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Everything posted by gfp
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ARCHIVED Why Don't People 'get It'?
gfp replied to floridanative's topic in Coping with Celiac Disease
The thing is I didn't try to explain .... I agree with tarnalberry on honesty but unless you are ready for that (and perhaps she is) I'm now ready to cope with this person... A year ago I was not and he most certainly was not. -
Well if that's your son in the photo life cannot be so bad Your medication is unlikely to be helping getting into exersizing or your energy levels, especially if its a serotonin inhibitor however you should NEVER try withdrawal from this yourself .... if you don't knopw then read the product information ... never take any medicine for depression long term...
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ARCHIVED Not Really Understanding Some Things About This Diet...
gfp replied to Chrisser's topic in Coping with Celiac Disease
This sounds like something outside fo the normal IgA,IgG responses (as you obviously realise from your answer below) Give it time, its like on of those magic eye pictures once you learn to spot it its actually quite obvious... its often also obvious to a close friend or partner ... however given your early projectile vomiting you are obviously... -
It might not even be calories but a single nutrient..... Lister, with all due respect you do eat a lot of nutritionally poor quality foods like chips and stuff but you also obviously make an effort.... Why don't you do yourself a food diary..... Since there are loads of us here who are happy and willing to help you could just set yourself up with a free...
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ARCHIVED Recovery In Older Celiac Patients
gfp replied to Helena's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What does according to medical literature mean? There is a whole load of medical literature that says the biopsy is completely ineffective as a diagnostic tool, it all depends which medical literature you want to believe.. the balance is fast changing and in countires like Italy which have a diagnosis rate over 50% based on 1:200 people diagnosed and... -
ARCHIVED Not Really Understanding Some Things About This Diet...
gfp replied to Chrisser's topic in Coping with Celiac Disease
Ah, just joined, you don't ask much do you? (just waxing a little poetic at the moment) Describe the inexplicable ... now there is a challenge. You ask the hardest questions, I would love to be able to explain it to my GP and GI.... Seriously, good questions .... but I think you might also have given some answers. Im starting to... -
I think its just human nature... something gets taken away so we compensate. It doesn't really matter in a way.... especially once we realise .... but I think lots of us do the same. There is also the "it says gluten-free" on the packet syndrome and not to put to fine a point on it we live in a product driven society. Well moving sure...
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ARCHIVED Breaking News: Routine Screening For Celiac Disease Not Always Beneficial
gfp replied to hineini's topic in Publications & Publicity
And the madness continues: Celiac tests in Down children may fail Really, testing doesn't stop damage? I thought we just had to get tested and the disease went away? Of course they are going to develop it.... especially now that its decided testing before the damage is ... "ineffective" ? Please take note: This article has a talk-back option... -
I have to agree with others that the gluten free treats etc. is a hige trap. I guess we all like making excuses that "well its gluten-free" and so many people seem to fall into eating more bread/pasta than they did before .... People don't just gain or loose weight overnight... it usually involves the body switching from one stage and going to the...
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ARCHIVED Diagnosis Trouble In The Uk
gfp replied to Kyalesyin's topic in Introduce Yourself / Share Stuff
Open Original Shared Link I guess no comment is really needed ? -
ARCHIVED Doctor's Note For Travel With Food
gfp replied to jesscarmel's topic in Traveling with Celiac Disease
Good to know... any potential terrorists can reduce the risk of premature explosions by stabilising the liquid explosive first They should give out a Nobel prize for the most inventive use of stabilising a liquid high explosive.... nah.. wait someone already did this.... if only I could remember who? -
ARCHIVED Flu-like Symptoms From Quitting Smoking
gfp replied to eleep's topic in Introduce Yourself / Share Stuff
It sounds like you are doing everything right. Just remember to value the experience.... your goal is to feel normal again but your body has a feeling of normal associated with nicotine. Any nicotine you have now will just reset the process ..... The worst physical part is already over.... what you are left with are ghost memories of how to "feel... -
ARCHIVED Could Pregnancy Have "triggered" Celiac?
gfp replied to maddycat's topic in Related Issues & Disorders
This is all true but what it doesn't address is the link between the two. Which mothers were gluten-free in pregnancy and which were not and then which mothers breast fed and which did not .... In other words we have 3 groups: pre 6 months, 6-7 months and post 7 months but each of these has subsets of eating gluten in pregnancy or not ... and breast feeding... -
Your anger and frustration are all very understandable but lets instead adress how lucky you are. Congratualtions do you know how many people think you are lucky Well, you're not and you are not going to be parting this world anytime soon leaving two small boys! Step back. Today in surguries across the world thousands of Dr.s...
