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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by gfp
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True and the protein is also very weird. I forget exactly which but they are almost exclusively made of one essential amino acid.... Not dissing this but don't confuse what taste you burp with what causes the reaction. My mother refused to beleive gluten had anything to do with her GERD because she always burped (insert strong food here) ...
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ARCHIVED Celiac Disease Putting A Strain On Marriage And Life
gfp replied to tsomo's topic in Coping with Celiac Disease
I'm replying to this because others have pm'd me to say my comments were helpful. However compared to some of them you are in a great position .. honestly. First off you have recognised this problem BEFORE it becomes too destructive. I really can't overstress how valuable that is.... Second, if you are being CC'd one a month then you need to... -
ARCHIVED 2 Celiac Panels, Run 21 Days Apart
gfp replied to jayhawkmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ahh..then this explains why they reran since your IgG is elevated but not your IgA. Just asking but you are not pregnant are you? -
ARCHIVED Diagnosis
gfp replied to ADSayegh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree and you can take a blood test anyway, As a definitive test that we certainly don't all know is the biopsy. The biopsy shows damage to your villi from the sample points at a point in time. If you go gluten-free then the villi repair (to differing extents) but celiac disease is a lifelong condition. Aiming to have a +ve biopsy is a little... -
So you want the bad news or good news first? I hate to be the one to break the bad news but a gluten-free diet is nothing like Atkins. Its a shame your GP didn't make this clear but obviously he/she didn't. gluten-free isn't about cutting down gluten, its about eliminating gluten from the diet. It might sound similar but you can't just...
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ARCHIVED Healing In Older Celiacs Vs. Younger Celiacs
gfp replied to trents's topic in Related Issues & Disorders
Well spotted and posted. I thiunk its really interesting because until something like this is identified noone can work on a way to repair or reduce it . -
ARCHIVED If Gluten-intolerant/what Do You Tell Medical People?
gfp replied to oceangirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If I wasn't diagnoses I wouldn't hesitiate to tell them you have celiac, don't mess about .. they are likely rushed and busy so anything should be as clear and simple... they should in any case ask about allergies. -
Most stuff has soy sauce either in it or is cooked in a wok which isn't washed after cooking it so this tends to miss out the theortically XXX is gluten-free. Its a shame because a lot could be gluten-free easily but in my experience the cheaper places just don't take the trouble. If you go to a decent Chinese resto it will be regional, its a huge...
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I think there are two seperate issues: Firstly is if the fries are truly gluten-free, very low gluten-free or not .... if you are talking about a chain then this is usually consistent and everyone can read the disclaimers and publicity. Secondly is CC. One McDo might be careful and another not.. same with BK... its really all down to the manager...
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ARCHIVED 2 Celiac Panels, Run 21 Days Apart
gfp replied to jayhawkmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks like you should have had a TgA since you appear you may be deficient in IgA making that part of the test invalid. This is possibly why they reran the test because the IgG and IgA are conflicting but that they didn't measure TgA possibly indicated they are a bit clueless. -
Pretty much what I was going to post .... I think even with casein I have mild reactions but if I'm otherwise healthy I can put up with them. The effect is nowhere near as strong as gluten for me but I do get awfully bunged up.... If you end up with a sinus infection or similar then this can be a real pain but otherwise is mostly an annoyance.
