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megsylvan2

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Everything posted by megsylvan2

  1. megsylvan2
    Hi Betty, I'm new to this too, and I just wanted to second the suggestions to look for problems with other foods. Not only do I get bad pains from wheat & gluten, but I discovered that egg is a real problem food for me. It causes pains very similar to wheat/gluten. For me, all the food sensitivities seemed to kick in at the same time. Have...
  2. megsylvan2
    Yes, I had them too. Some kind of sub atrial/ventricular complexes (don't remember the exact name). It was like Karen described - skipping a beat and then pounding and racing. It was a wild heart arrythmia. It made me cough and was very uncomfortable. I couldn't live with it. Had all the cardio testing done, and it was nothing significant. Was put...
  3. megsylvan2
    I had wondered this same thing myself. Since it is so popular now as a health food, it is difficult to google and find a valid scientific resource. Most of the search results are product pushers or health food advocates. Althought not a very scientific source, one product site contains the following information: "Wheat Grass is the young wheat plant...
  4. megsylvan2
    Oh, I see that this is where Dr. Peter Green practices, so of course you all are probably well acquainted with this site. Sorry. It was new to me, and I was excited by the great information it gave for doctors. I believe I've read some negative things in passing about Dr. Green on this board. Maybe not so much about his work, but more so about his personality...
  5. megsylvan2
    And I guess the second part of my question is - Does wheat intolerance alone (if there is such a thing) lead to Celiac disease, or does only gluten intolerance lead to Celiac disease? I think the answer is that they both do, and I'm not yet convinced that these are different things. I'm wondering if your friend only experience acute reactions to wheat...
  6. megsylvan2
    Interesting. I know that I am highly reactive to wheat. How do I now find out if I also have a problem with Gluten? I don't seem to be as highly reactive to say plain bread or pizza crust. At one time, pasta seemed to bother me, but that was when my illness was in it's acute state. After going gluten-free for a couple of months and getting everything...
  7. megsylvan2
    Floridanative, thanks for posting this link. One of the links contained in the article you mentioned above, led to a very interesting site about Celiac disease by the Celiac Disease Center at Columbia University. There was a great section there about Celiac Disease for doctors. Forgive me please, but I thought it was worth posting as a separate topic with...
  8. megsylvan2
    Floridanative posted this in another section at: Open Original Shared Link, but I thought this was so important as to start another thread for this reply. Please forgive me if this is not correct. The article mentioned above by Floridanative contained a very interesting link to the Celiac Disease Center at Columbia University Open Original Shared Link...
  9. megsylvan2
    Can anyone tell me if it is possible to be intolerant to wheat alone without being gluten intolerant? Not sure if these two can be separated or not. Many thanks......
  10. megsylvan2
    Magnoliamars - I'm so sorry for you for all you went through. I cannot imagine what that must have been like, and how discouraging it must have been. I keep telling myself to get over it because my issues are nowhere as severe as what some others here have gone through. But I guess the point for me is that I want to keep from going there. I'm trying to...
  11. megsylvan2
    Thanks Paula, I did see an allergist and was tested for 80 foods, including immunocaps. All were negative. As soon as they got the negative results, I was dismissed from there too. They wanted nothing further to do with me. Didn't give me any recommendations for food intolerances or anything. In their eyes, if it was not an IgE allergy, it was not...
  12. megsylvan2
    Hi Nisla. I did speak to Dr. Rudert's office and got all the pricing particulars. I'm not sure I'm ready to do that at this time. Basically, right now I'm just confused and floundering. I was so mad yesterday, I ate a chicken pot pie, crust and all. Didn't actually feel too bad, intestinally - nothing that Tums didn't mostly handle, and just my now normal...
  13. megsylvan2
    Well, I do believe that I've been dismissed by my doctor now that the results from the latest round of tests has come in. She tested for Celiac via blood, and h pylori via stool, all of which came back negative. She's already done ultra sound, upper endoscopy (although took no samples from small bowel), and CT scan. The only other thing she wants to do...
  14. megsylvan2
    Thanks to all the great board members who give of their time to help others out. And thanks, MallysMama, for posting the questions. These are things I've been wondering about and wanting to know too. I'm just going through all this process of figuring out what is wrong with me. I read the posts here to learn, and try to sift through everything and figure...
  15. megsylvan2
    I am sorry to hear of all you had to go through, and glad that you finally received a correct diagnosis and are on your way to healing and recovery. But, I had to laugh out loud at this part of your story, "... I thought "Gluten!" was a German cuss word...". Too funny! (and too sad too!) Gluten!
  16. megsylvan2
    I second this recommendation. Even if not diabetic one may be pre-diabetic. All of that notwithstanding, check your sugar intake for cause of frequent urination. Are you drinking soft-drinks, eating candy? Just one soda a day can do it. Eliminate all extra sugars from your diet and see if that doesn't make a difference. I notice that when I'm down to...
  17. megsylvan2
    I'm wondering what others do about taking prescribed medications that they need. I am gluten intolerant and, through eating properly, have been working on getting my symptoms and GI issues under control. I've been feeling better, however, I can't seem to tolerate the medications and vitamins that I need to take. I can do without the vitamins for awhile...
  18. megsylvan2
    This one also sounds delicious. I will look for the rice protein powder, and the Knutsens. I'm really glad to know about the rice protein powder, as I'd been looking for something like that. I've found that one of the tricks to making better smoothies is to use frozen fruit. That way I don't need to add extra ice to water it down with, and that way...
  19. megsylvan2
    Wow, these are some good ideas! Thank you! Funny how you get stuck in a rut with the same things. I love raspberries and blackberries, but I'd been staying away from the berries because the seeds spoil it for me. But I guess raspberries don't really have the seed problem, do they? And I'd fogotten about the whole citrus family because I was staying...
  20. megsylvan2
    Wow, I had the same thing, and the same concerns about the possibility of my throat closing up at some future point and the need for an epi-pen. I had such an immediate reaction one time from eating 2 Triscuits. They burned my entire insides - from the time they touched my lips, down my throat, in my stomach, and all the way down! It was an itchy, burning...
  21. megsylvan2
    The probiotics I have really bother me. Never thought that they could contain gluten. Thnx. BTW, - Mr Nudi --- that's cute!
  22. megsylvan2
    I was told I have Leaky Gut syndrome by a holistic MD (although she ordered no tests to arrive at this decision). I'm struggling with trying to find out if this is a real syndrome or not. Everything I read about it sounds reasonable, but I don't know. I find it all over the internet on the holistic sites, but not much in established medical literature...
  23. megsylvan2
    I'm new here, so I know next to nothing, compared to the others here. But your diet looks just like mine - pared down to the bare bones minimum. The only thing different is I discovered eggs were bothering me, which is why most wheat-free/gluten-free products that are made with eggs still cause problems for me. And I cut out the dairy. Instead, for...
  24. megsylvan2
    Hi Yvonne, I, too, was told I had Leaky Gut Syndrome by a holistic MD, and so far, I'm not sure how I feel about it, or how accepting I am of that as a diagnosis, especially since no testing was done (by this doctor) to arrive at that conclusion. So, I'm taking that with a grain of salt, and trying to find out if there is such a condition recognized...
  25. megsylvan2
    I'm fairly new to all of this and have been relying heavily on homemade fruit smoothies as both a breakfast beverage and an after-dinner dessert. These have been a lifesaver for me. They are filling, somewhat satisfy the urge for sweet, and seem to be soothing to inflamed and swollen intestines. I make them with frozen, organic fruits (pineapple, mango...
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