And have you had a CBC and CMP done lately? May I ask what age group you are in?
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Have you had both an upper GI and a lower GI to check for other problems not necessarily related to gluten? Like Crohn's or ulcers? You mention feeling all alone. Do you have support in other dimensions of life such as family, friends, church, work place? Have you investigated Gluten Sensitive/Celiac Disease support groups that may be in your area?
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Also, have you looked at oats (even gluten-free oats) and dairy as possible co-conspirators? Many celiacs cannot tolerate dairy and some react to oat protein (avenin) the same way as they do gluten. And have you looked into "meat glue" as an issue for some celiacs?
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Just diagnosed
trents replied to Lisacnj3's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jeanne, protocols for diagnosing celiac disease are changing. There is a shift toward using only serum antibody testing alone, when the values are strongly positive, to warrant a diagnosis of celiac disease. It is common in the UK to declare a diagnosis of celiac disease if tTG-IGA levels are 10x normal levels. In addition, there are other antibody tests... -
Welcome to the forum, keepswimmin! First, it is normal to experience more severe reaction to gluten after being gluten free for a significant period of time. We lose whatever tolerance we may have had for it when we were consuming it regularly. Second, do you have a record or do you know what tests were actually run when you were tested for celiac...
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That would be such a small amount of gluten I would not think it would elicit a celiac reaction in the vast majority of celiacs. And even then, only that part of it on the surface which is exposed to saliva. I do not think it is an issue. I would be more worried about the polish they used during cleaning.
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Jim C, for people in your age group to develop celiac disease is not uncommon at all. We see this over and over on the forum and that was true before COVID. The incidence of celiac disease in your age group has not changed but what has changed is that there is more awareness of celiac disease in general in the medical community such that more people of all...
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Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Celiac disease just isn't on the radar of most primary care physicians. The information they have about it from medical school is often very dated. They may still be operating on the old statistic that the incidence of celiac disease in the population is 1 in 5000. And since diagnostic process is statistically based, they look for everything else but celiac...- 173 comments
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Testing for comorbid auto-immune disorders?
trents replied to bostonceliacer's topic in Related Issues & Disorders
Celiac disease is seldom an isolated immune disease. It represents dysfunction in the immune system that tends to broaden over time. Having said that, you may also be experiencing vitamin and mineral deficiencies. Have you been checked for anemia? Have you had a CBC and a CMP lately? What age group are you in? -
As Cristiana mentioned, the Mayo Clinic guidelines for a pretest gluten challenge for serum antibody testing are the daily consumption of two slices of wheat bread daily (or the gluten equivalent) for 6-8 weeks leading up to the test. If you are going for an endoscopy with biopsy then the same amount of gluten for at least two weeks leading up to the procedure...
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Perhaps you just have less melanin in the skin of your face than you do elsewhere.
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Nisha, when you had the testing done, had you been trying to eat gluten free? As Christiana explained, going gluten free before celiac testing will invalidate the tests and may result in negative test values even if you do have celiac disease. I also would like to know exactly what tests were administered. Celiac disease diagnosis requires very specific tests...
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There is no way around going back on gluten in order for the tests to be valid. Do you need an official diagnosis for some reason? If avoiding gluten relieves your symptoms then that is the important thing.
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Son being tested positive IgA EMA
trents replied to MamaC13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, MamaC13. The damage to the small bowel villi creates inefficient absorption of nutrients and will cause stunted growth in children. Once your son gets on a gluten free regimen he should start to catch up. But I would recommend some good gluten-free vitamin and mineral supplements as well. -
Not Your Typical Celiac?
trents replied to Susan MacGlashan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Susan. My celiac journey began with a quest to find out why my liver enzymes were mildly elevated. I went for seven years without any GP checking me for celiac disease. Finally, I went to a GI doc and he checked me for celiac disease via serum antibody tests and biopsy, which were positive. About 18% of people with celiac disease... -
Welcome to the forum, Meghan255! IBS is more common in the celiac population than in the general population. So, it's a possibility. There's also the possibility that you have developed additional food intolerances and it can be almost almost anything, though the most common are dairy and oats (even glute free oats). Have you checked all the...