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ARCHIVED Symptoms
gfp replied to M-3 Gal's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If this isn't a typo: Why blame the safe food - I would think that the 'safe food' is pretty irrelevant in this. You have been eating gluten and it has built up, if you were gluten-free before then it takes a certain amount of time for the damage to build up and start some of the peripheral symptoms. (I feel sick, body ache, etc. ) -
ARCHIVED How Much Gluten Do You Have To Eat
gfp replied to acousticmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From Vincents link However if they have been eating random gluten outside then this will affect that too. The question is really one of cost.... you could send off NOW... and bear in mind it might be a false negative BUT knowing you will be able to take them off gluten now if its positive. I would guess most insurance companies would not be happy... -
ARCHIVED Questions About Inhaling Wheat Flour And The Soy Family
gfp replied to Sarah8793's topic in Coping with Celiac Disease
There is a completely seperate illness which is reasonably common within bakers from breathing in the flour which is unrelated to celiac disease. However if you have celiac disease as well then any particualates you breath in above a certain threshhold are transported via the mucous into the digestive system. The bakers can often eat gluten if they... -
ARCHIVED Reading Dr. Green's Book And Feeling Angry
gfp replied to Sarah8793's topic in Coping with Celiac Disease
The situation that progressive doctors are in is a little like someone in aincient Rome coming up with the idea that lead water pipes are bad for health. People just don't want to know and it goes against much of what is viewed as being a 'civilised' society. Of course we can look back now and be horrified that the Romans not only thought lead was... -
I was really just trying to point out how innefficient walking is as a way to burn calories but seriously it wouldn't be a bad thing to encourage people to exersize thier mind as well. Heck the most efficeint weay to burn calories is to be really depressed and worried... divorce or death of a loved one can both shed pounds but are hardly recommended. I...
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ARCHIVED I Am Confuse
gfp replied to Tavi2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Robbin, You are really lucky (you might be confused right now but you are). Many of us spent years trying to find out what was wrong, being passed off as hypochondriac's etc. and then subjected to gluten trials... and poinltess biopsies and your Dr. is missing out on all this unnesassary expense and discomfort. It might not seem lucky... -
I think the problem is she thinks she is doing the 'right thing'. Refusing paid advertising is obviously going to cost money and people don't do that without at least believing they are doing good. Hence I think an appropriate response might be along those lines that : 1) If it can be adsorbed or not it can certainly be ingested ... from the skin....
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ARCHIVED So, What Did You Have Or Tea Tonight?
gfp replied to Kaycee's topic in Gluten-Free Recipes & Cooking Tips
I went to see a band at a free concert. So I took along a marinaded chicken sandwich, chicken breast marinaded in cajun spices with homemade mayo, artichokes and zuccini cooked in olive oil and garlic with the bread (semi cooked gluten-free bagette) cooked with olive oil soaked with garlic and basil washed down with 2 bottles of white burgundy. ... -
If your mother doesn't smoke you could invest in a packet of cigarettes and ask her to finish them in one go before you talk about celiac disease further. (it could even be virtual) Obviously she won't .... but the point is many people smoke 60 a day .... of course its damaging them but the reaction is not the same as a non smoker sitting down and...
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Sometimes just being forced to look something up can be a good prompt
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The other 'secret' with coolers is don't leave them open any longer than necassary. OK, its not a 'secret' as such but I think in general the importance is often overlooked and we keep wanting to check-up which just accelerates this. If you avoid opening the bag to check it lasts much longer... if you are worried then you can stick a small thermometer in...
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ARCHIVED What About Medical Braclets/necklaces?
gfp replied to dahams04's topic in Parents, Friends and Loved Ones of Celiacs
I keep my passport and other stuff on mine. 3 yrs ago on vacation I lost my wallet with ID, driving license and everything ... I found a internet cafe and printed out the relevant stuff and my bank details, photo ID etc. and my girlfriend who had previously laughed at the idea asked for one for her birthday. Adding medical info is a great idea... -
ARCHIVED Bottle Of Water Turns Woman Into A Festival Outlaw
gfp replied to angel-jd1's topic in Publications & Publicity
Good point. The problem with this sort of thing is simply that organisers can always hide behind "But what if it contained alcohol or drugs" and the counter argument is from a diabetic standpoint ... but I need my drugs! I think its one of those situations that has pro's and con's and the unfortunate thing is that even if the good reasons outweigh... -
ARCHIVED Reading Dr. Green's Book And Feeling Angry
gfp replied to Sarah8793's topic in Coping with Celiac Disease
Open Original Shared Link Its not that I am 100% animal testing, certinly not for something to cure cancer but this is the pointless sort of experiment... in a vain attempt to prove smoking doesn't cause respitory diseases.... I fail to see the point... