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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Hm! Never thought of alcohol based sanitizers as being a potential source of gluten. But it is something to be aware of for sensitive celiacs who feel they get glutened transdermally. Would depend on what grain it is made from. A lot of it is made from corn or wood.
  2. trents
    This makes sense to me. In my experience there are many things I can eat without problems but if I eat too much of them or too often they upset my system. I've been working on trying not to fall into food ruts.
  3. trents
    Not eating gluten everyday before the scope may compromise the results but not necessarily totally invalidate them. It's hard to say. It may result in a marginal diagnosis that leaves the physician undecided. I should also say that celiacs with dermatitis herpetiformis do no necessarily have damaged small bowel villi, at least not in the beginning. I...
  4. trents
    Three week on gluten before the blood test may not be enough. The recommendation is eating the equivalent of 1-2 slices of wheat bread daily for 6-8 weeks before the blood test and at least 2 weeks before the endoscopy/biopsy. Your symptoms certainly fit with celiac disease but could also be due to other medical problems. Also, there are gluten-related...
  5. trents
    Actually, the standard recommendation is 6-8 weeks, not 4 weeks. Please realize that many doctors are not well-informed about celiac disease.
  6. trents
    Your inconsistency with gluten intake over the five year period may or may not have prevented sufficient healing of the villi to invalidate the endoscopy. However, three weeks of being back on daily regular amounts of gluten should have been enough to generate a valid endoscopy/biopsy. Several things to consider. First, what the doctor can see with the...
  7. trents
    Unless it is proved that fresh meat is a source of gluten exposure by way of what the animals have been eating I do not think supermarkets should be burdened with the task of guaranteeing the fresh meat they sell is gluten free. Many fresh foods are gluten free just by the nature of what they are. I suppose a person could take the extra step of washing their...
  8. trents
    I think it's fair to say most mainstream doctors do understand there is a connection between mind, body and spirit. I don't know any that would deny that. It's just that they aren't well trained to, nor have the time for, nor get paid for exploring that in depth at this point in time. But they aren't oblivious to it. That would be unfair to say.
  9. trents
    Yes, I've always been amazed how you can have a long hose shoved into your body from either end and come out of it not even realizing anything was done.
  10. trents
    Barrett's esophagus occurs more often in people with chronic GERD (Gastro Esophagial Reflux Disease) than in the general population. The constant irritation and inflammation caused by the stomach acid getting past the lower esophagial sphincter (LES) causes cellular changes in the esophagus and that is called Barrett's esophagus. That said, GERD is more common...
  11. trents
    Unless you are a sensitive celiac it can be hard to tell when you unintentionally consume minor amounts of gluten. Symptoms may be very vague or entirely missing. This is especially true if you have been regularly exposed to minor amounts of gluten, such as through cross contamination, that allows your system to maintain some degree of tolerance to gluten...
  12. trents
    Buckwheat is not a cereal grain. It is the seeds from plants in the same family as rhubarb. Totally different than wheat, barley, rye, rice, corn, etc.
  13. trents
    Good question and one I remember coming up before on the forum. I'm not aware of any research suggesting that we can get glutened from eating animal products coming from animals who were fed gluten. Having said that, we used to confidently claim that distilled liquors were free of gluten but anecdotal experiences are challenging that assertion. We are also...
  14. trents
    You could have SIBO (Small Intestine Bacterial Overgrowth) which you are feeding with the high carb diet of rice and fruit. You can get tested for this medically but a first step might be to revert to a very low carb, higher fat, higher protein diet (lots of meat, eggs, and nuts) and see if you don't feel better. What carbs you do take in should be of the...
  15. trents
    Hello, Zoey and welcome to this online community! How do you know you have celiac disease? Have you been tested for it and did the test results show that you have celiac disease? Or have you reached this conclusion because of the symptoms you are experiencing from eating bread and other wheat products? Yes, candy can have gluten in it so you have...
  16. trents
    I can handle 8 weeks or so. No problem.
  17. trents
    Looking forward to this. Please follow-up when the results are in.
  18. trents
    But in your previous post you said, "It's thiamine deficiency." That's pretty unequivocal. That's what I had a problem with.
  19. trents
    The study you sight concerns T Cell/mast cell proliferation in MS patients, not those with celiac disease or other bowel disorders. I doubt if thiamine deficiency alone can explain what many in the celiac population are experiencing with regard to resurfacing of their symptoms after years of gluten free living. I don't think thiamine supplementation is the...
  20. trents
    I don't know how to make it clearer than to just say immune system factors other than what can be contributed to what we eat, whether gluten or non gluten containing foods. I just get the feeling after reading that article and after reading the testimonies of many forum contributors that for more than a few people who start out with a celiac disease or gluten...
  21. trents
    Food companies can and do change their formulations over time. And the formulations can vary across world markets. Are your M&Ms manufactured in Australia or some other country besides the US? But thanks for the input. It needs to be looked into.
  22. trents
    Ditto to what Scott said. Have you actually broached the possibility of celiac disease with your physician? This might be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Give it to him and ask him to run the "Other Tests" as well. If he is not responsive, seek out another practitioner.
  23. trents
    I would not think something like that would contain gluten just by the nature of what it is. Gluten isn't listed in the ingredients and I can't imagine any getting in there from cross contamination in handling or processing.
  24. trents
    Many celiacs have few or no symptoms in the beginning phase of the active form. We call them "silent" celiacs. It's only after the symptoms begin to manifest themselves significantly that they seek medical help that leads to a diagnosis. By then, however, damage to the immune system, the bones and the neurological system may have already happened. The average...
  25. trents
    Found this: https://www.clinicaleducation.org/news/is-a-fingerprick-bloodtest-for-coeliac-disease-sufficient/
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