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Electra375

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Latest Celiac Disease News & Research:

Everything posted by Electra375

  1. Electra375
    I also drive to Dr Fasano from VA. Worth every mile!
  2. Electra375
    Other grains - teff, sorghum, millet, quinoa all much heathier than rice anyway. DQ2s can have a separate reaction to the oat protein, presents like gkuten symptoms. DQ2 Celiac children should not consume oats of ant kind. There are pubmed abstracts on these studies. And yes consumption of the food needs to have been taking place for the antibody...
  3. Electra375
    I don't post often, but I read a lot of posts. I have been reading yours intently b/c of what we've been going through here on the east coast w the Celiac Center in Maryland. We are also FTT, we're waiting on several tests results, although the first set for CF, thryoid, kidney are all negative. This is going to sound really lame maybe, but I ask b/c...
  4. Electra375
    bump would love to know how to use it as well I have the flakes, but no recipe for these mock oatmeal cookies I keep seeing people talk about.
  5. Electra375
    Just wondering if anyone had done a recipe with Millet, quinoa, or Sorghum for the major dry ingredient. I don't like to use rice or a lot of starches since they really reak havoc on the glycemic index. My little guy needs high protein to function as well -- no protein = very cranky, yelling, screaming, fit throwing, punching, angry little boy.
  6. Electra375
    So why did some of you react to the M&Ms -- Red dye No. ??? The Blue dye??? That would be my guess. Also what about just too much sugar -- too much sugar can give anyone diarrhea.
  7. Electra375
    Just a note about Sour Dough -- you need a natural sour dough starter for real sour dough with no commercial yeast. This takes a few days to make. Nourishing Traditions has a recipe in it for Millet bread, I think. It uses Lacto-fermenation using the whey from diary to begin the starter. I returned the book to the library, so a friend could check...
  8. Electra375
    Okay, I need to clear a few things up... I stopped reading about the McD thing. This other message area I'm on got really irritated with it all. And it was all very hard to read with the format used. So, I'm out of the latest news I'm guessing. I just looked up the FAAN position statement this afternoon before posting it, so current for their website...
  9. Electra375
    Yes, this is already happening IMO. I took my Celiac son to a restaurant and if it weren't for the fact I didn't have any other place to go, we were traveling, I would have said "please give me the check for the drinks, so we can take our business elsewhere b/c it is obvious that serving us is very distressing to you." I probably would not have had to pay...
  10. Electra375
    What bothers me the most about all of this is that the Celiac Disease Associations are supporting the McD corp statement and the FAAN has questions that they want answered before stating that kids with food allergies to wheat and dairy should consider them okay. What gives with that? I think it is a slap in the face to those with Celiac Disease that the...
  11. Electra375
    The recipe I used that he liked is Ilene's Sorghum bread in the SillyYak files sections of the yahoogroup I posted. Symptoms of my infant -- Classic Dr. Sears High Needs infant Cried all the time, cried before nursing, cried during nursing, cried after nursing, never satisfied Cried when he was laid down, sat up to sleep (20min at a time) in his...
  12. Electra375
    My ds2 was 2 of the 5 positive plus IGA deficient which is why the other test were false negative. As I stated elsewhere the only positive dx as far as the Pedi GI is concerned is a postivie biopsy which at this point we are not doing b/c we went gluten-free immediately after the blood was drawn and we like what we see. The pediatrician totally over looked...
  13. Electra375
    Periactin is an antihistimine that is prescribed to have an appetite. In the prescribing information it states can be used for anorexia. Our pediatrician prescribed it after I found out about it from another Celiac mom. It does give my little boy an appetite after about 3 days. This medication is said to either work or not work, for use it appears to...
  14. Electra375
    You want a firm medical dx for a 504 for school. You want a firm medical dx for special services if you qualify otherwise You want a firm medical dx to help with diet adherance in the teen years at 11 that is close. Teens come back notoriously negative on biopsy for some reason. Dr. Fasano states that a non-compliant celiac disease through the teen years...
  15. Electra375
    I have to go with give the gluten-free diet a try and see how she feels, give it at least 3 months for a full effect. At least she is old enough to tell you. Note my siggy line, my ds2 does not have a biospy, but has all the other necessary test for celiac disease plus classic symptoms. A renouned GI doc involved in research asked me if I had any doubts...
  16. Electra375
    If she is sensitive to casein, then yes dairy needs to be eliminated to see improvements. You can check out www.gfcfdiet.com for help in that area. As for results -- it depends on the symptoms. My ds2's diarrhea was gone almost immediately going gluten-free, except for the accidents. His behavior was slower to change, maybe 2 wks for my noticing, then...
  17. Electra375
    My ds2 is 3 1/2 and was dx in Sept as well!!! I cried the first 2 days after reading page after page of dxing on the internet and realized my little boy had been suffering since birth. Then I got on with fixing him and learning about the gluten-free diet. I went to our library and got a few books, but didn't get a cookbook. I suggest getting a cookbook...
  18. Electra375
    My dh and I both were looking into autism separately as a cause for our son's behavior and reactions to others, but he didn't quite fit, so we never knew that we were both researching this until the celiac disease dx. Our son was very angry and violent toward his siblings. We now attribute that to years of pain and not knowing how to ease the pain. ...
  19. Electra375
    I just came across this brochure on GIG Open Original Shared Link Also, as a newbi myself, I found Danna Korn's book Kids with Celiac Disease to be a must have. I borrowed it from the library first, then ordered a copy once our dx was firm.
  20. Electra375
    I'll chime in here. My oldest has constipation issues, since birth, pooped maybe 1X a week. He was a soy formula baby. So, no dairy. As for school, he was late many, many, many mornings for sitting on the toilet in excess of a hour. My mother walked in and found him sleeping one day on the toilet (back when he was 3 and she was visiting after the...
  21. Electra375
    Very interesting. I don't doubt the glue and gluten issue. I have never liked the feel of the last 2 towels on a roll they make my hands sticky!!! We use Bounty b/c we can get them at Costco and they are better than the Costco PT. I've been using more PT to clean off counters b/c I didn't want to cross contaminate with a dish rag, you know wipe up a sandwich...
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