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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Looking forward to this. Please follow-up when the results are in.
  2. trents
    But in your previous post you said, "It's thiamine deficiency." That's pretty unequivocal. That's what I had a problem with.
  3. trents
    The study you sight concerns T Cell/mast cell proliferation in MS patients, not those with celiac disease or other bowel disorders. I doubt if thiamine deficiency alone can explain what many in the celiac population are experiencing with regard to resurfacing of their symptoms after years of gluten free living. I don't think thiamine supplementation is the...
  4. trents
    I don't know how to make it clearer than to just say immune system factors other than what can be contributed to what we eat, whether gluten or non gluten containing foods. I just get the feeling after reading that article and after reading the testimonies of many forum contributors that for more than a few people who start out with a celiac disease or gluten...
  5. trents
    Food companies can and do change their formulations over time. And the formulations can vary across world markets. Are your M&Ms manufactured in Australia or some other country besides the US? But thanks for the input. It needs to be looked into.
  6. trents
    Ditto to what Scott said. Have you actually broached the possibility of celiac disease with your physician? This might be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Give it to him and ask him to run the "Other Tests" as well. If he is not responsive, seek out another practitioner.
  7. trents
    I would not think something like that would contain gluten just by the nature of what it is. Gluten isn't listed in the ingredients and I can't imagine any getting in there from cross contamination in handling or processing.
  8. trents
    Many celiacs have few or no symptoms in the beginning phase of the active form. We call them "silent" celiacs. It's only after the symptoms begin to manifest themselves significantly that they seek medical help that leads to a diagnosis. By then, however, damage to the immune system, the bones and the neurological system may have already happened. The average...
  9. trents
    Found this: https://www.clinicaleducation.org/news/is-a-fingerprick-bloodtest-for-coeliac-disease-sufficient/
  10. trents
    Unfortunately, just as genetic testing cannot confirm celiac disease, neither can it completely rule it out. We are hearing of cases where the genes are not there but people do have celiac disease. I think there is a lot we don't know about the genetics of the matter. The current gene alleles associated with celiac disease are skewed toward the European/caucasian...
  11. trents
    Does the 10 year old have the same set of parents? By that, I mean the two boys are not half brothers are they? If they are full brothers they would have the same gene combinations, wouldn't they? Please realize that having the genetic potential for celiac disease is not a guarantee that you will develop active celiac disease. Many more people have the...
  12. trents
    This study is over two years old now and I have not heard of any follow-up studies to verify results. You would think other researchers would pick up on this, given the accuracy of the initial research results.
  13. trents
    I had my first (Moderna) shot this past Saturday. I'll be 70 next month. Sore arm for 2-3 days. Slight fever that evening, fatigue, muscle aches in lower back and neck for a couple of days. Cough and chest congestion also but I was feeling extra tiered earlier in the day and I wonder if I had not already started coming down with something before the shot...
  14. trents
    Allirose, it could be that you have become allergic or intolerant to the protein in the milk. But there are often additives in chocolate, like emulsifiers, that can cause people issues. Can you list the entire ingredient content of the chocolate bare in question or snap a pic of it and attach to your next post?
  15. trents
    The small amount of iron in a multivitamin will not have much impact on your iron levels if your are significantly anemic. Besides that, many with iron deficiency anemia are also low in B12 which is necessary for the absorption of iron. Some people have what's called "pernicious anemia" which is the lack of an enzyme called "intrinsic factor" which prevents...
  16. trents
    Scott, in context it's not clear to me whether the "exclusionary diet" is referring to excluding gluten or excluding CMP and then reintroducing CMP.
  17. trents
    Non celiac gluten sensitivity can also cause harm to your body, so I think you have a false hope to the effect that if you do not have celiac disease you can consume gluten, put up with some symptoms but not harm your body. Among other things, you risk neurological damage in that scenario.
  18. trents
    I have taken the generic equivalent of Zyrtec for years. Occasionally, I will pop a Benadryl to supplement that. You can buy DAO capsules but they are expensive and I'm not sure they provided any help to me though admittedly, I was kind of hit and miss with them. When the bad headaches set in, I take sumatriptan. It is the only thing that works for me...
  19. trents
    I find my migraines are more frequent on the early spring and autumn when certain pollen counts are higher. I think my immune system is overloaded at those times and then when histamines from food and beverages is added in it just pushes the histamine load over the edge.
  20. trents
    I think you have all the evidence you need from your symptoms to conclude that you are either have celiac disease or gluten sensitivity. Stop torturing yourself.
  21. trents
    One take away from this is we may need to more often give the benefit of the doubt to those who post on the forum and are adamant about being gluten free. We have also had a large number of people post on the forum recently who have new onset of celiac symptoms after being largely asymptomatic for years once going gluten free. The article makes me wonder...
  22. trents
    You may have to research that question yourself by contacting the manufacturers. I would start with the pill you are currently using and if you can't get a straight answer try other manufacturers if your pharmacy plan permits you use different brands. But just a heads up. You can get "glutened" from the saliva of your partner through kissing if he has...
  23. trents
    Sorry, but I can't answer your question with any authority. What I can say is that when we get "glutened" the inflammation caused lasts more than a day. It can take weeks for your gut to recover from one incidence of glutenning. But nevertheless, you should adjust your eating habits to get some gluten every day until the test.
  24. trents
    I would suggest you do some research on "histamine intolerance." It is a commonly found in celiacs. It's a bit of a misnomer but the idea is that we aren't breaking down the histamines entering our bodies through what we eat as we should, there's a certain enzyme we don't produce enough of. It's known as DAO I think: https://www.deficitdao.org/en/dao-deficiency...
  25. trents
    Ask the doctor to order a full celiac panel, not just the TTG as outline in this article. This would include the "other" tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The TTG is the most specific for celiac disease but the least sensitive.
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