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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Interesting discussion. I have an uncle that was diagnosed with celiac disease 10-12 years ago. For a short while he made some effort to eliminate gluten from his diet but then abandoned all pretense of it. I rode his case for a while about that but then came to realize he had made a decision to just live with it rather than have "gluten free" interfere with...
  2. trents
    Sorry, I misunderstood what you were intending to say. I interpreted your "wheat semolina" consumption to be something you did only that one time in conjunction with taking the clean out laxative.
  3. trents
    My take on that would be that the laxative salt solution prep caused things to move through so fast that the wheat semolina didn't have time to cause much inflammation.
  4. trents
    I would think you cannot have dairy without casein. It is one of the proteins that define milk. There might be some dairy substitute, however.
  5. trents
    The TTG is the most specific for celiac disease but it is not the most sensitive of the test battery you had run. Given that, if the TTG is positive I would think that is a strong indicator that you have celiac disease. The guideline for daily gluten consumption in order to get valid blood antibody tests is eating 1-2 slices of wheat bread (or the equivalent...
  6. trents
    Magnesium Glycinate is very popular. Well-absorbed and therefore doesn't cause as much laxative effect.
  7. trents
    https://www.verywellhealth.com/celiac-disease-genetic-testing-562695 "There are two places you can have the testing done without a doctor's order: Enterolab, a specialized laboratory in Dallas (Enterolab also performs gluten sensitivity testing), and the genetic testing service 23andMe.com. For around $150 (paid at the time you place the order)...
  8. trents
    https://www.verywellhealth.com/celiac-disease-genetic-testing-562695 "There are two places you can have the testing done without a doctor's order: Enterolab, a specialized laboratory in Dallas (Enterolab also performs gluten sensitivity testing), and the genetic testing service 23andMe.com. For around $150 (paid at the time you place the order)...
  9. trents
    In that case, you and your family members should look at getting genetic testing done to look for the celiac gene markers. Although it is true that a high percentage of the population will have some of the gene markers and therefore some potential for celiac disease, it might be helpful for you and your loved ones to know if you have a very strong propensity...
  10. trents
    When you go off of gluten, do you feel much better? I'm just wondering why you need testing confirmation if in fact your symptoms abate when you go off of gluten.
  11. trents
    Okay, then. Seems like you are on the right track and there is nothing else to do except wait for the procedure to be scheduled. Make sure you are eating the equivalent of 1-2 slices of wheat bread daily leading up to the procedure.
  12. trents
    Constipation one of the known side effects of verapamil. There are many BP meds to choose from so I advise talking to your doctor. Does the med have a diuretic effect? If so, you may need to increase your fluid intake to keep your bowels lubricated.
  13. trents
    If you intend to go through with the endoscopy/biopsy you are doing it right. The only question I have is why you are starting there instead of the blood test which would be less invasive and less expensive since you don't have insurance? The first time it was invalidated because your were off gluten. It is true, however, that it takes about 8 weeks of consuming...
  14. trents
    Scott, was that teenage long term, low dose antibiotic treatment done for acne control by some chance? I was on tetracycline for years for acne back in the day. I think it was common.
  15. trents
    Agreed!
  16. trents
    You would need to be on gluten (1-2 slices of wheat bread per day, or the equivalent) for 8 weeks before blood antibody tests are done and at least 2 weeks before an endoscopy/biopsy is done. Otherwise, the tests will likely be rendered invalid. Having the genes does not guarantee that someone will develop celiac disease. It only addresses the potential...
  17. trents
    Welcome to the forum, Nancy. CDIF is most often associated with protracted and repeated antibiotic treatment such that the normal balance of microorganisms in the gut is severely disturbed. CDIF is an opportunist infection in that sense. It moves in when all the normal microbiotic checks and balances have been wiped out. Since many people on extended...
  18. trents
    Quoting from Scott's post above where he quotes from the article: “IgA anti-gliadin antibodies are less sensitive but are more specific." If that one was positive, then it would seem to strongly point to celiac disease rather than something else because of it's specificity. The next step in confirmation would be the endoscopy/biopsy or alternatively, ...
  19. trents
    Sounds like a reasonable plan. Were the GS cookies the victim or were you? Kudos to the doc for remembering to tell you to go back on gluten before the endoscopy/biopsy - or did you have to prompt him/her about that?
  20. trents
    Susie0402, in my rural county of Washington state, the vaccine has been in very short supply. I have not received any shots yet and by the time it's available to me herd immunity may already be in place. Sorry for your loss. Sometimes life just backs up and dumps. It's been a year since your celiac disease diagnosis. How are you feeling physically...
  21. trents
    The point is that the TTG_IGA is the most specific for celiac disease but not the most sensitive test, which will result in some who actually do have CS celiac disease being missed. The other tests are less specific for celiac disease but more sensiitve, which means they might point to celiac disease or to other diseases of the intestinal track such that...
  22. trents
    Were you still consuming gluten daily when the panel was done? Many people make the mistake of already having started a gluten-free diet before they go for the testing. And most docs fail to tell them not to do that. The HLA test only checks for genetic celiac disease potential. It doesn't prove you have active celiac disease. Most people who have the...
  23. trents
    I would just go to your physician and say, "I have stomach pain and I haven't been checked for celiac disease that I know of. Could we do that?" Print this out, circle the part about TTG IGA and hand it to the doc: Open Original Shared Link
  24. trents
    I'm not clear on what it is you want to convey to the doctors. Do you refer to the fluttering sensation or a desire to broach the idea with them of possibly having celiac disease and wanting to be tested for it? A number of people on this forum have complained about fluttering in the upper abdomen, usually around the bottom of the rib cage. I do not...
  25. trents
    Katina, First, chronic health issues are common contributors to mental health issues, particularly depression. Second, celiac disease typically results in vitamin and mineral deficiencies because of the damage it does to the small bowel lining. The "villi" of the small bowel are damaged and worn down, preventing proper absorption of the nutrition...
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