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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Unfortunately, just as genetic testing cannot confirm celiac disease, neither can it completely rule it out. We are hearing of cases where the genes are not there but people do have celiac disease. I think there is a lot we don't know about the genetics of the matter. The current gene alleles associated with celiac disease are skewed toward the European/caucasian...
  2. trents
    Does the 10 year old have the same set of parents? By that, I mean the two boys are not half brothers are they? If they are full brothers they would have the same gene combinations, wouldn't they? Please realize that having the genetic potential for celiac disease is not a guarantee that you will develop active celiac disease. Many more people have the...
  3. trents
    This study is over two years old now and I have not heard of any follow-up studies to verify results. You would think other researchers would pick up on this, given the accuracy of the initial research results.
  4. trents
    I had my first (Moderna) shot this past Saturday. I'll be 70 next month. Sore arm for 2-3 days. Slight fever that evening, fatigue, muscle aches in lower back and neck for a couple of days. Cough and chest congestion also but I was feeling extra tiered earlier in the day and I wonder if I had not already started coming down with something before the shot...
  5. trents
    Allirose, it could be that you have become allergic or intolerant to the protein in the milk. But there are often additives in chocolate, like emulsifiers, that can cause people issues. Can you list the entire ingredient content of the chocolate bare in question or snap a pic of it and attach to your next post?
  6. trents
    The small amount of iron in a multivitamin will not have much impact on your iron levels if your are significantly anemic. Besides that, many with iron deficiency anemia are also low in B12 which is necessary for the absorption of iron. Some people have what's called "pernicious anemia" which is the lack of an enzyme called "intrinsic factor" which prevents...
  7. trents
    Scott, in context it's not clear to me whether the "exclusionary diet" is referring to excluding gluten or excluding CMP and then reintroducing CMP.
  8. trents
    Non celiac gluten sensitivity can also cause harm to your body, so I think you have a false hope to the effect that if you do not have celiac disease you can consume gluten, put up with some symptoms but not harm your body. Among other things, you risk neurological damage in that scenario.
  9. trents
    I have taken the generic equivalent of Zyrtec for years. Occasionally, I will pop a Benadryl to supplement that. You can buy DAO capsules but they are expensive and I'm not sure they provided any help to me though admittedly, I was kind of hit and miss with them. When the bad headaches set in, I take sumatriptan. It is the only thing that works for me...
  10. trents
    I find my migraines are more frequent on the early spring and autumn when certain pollen counts are higher. I think my immune system is overloaded at those times and then when histamines from food and beverages is added in it just pushes the histamine load over the edge.
  11. trents
    I think you have all the evidence you need from your symptoms to conclude that you are either have celiac disease or gluten sensitivity. Stop torturing yourself.
  12. trents
    One take away from this is we may need to more often give the benefit of the doubt to those who post on the forum and are adamant about being gluten free. We have also had a large number of people post on the forum recently who have new onset of celiac symptoms after being largely asymptomatic for years once going gluten free. The article makes me wonder...
  13. trents
    You may have to research that question yourself by contacting the manufacturers. I would start with the pill you are currently using and if you can't get a straight answer try other manufacturers if your pharmacy plan permits you use different brands. But just a heads up. You can get "glutened" from the saliva of your partner through kissing if he has...
  14. trents
    Sorry, but I can't answer your question with any authority. What I can say is that when we get "glutened" the inflammation caused lasts more than a day. It can take weeks for your gut to recover from one incidence of glutenning. But nevertheless, you should adjust your eating habits to get some gluten every day until the test.
  15. trents
    I would suggest you do some research on "histamine intolerance." It is a commonly found in celiacs. It's a bit of a misnomer but the idea is that we aren't breaking down the histamines entering our bodies through what we eat as we should, there's a certain enzyme we don't produce enough of. It's known as DAO I think: https://www.deficitdao.org/en/dao-deficiency...
  16. trents
    Ask the doctor to order a full celiac panel, not just the TTG as outline in this article. This would include the "other" tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The TTG is the most specific for celiac disease but the least sensitive.
  17. trents
    For the serum antibody tests you need to be eating the equivalent of 1-2 slices of wheat bread daily for 8 weeks prior to the test. For the endoscopy, the gluten challenge period is shorter, two weeks. You should have your physician order a "full celiac panel." The TTG is the most specific for celiac disease but the least sensitive. The full panel would...
  18. trents
    Most or all of the symptoms your describe are not uncommon to the celiac experience and gluten related. By the way, elevated liver enzymes was what led to my celiac diagnosis. Within three months of going off gluten those enzymes normalized. Elevated liver enzymes are experienced by about 18% of the pre-diagnosed celiac population but not one of the issues...
  19. trents
    10% of celiacs react to oat protein like they do gluten in wheat, barley and rye. So you might also try eliminating oats for a time and see if there is improvement.
  20. trents
    Guest Jean, you married well!
  21. trents
    Welcome to the forum, Kayla! About 10% of celiacs react to oat protein the same way they do the gluten in wheat, barley and rye. Right now, there is a controversy over whether or not distilled spirits truly are gluten free. Apparently for some people they may contain gluten protein fractions that can cause a reaction. With wines, there is often...
  22. trents
    Inulin is included in many, many health-oriented snacks and foods these days like protein bars and energy bars. Almost any prepared snack food that has high fiber content will have inulin, usually made from chicory root. These are sugar alcohols that are indigestible and notorious for giving many people gas and bloating.
  23. trents
    Consider also that you may be a celiac who is relatively insensitive to small amounts of gluten and that you may be often unaware of being "glutened" when eating out. And you are blessed to have a circle of family and friends who are aware and supportive of your efforts to avoid gluten. But I do not believe that is the norm.
  24. trents
    https://www.beyondceliac.org/research-news/gluten-free-diet-may-not-be-enough-even-in-celiac-disease-patients-who-seem-well/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=114784253&_hsenc=p2ANqtz-89c0C5U4fNAVIC-0dHGGTC0nJe_UcGwhTRWaqVW7tnmR3P2m8eLD_RDzAO-jZuGjr7mHzsu8-JJKslFQVV9Ll2uAbcKA&utm_content=114784253&utm_source=hs_email ...
  25. trents
    Histamine intolerance?
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