Fiddle-Faddle
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Latest Celiac Disease News & Research:
Everything posted by Fiddle-Faddle
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ARCHIVED Recipe For A Nutrient-packed Casserole?
Fiddle-Faddle replied to Rozzy's topic in Gluten-Free Recipes & Cooking Tips
I just throw what's in the fridge and pantry together: ground meat (brown and drain first) garlic diced onion diced carrots diced celery diced parsnip or turnip diced sweet potato can of beans (I like small white beans, or black beans) can of tomatoes brown rice beef or chicken broth If you like it creamy, you can add sour cream, regular cream... -
ARCHIVED Mars, Tootsie And More
Fiddle-Faddle replied to bakingbarb's topic in Gluten-Free Foods, Products, Shopping & Medications
I didn't even realize from that web site that there WERE 2 milky ways...You're right, lousy web site. -
ARCHIVED Baby Update
Fiddle-Faddle replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, yes, you did an awesome job!!! I was wondering why the doctor is thinking CVId? Not arguing, just wondering if bloodwork or symptoms pointed that direction. I also wanted to add that many older people here on this board were told that they were allergic to wheat as babies or children, then told that they had outgrown it when they were older, only... -
ARCHIVED Mars, Tootsie And More
Fiddle-Faddle replied to bakingbarb's topic in Gluten-Free Foods, Products, Shopping & Medications
I just looked up the Milky Way, and malted barley was NOT on the ingredient list. Did they change their recipe, or did they just leave it out? And the allergy statement for the Twix Bar doesn't mention wheat, even though it IS on the ingredient list!!!! It just says, "may contain peanuts." WHat about WHEAT, for heaven's sake??????? -
ARCHIVED Baby Update
Fiddle-Faddle replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No, doctors have been saying for YEARS that you can outgrow milk and wheat allergies. Heck, doctors used to say that you can outgrow celiac! (Some idiot doctors still cling to this.) THEY ARE WRONG. I think that the research already out there shows how wrong they are. Remember, it only takes 1/16th of a piece of bread to produce MEASURABLE damage to... -
ARCHIVED Baby Update
Fiddle-Faddle replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hopefully in years to come, much more will be understood about celiac and gluten. Kids DON'T outgrow wheat and milk "allergies," though. What happens is that their intestines heal, and they can consume wheat or milk without NOTICEABLE symptoms--but the damage is occurring, all the same. Eventually, there is enough damage to cause a leaky gut, at which... -
ARCHIVED Better Batter Flour
Fiddle-Faddle replied to stolly's topic in Gluten-Free Foods, Products, Shopping & Medications
I do both! I use it in a recipe to make home-made Bisquick, but I've found it needs extra baking powder and extra milk. For some reason, it works a lot better when the batter is a whole lot stickier than what you'd see with gluten flour. Best of all, on the website for Better Batter, there are a whole bunch of recipes, and they've figured out the flour... -
ARCHIVED Better Batter Flour
Fiddle-Faddle replied to stolly's topic in Gluten-Free Foods, Products, Shopping & Medications
I used to mix up my own flours, but with a full-time job and 3 kids, I was getting pretty overwhelmed! I tried the Better Batter flour, and LOVE it! I mail-ordered a huge order of it (I think I got 6 10-pound bags?), and it isn't much more expensive than mixing my own, and a whole lot more convenient! So far, everything has turned out GREAT--and... -
ARCHIVED Self-diagnosed And Afraid To Tell Family Doctor
Fiddle-Faddle replied to ellen123's topic in Coping with Celiac Disease
Ali8, you are quite right, but, unfortunately, the insurance company sees the concurrence of celiac and other autoimmune conditions, AND the fact that lymphoma is a sort of end-stage of celiac, so they see celiac as being extremely high-risk. -
ARCHIVED Self-diagnosed And Afraid To Tell Family Doctor
Fiddle-Faddle replied to ellen123's topic in Coping with Celiac Disease
You can always ask your doctor to label you as "gluten-intolerant" on your records, if she feels she must write something down. I totally agree with your reservations about the celiac label, and also with your feeling of needing to educate the doctors. -
ARCHIVED Are Hand Blisters A Celiac Side Effect?
Fiddle-Faddle replied to a topic in Related Issues & Disorders
If you've only had the hand blisters a few days, it might be cocksackie virus, especially if you are around young children. Cocksackie causes hand. foot, and/or mouth blisters, and sometimes fever and upper respiratory symptoms. When my husband and I had it, we only had the hand and foot blisters, but our son had the whole shebang. Either way, I hope... -
ARCHIVED Does Gluten Go Through Breastmilk?