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ARCHIVED Not Really Understanding Some Things About This Diet...
gfp replied to Chrisser's topic in Coping with Celiac Disease
Gluten is classed as an exorphin, it binds to endorphin receptors however less perfectly than the opoids and casuses damage to the receptor. On top of this the mechanism which allows the glaidin's to cross the gut blood barrier are usually also present in the brain blood barrier, which is largely to do with increaded zonulin levels. There is a lot... -
ARCHIVED Doctor's Note For Travel With Food
gfp replied to jesscarmel's topic in Traveling with Celiac Disease
Given they are not even letting pilots take contact lens solution (and hence willing to endanger everyone on the plane) This strikes me as a weird thing, the pilots are behind a bullet proof door and flying the plane but they would smuggle on a bomb when they could just crash the plane???? I'm afraid at the moment 'medical need' is going to mean real need... -
Lister, 90% of the problems you describe can be caused or aggravated my stress. Stress causes more stomach acid and more stomach acid causes your symptoms and stresses you out.... Everyone gets 'worrying' things ... if its a one off its not a problem but if you stress over it you will just make the acid problems worse.
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ARCHIVED "wine Will Heal Your Intestines Faster"
gfp replied to thenamesbabe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Everything we eat or drink is a poision to some extent or other. Enough water will kill you in excess. I'm sure the antioxidants found in wine can be found elsewhere too (green teas?) but if you are just not drinking because you think its "bad" then a glass of wine with a meal isn't going to hurt either. -
ARCHIVED Diagnosis Trouble In The Uk
gfp replied to Kyalesyin's topic in Introduce Yourself / Share Stuff
It depends what the Dr. will write on a single prescription I think.... If he/she words it as a 6 pack of loaves then it counts as one item ... and also 'guidelines' from your NHS trust. It can be affected by things like the same Dr. having a speciality in something requiring very expensive meds so having more than the average number of patients on high... -
Carla (jcc) has saved The Gluten File here: Open Original Shared Link
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ARCHIVED Could Pregnancy Have "triggered" Celiac?
gfp replied to maddycat's topic in Related Issues & Disorders
As many people keep pointing out you have gluten intolerance or not. Just like you can't be a little bit pregnant ... Read the honeymoon thread (when it goes away in kids) If you have gluten intolerance then your body is reacting... however our body is doing things all the time .. for instance the stomach lining is replaced very often... (daily I... -
ARCHIVED Diagnosis Trouble In The Uk
gfp replied to Kyalesyin's topic in Introduce Yourself / Share Stuff
It sux... the thing is CUK is automatically informed (anyone wondering about privacy here) when postive biopsies are done. They steadfastly refuse any other sort of diagnosis but .... I know they do make exceptions on membership... at one point they wanted to get rid of all parents who were not themselves diagnosed ?? (strange since to work for them in... -
ARCHIVED Another Helpful Website For Us
gfp replied to Fiddle-Faddle's topic in Gluten-Free Foods, Products, Shopping & Medications
Can I just speak out for another member..???? Carla, hope this doesn't break a bandwidth limit for your site Open Original Shared Link This is an almost definative reference on anything and everything gluten like. It is hundreds of hours, perhaps thousands of research and categorisation of papers, usually of medical/scientific level, specifically... -
Hi Carla... (stevel) have you heard from Paris Hanna recently or at all? I think she is your side of the pond at the moment for sad reasons.
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ARCHIVED Crippling Exhaustion/oversleeping
gfp replied to Kyalesyin's topic in Related Issues & Disorders
If she was on any psychoctropics then I'm not surprised. Omneparazole has recently been pulled off the UK list for under 18's but also has been shown to have a very worrying suicide risk in non suicidal patients. All psychoctropics are IMHO very dangerous outside of direct medical supervision and they are given out like candy. The way they work is intrinsically...