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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Well, take it from the experience of people who have lived it, then--most of the doctors haven't been through it themselves. They are only spouting what they were taught in medical school about celiac, most of which was WRONG. Most of us on here have been told BY DOCTORS that: celiac is rare (FALSE) all celiacs will have totally destroyed villi, very...
  2. Fiddle-Faddle
    If you are already gluten-free, the biopsy will be negative, anyway.
  3. Fiddle-Faddle
    I've got some great recipes for bread, pizza, and biscuits. The official MD diagnosis thing has pros and cons. The main advantage is that nobody will ever doubt that your son has a problem with gluten (shame, isn't it? That anyone would doubt the one expert who sees her child's reactions every day? But it happens all the time.) There are many disadvantages...
  4. Fiddle-Faddle
    Hi, Ashley, welcome aboard! Hate to tell you this, but if your son was ever officially diagnosed with celiac, he will NEVER outgrow it. Your doctor is seriously misinformed--celiac is not something that can ever be outgrown. What happened is that his intestines healed while he was gluten-free--but the damage is starting all over again. If he wasn...
  5. Fiddle-Faddle
    My dentist says that a strong metal taste can indicate an amalgam filling leaching mercury. Please pm rachael_24 or CarlaB, as they know much more about this than I do. This could be potentially very serious.
  6. Fiddle-Faddle
    Potato salad could also be an additional culprit: most deli-made mayo-based salads have bread crumbs in them to absorb the excess moisture from the mayo. I would also suspect the chips, as others mentioned.
  7. Fiddle-Faddle
    Welcome Scott and wife! We've all been there at the store, reading labels til we were ready to start throwing items at anyone who didn't need to read them! It IS a good idea to stick to basics first, just because it's much healthier for a tummy that's not quite healed. Come to think of it, it's probably healthier for healed tummies, too. But it's...
  8. Fiddle-Faddle
    Carla, you've done so much research on this, I'm sure you do know what you are doing! I'm just worried that celiacs/gluten intolerants will think from reading your post that eating gluten without a reaction means that they are fine and can eat gluten again, and THAT'S NOT THE CASE FOR CELIACS. For many, once the damage to the villi heals, you don't...
  9. Fiddle-Faddle
    But many people with DH (which is an automatic diagnosis of celiac) do NOT have the villi damage. And the number of people with gluten intolerance (that has not been officially diagnosed as celiac) with autoimmune disorders such as thyroid disease, RA, Lupus, diabetes, etc. is huge. The big problem, as I've said so often that you are all sick of hearing...
  10. Fiddle-Faddle
    Lots of arguments on this subject. I'm in the camp that believes that in most cases, gluten intolerance is just celiac disease before there is enough damage to the villi to qualify for the diagnosis of celiac (it's defined by the villi damage). "If it walks like a duck, quacks like a duck, poops like a duck...."
  11. Fiddle-Faddle
    Yes, I totally forgot about the roast chickens! And they are DELICIOUS! Plus they do double duty: Pull the meat off the bones for your meal, and plunk the bones in your slow cooker with sliced onion, carrots, and whatever other veggies you like, and make chicken soup! I just let it go on high all day or all night (but not both).
  12. Fiddle-Faddle
    I eat regular oats on rare occasions with no noticeable reaction, but I do feel that I am taking a risk in doing so (which is why I only eat them rarely), because my reactions to small amounts of gluten are fairly subtle (though they are more pronounced than they used to be). So please don't go by my reaction! You've probably already read here that Rice...
  13. Fiddle-Faddle
    We just lost our kitty to a blood clot that cut off circulation to his hindquarters. He also had a heart murmur and diabetes for the last 2 years (which was when we got him)--he was only 9 or 10. It was the first time we've had to make that gut-wrenching decision to euthanize (something I have always HATED), but the vet was clear that he felt that it was...
  14. Fiddle-Faddle
    Is there a Costco near you? COstco is our friend! They have: gluten-free turkey meatballs you can store in the freezer and pull out as needed, gluten-free frozen salmon burgers gluten-free frozen pre-cooked breakfast sausage patties gluten-free pre-cooked grilled chicken strips (NOT breaded) gluten-free Buffalo Wings gluten-free hummous in huge...
  15. Fiddle-Faddle
    I wonder how high the chances are that an endoscopy will turn up something other than damaged villi? I know it's possible, but what are the odds? At this point, I am convinced that the whole endoscopy thing is simply a money-maker for the doctors. You paid a high price to be told what you already knew--that you can't eat gluten. You still don't know...
  16. Fiddle-Faddle
    I have read that the protein in oats, avenin, is molecularly similar to gluten, and that very sensitive celiacs react to it as though it were gluten. I'm so sorry you and your kids had a bad time with it. You might try using quinoa flakes instead of oatmeal in your recipes. Also, you might wait for a year or so, and then try oats again and see what...
  17. Fiddle-Faddle
    gluten-free Irish Bread 3 cups gluten-free flour (I used BetterBatter gluten-free flour with spectacular results)
  18. Fiddle-Faddle
    I've gotten very interested in Bento lunches (Japanese lunchboxes), and have been finding all kinds of wonderful sites, blogs, and tutorials! Onigiri are these cute little rice balls made with short or medium grain rice. You mold them when the rice is still warm, and fill them with whatever you like (suggestions: tuna salad, chopped deli meat with a little...
  19. Fiddle-Faddle
    Not only do I agree with everyone that it's a win-win situation, but if I were your neighbor, I wouldn't DREAM of leaving my baby with a sitter like the one she has!!! That "sitter" sounds like she can't be trusted to keep the baby safe, let alone well-cared for. The sooner you offer, the better. I just have a VERY creepy feeling about that "sitter...
  20. Fiddle-Faddle
    I agree, and think you might want to take your brother with you, too! From your description, our mother sounds borderline dangerous.
  21. Fiddle-Faddle
    I HIGHLY recommend martial arts. My son did Tae Kwon Do, and I can't say enough good things about what it did for him. His instructor was extremely sensitive and patient, and had one of the black belt adults work one-on-one with him for a year and a half until he was ready to test for his first stripe (which usually only takes 6 weeks). He is now a second...
  22. Fiddle-Faddle
    dbmamaz, has he been tested for diabetes? His symptoms sound like blood sugar problems (which may very well be triggered by gluten). Either way, get him OUTSIDE and EXERCISING for a minimum of 1 hour per day. Seriously. Huge difference. If you have to, take the other kids and go for a walk/bike ride/stroller ride with him. Whatever it takes. GOod...
  23. Fiddle-Faddle
    Is there a link between lack of menstruation and gluten? (Not that I should be surprised.) I ask because I have a friend with many celiac symptoms (arthritis, tummy issues, brain fog, etc.) who is putting off testing/trying the diet because she just doesn't want to deal with it, and her daughter, who is 17, has never menstruated. They are vegetarians,...
  24. Fiddle-Faddle
    Hi, ChrisNova, and welcome aboard! There are many of us here who either have Asperger's or have family with Asperger's, both in association with gluten intolerance. YOU ARE NOT ALONE. You might pm Ursa Major and gfp--they both have had similar experiences to what you describe, especially gfp (who lives in France, and does not check in on this board...
  25. Fiddle-Faddle
    So far, no, he has no other intolerances or issues that we are aware of. We are really, really lucky in that family and friends have been really terrific. Not one person has ever questioned the need for this diet, and it wasn't like I was deathly ill beforehand, either. All I had to say was that my previous annoying-but-mild symptoms that I had never...
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