Fiddle-Faddle replied to SandiB's topic in Parents, Friends and Loved Ones of Celiacs
Whoa--that idea of "properly diagnosed" is based on a very narrow-minded and archaic definition of celiac. Waiting for a child to develop enough intestinal damage in order to label it a "proper" diagnosis of celiac is like waiting for someone with a peanut allergy to go into anaphylactic shock before diagnosing him with a peanut allergy. IF A VERY YOUNG... -
ARCHIVED My Heart Is Broken
Fiddle-Faddle replied to SweetAmber32's topic in Gluten-Free Recipes & Cooking Tips
I miss it, too! I googled "Japanese curry recipe" and found this, which is quite good. I use plain boxed chicken stock instead of bouillon, and I substitute gluten-free flour for the flour in the recipe, and it's fine. I sometimes mix just a bit of coconut milk in as well. You can find garam masala at Indian stores. INGREDIENTS: * 2 Tbsp butter... -
ARCHIVED Does Gluten Go Through Breastmilk?
Fiddle-Faddle replied to SandiB's topic in Parents, Friends and Loved Ones of Celiacs
I second what Ursa says. Your pediatrician is greatly mistaken. You can do a search on this board and find a thread about a baby named Megan, whose mom DEFINITIVELY proved with meticulous charts that her baby WAS affected by gluten in mom's diet passing into the breastmilk. I believe there might even be studies proving this by now--try googling ... -
ARCHIVED Feeling Great: So How Do I Continue To Stay gluten-free?
Fiddle-Faddle replied to Molecular Dude's topic in Coping with Celiac Disease
Am I weird or something? I have absolutely no urge to cheat--and I don't have severe reactions to gluten. Just hearing how bad it could get, though, in terms of other autoimmune disorders, such as RA, MS, lupus, fibromyalgia, etc. is more than enough to keep me from cheating. If I want pizza, I can make it in 10 minutes using corn tortillas for the... -
ARCHIVED Washington Post Article
Fiddle-Faddle replied to katebuggie28's topic in Publications & Publicity
Wow! At least, in Finland, they seem to be on top of things! -
You might be reacting to your deodorant/antiperspirant, and it may or may not be DH. I react to a deoderant that as far as can see does not contain gluten, but it does contain hops (which I thought were gluten-free). And some deodorants do contain oat or wheat-derived ingredients, like wheat germ oil.
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ARCHIVED Periodic Testing
Fiddle-Faddle replied to redheadheather's topic in Parents, Friends and Loved Ones of Celiacs
Well, it depends what kind of testing you are talking about. If you are talking about bloodwork, that's not so invasive, so you might learn something from it. But if you're talking endoscopy/biopsy, that IS invasive (therefore risky, no matter what they tell you--there IS a risk of reacting to the anesthesia an dying on the table, and the risk is higher... -
ARCHIVED My Tiny Granddaughter Zoey Could Use Your Prayers
Fiddle-Faddle replied to Ursa Major's topic in Introduce Yourself / Share Stuff
Oh, I'm so sorry--I thought she lived in the same town as you. I used to have playdates with a girl who was in a total body cast for a year (she had severe scoliosis). I would come to her house, and we would do Let's Pretend games, and board games, and drawing, etc. with me sitting at her bed. But she was much older--she was in 7th grade. I... -
ARCHIVED My Tiny Granddaughter Zoey Could Use Your Prayers
Fiddle-Faddle replied to Ursa Major's topic in Introduce Yourself / Share Stuff
I'm so sorry--prayers sent! This might be a good time for her to learn to do a lot of hand things, like drawing, coloring, music games (you can get her lots of compact discs, and even start toddler-Suzuki type stuff. They make cardboard violins for $9, and you can teach her how to properly hold it (with a soft foam shoulder rest, they're only a few... -
See if one is near you: www dot pizzafusion dot com They are very careful about cc: they have premade crusts, which they bake on separate stones, and their gluten-free pizzas are round, while ALL their other pizzas are rectangular, so slip-ups should not be an issue. And they deliver! When I opened the box, it looked so good, I was sure they...
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ARCHIVED Friend's Sister
Fiddle-Faddle replied to Fiddle-Faddle's topic in Parents, Friends and Loved Ones of Celiacs
I'm sure that her family's mindset is identical to yours. But in my own experience, I was not able to give up or even cut down on sweets UNTIL I WAS GLUTEN-FREE for 2 weeks. At that point--totally all of a sudden--it was easy. But those 2 weeks were hell. I wasn't diabetic--but my blood sugar had inched up to where it was borderline, until I went off... -
ARCHIVED Natural Healing Alternatives
Fiddle-Faddle replied to jasuko1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Whoops, you're right--that was violetblue to whom I was responding! Sorry about the disorganization! -
ARCHIVED Natural Healing Alternatives
Fiddle-Faddle replied to jasuko1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not saying that you DON'T have celiac, just that you might have an h. pylori infection in addition. Remember, the doctors are trained by the pharmaceutical industry. THe pharm industry makes a lot more $ if you take a year's worth--or a lifetime's worth--of whatever acid-blocking meds mask your symptoms than by putting you on antibiotics for 10 days...