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gfp

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Everything posted by gfp

  1. gfp
    If this was the only test done then its not much to go on. If you have other test results it would help, if not then you should probably get them done. A negative biopsy by itself doesn't mean much... it could mean bad sampling, it could mean she is lucky and not yet damaged but reacting or it could mean its something else completely.
  2. gfp
    As far as I know there are no real differences in haplotype R peoples which includes celts and italians. The numbers from screening are available in different countires but some like the UK have hidden them from public view. Italy has a screening rate of 1:133, identical to studies in the US but has a diagnosis rate of 1:200 .... There are local...
  3. gfp
    Hi.. me again! First off I have to agree 100% with eleep. but on top of this you should consider depression, its very common with gluten and gluten withdrawal especially. If you want to know why ask and I'll explain. Indeed I can provide links and explanations to any of this but my posts tend to be long enough as it is. Also you just...
  4. gfp
    Not totally off-topic.... but is Clamato gluten-free?
  5. gfp
    i agree totally and just want to add that the UK has come a long way in the last 5 years and as for 10 years ago being a celiac is far simpler. Once testing catches up you can expect life to be completely different. I say this having just returned from Italy where kids are routinly screened pre-school. You can find certified gluten-free resto's allover...
  6. gfp
    Its also possible they were all CC'd except certain flavors and that " i was eating a bag a day " eventually caused a build-up reaction.
  7. gfp
    And the celaics..... I was bottle fed, my mother is celiac (not diagnosed until 65 though) my brother was breast fed and is non celiac. My mother would have been eating gluten in both pregnancies. I thought you might find it interesting love the avatar: put down any hot liquids and click Open Original Shared Link Yes...
  8. gfp

    ARCHIVED Celiac Sprue & Doctor Too!

    gfp replied to RKB-MD's topic in Doctors

    Roast guinea pig?
  9. gfp
    Actually this gives a possibility to perhaps offset this The two celiac antibodies are both unique in respect to two things... IgA is specific to being tranferred through maternal milk.... IgG1, IgG3 and IgG4 cross the placenta easily and are transferred duting pregnancy. With suitable hormones the two could be split, one mom carrying and one...
  10. gfp
    Can I recommend a book? The Kensington diet, author Steven Twigg..... Its a Hay's diet/food combining book but also adds cycling of "bad foods" and I find this does help me from time to time.... he also has a bunch of recipes largely gluten-free but also missing out other food groups.... There is a sequel (isn't there always) which is recipees...
  11. gfp
    As I mentioned earlier, I really don't think this has anything to do with DS kids, except being an easy target... Get ready for this to be used in a more general approach.... ADHD? Asperger's? and here it starts already. Size is trying to conform with original article see above... bold is mine. Open Original Shared Link So... they have...
  12. gfp
    If you are brought up gluten-free by two gluten-free parents then I doubt this will ever be an issue. The only issue is the child being classed as "different" at school but this is changing very quickly and you are 5 years away from school. Not to mention the child is going to in some respects deal with being different either way... Your partner...
  13. gfp
    First suggestion is change Dr..... easier said than done ! But you can visit friends/family and see their Dr. as a guest. cost = minimal Otherwise I suggest taking a vacation to Italy and then visiting an emergency room. cost = £29... + cheap hotel. riskis they might not want to do tests which involve follow-up. You would have to be specific ...
  14. gfp
    This is true but a little aside. I know I wouldn't be the one to get the cold, I don't get colds or most other viral/bacterial infections and if I do very very rarely. I don't remember my last cold but I know its more than 5 years ago. The thing is I'm not sure I ever had colds.... at least often. My colds were always out of synch with everyones...
  15. gfp
    Having free sugars in your blood causes cell degradation of the bonding collagen. This is one of the least frightening aspects of eating lots of sugar.
  16. gfp

    ARCHIVED Celiac Sprue & Doctor Too!

    gfp replied to RKB-MD's topic in Doctors

    I agree .... but it is also an awareness thing. Those seats on planes are awfully close together.... back in the "carry on days" i would take my own food and have someone next to me from my perspective "throwing" bread crumbs into my carefully prepared gluten-free meal. Hence I learned to wait .... then ask the person to please be careful, I have an...
  17. gfp
    Bombay saphire? Please... just use the search feature. We have discussed this to death and it can't be proven either way. In theory it should be safe... but many of us do react. The overal chemistry is very simple but the detail of that chemistry is very very complex and not something can be solved by this board. What it comes down to...
  18. gfp
    I think you just covered what I was trying to say. What worries me is that we don't know the details here and we don't know the circumstances and we don't know a lot. The same dr. may have said the same to many others... the kid might have behavioural problems ... we don't know... for all we know the kid might have been given 3 years to live ! Please...
  19. gfp
    Not to reopen the debate, I agree with both of the above. My experience with grain alcohol is I react to either more than a single measure and/or repeated ingestion. I am often able to get away with one..(I try not to but picking up a vodka and X instead of rum and X).. but if I do this a couple of days on the run then it gets me. I say this because...
  20. gfp
    Then I think you have your answer. I agree, your blood tests are positive ... if the biopsy is negative then you just cast doubts as to sampling, expertise and in your own mind. I don't think a well sampled and interpreted test is going to be... but why put yourself through it and eating gluten for weeks just to get this extra cert. Your options...
  21. gfp
    As far as I remember the chance of a false positive from a full celiac panel is down to lab errors or accidents. Various tests only kick in at certain damage levels .. once the gut is damaged and the antibodies make it into the blood ... You can start here Open Original Shared Link and then follow the related links. The enterolab tests aim at...
  22. gfp
    I think I would send off for the enterolabs kit.... I think it is the most sensitive in terms of exactly what it detects but then you would have a definitive answer. Lets hope it is celaic, its easily treatable just by diet and if you are really really strict, especially at first pretty quick... Quite a lot you describe sounds fairly classic ......
  23. gfp
    I don't have any instant reaction but I have so far avoided them.... CC bothers me and the disputed status but mainly I just think if I do eat them Im always going to be wondering when I get caught out "was it the oats?"
  24. gfp
    Last year i had a funny episode for perhaps a week. I thought I'd been glutened at first because i got a fever and D and then my keyboard started growing and shrinking and the screen doing the same, all very very weird. Then other things started doing it ... not just growing but distorting ...like watching shapes form in clouds..?? Then i started with...
  25. gfp
    This is largely the point.... We don't know what figures this study used but we do know they were talking costs per year of life saved. I would hazard a guess that they choose the worst possible figures to make the case.... Yes your correct but then that's what Im trying to say..... I don't think this is isolated as much as a cheap shot....
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