Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,411

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    charliethecowboy, I reread your thread title and your post and want to apologize for seeming to be insensitive to your eating disorder. Somehow I read that factoid and it just didn't register. I know the eating disorder must complicate the whole problem. What stood out to me at first reading was the statement you made about being a picky eater. I hope you...
  2. trents
    Her being a marine probably predisposes her to see all of people's problems being solved by an act of the will and pulling yourself up by your bootstraps, excuse the pun. We have all been through/going through, even after years of having a celiac disease diagnosis, what you are going through. There are no easy solutions to the social challenges that...
  3. trents
    The number I have seen tossed around on this forum many times, and I have repeated it many times, is 44%. But maybe that is wrong. I used to hear 10% as well.
  4. trents
    I disagree. This may be true for you and for some others, maybe many others, but it's not a universal sentiment. Sure, when I smell fresh bread baking or pancakes on the griddle I long to eat them but that's not to say that all gluten free bread products are terrible. The availability of gluten free bread products that are a reasonable facsimile of their...
  5. trents
    Feeling cold all the time can be a symptom of anemia which is a common condition associated with celiac disease. Have you had your hemoglobin, hematocrit and ferritin levels checked?
  6. trents
    Oops! I misread your post Reneeblack. So you are the one with celiac disease and not your daughter and she is telling you to stop being celiac. When I read it the first time I understood it to say she was the one with celiac disease but in denial. Does your daughter live in the same house with you? Can you tell us more about how this plays out in your...
  7. trents
    She is an adult and you must respect her right to maker her own decisions, good or bad, and to live with the consequences. Hopefully, the consequences will drive her to face up to the reality of her celiac condition before too much harm is done to her body. What you don't want to do is to nag her about it and drive a wedge into the relationship. Our adult...
  8. trents
    Like cristiana said, I am not aware of gluten-related medical conditions causing blood clotting so that may be a separate issue. I have a genetic clotting disorder called Factor 5 Leiden. It causes my blood to clot too easily. I discovered it several years ago when I wound up in the ER with bilateral pulmonary emboli. Now I'm on blood thinners for life. Anyway...
  9. trents
    I know this isn't directly addressing your questions but how are your infant's liver enzymes? About 20% of adult celiacs experience liver inflammation. That was me and what led to my celiac diagnosis when there were no other explanations for mildly elevated liver enzymes. When I went gluten free, the liver enzymes normalized within 3 months. It might...
  10. trents
    The fructose intolerance might be a symptom of SIBO (Small Intestine Bacterial Overgrowth) which is often found in conjunction with gluten sensitivity/celiac disease. And it is also common for celiacs to not handle dairy well. I certainly would get tested for celiac disease if I were you. The first stage of testing involves a blood draw looking for certain...
  11. trents
    Yes, I think we are on the same page now. Thanks for the additional info.
  12. trents
    That's what I'm saying too. But it's not gluten.
  13. trents
    You may have NCGS (non celiac gluten sensitivity). The two conditions produce many of the same symptoms but celiac disease does damage to the small bowel lining which is what produces the IGA antibodies. Gluten sensitivity does not damage the bowel lining but still can cause some rather serious health issues over time if ignored. The antidote for both is...
  14. trents
    Labs don't all use the same reference value. As for allergy testing, they are notoriously unhelpful for a variety of reasons. When all is said and done with allergy testing there is typically a significant disconnect between test results and what you experience in real life symptomatically speaking. I suggest you google: "Is allergy testing accurate...
  15. trents
    IgE does not test for celiac disease which is an autoimmune disorder, not an allergy. IgE is used for allergy testing. IgA is a measure of the total antibody load produced in certain kinds of body tissues (membranes of the lungs, sinuses, stomach, and intestines). It is not specific for celiac disease. The most specific IGA test for celiac disease is...
  16. trents
    Okay, I think I see what you are saying. Are you saying that even so-called gluten free oats are cross-contaminated enough with either wheat, barley or rye that they don't make the 20 ppm standard? My point is that oats naturally do not contain the protein gluten. I'm afraid there are many market place products labeled "gluten free" that actually do...
  17. trents
    Pure oats (i.e., that have not been cross contaminated) do not contain gluten. That's not the issue. The issue is that oat protein is similar enough to gluten that in about 10% of celiacs it causes the same reaction. Sometimes you read or hear about corn or oat gluten but it is really a misnomer.
  18. trents
    Bluebird47, In this forum community I do not sense a rift between those with celiac disease and those with gluten sensitivity. The article can be read to give the impression that those with celiac disease are at the top of the pecking order in the no gluten world but I don't think that bears out in this online community.
  19. trents
    Data, colonoscopies are not used to diagnose celiac disease. Endoscopies are used for that. Endoscopies reach down into the small intestine where celiac typically does it's damage. Colonoscopies don't go up that far.
  20. trents
    There are various forms of magnesium supplements available. They vary in how well they are absorbed. Glycinate and Citrate are the two forms that are absorbed the best. The better they are absorbed, the better they address the issue of low magnesium levels in the body and also are less likely to have a laxative effect like milk of magnesia would. But glycinate...
  21. trents
    Ricky, are you saying the doctor concluded your pulmonary clots were caused by celiac disease? I have not heard that before. I was diagnosed with celiac disease almost 20 years ago but like you about 10 years ago I developed emboli in both lungs. This led to the discovery of a genetic clotting disorder called factor five leiden. It had nothing to do with...
  22. trents
    Lisa, what better diagnostic testing being developed do you refer to? Can you give a link?
  23. trents
    "Negative serology" means the blood test that were done did not indicate celiac disease. However, they only did one test, the tTG-IGA test which is the most specific for celiac disease. At the same time, however, the tTG-IGA is the least sensitive of the several tests that can be done to detect celiac disease and so it misses about 1/3 of those who may actually...
  24. trents
    It takes both the genes and some triggering stress event in order to develop active celiac disease. It always has a genetic base but many people with celiac genes never develop active celiac disease because the right stress trigger doesn't happen. The stress event can be various things including a viral infection. At least that is the current thinking.
  25. trents
    Newly diagnosed with? Celiac Disease? Gluten sensitivity? It is common for celiacs to also react to CMP (cow's milk protein) and oats like they do wheat, barley and rye. You might try eliminating those two things for a period of time and then if you heal and things improve, add them back in one at a time. It is also unusual for those newly diagnosed...
×
×
  • Create New...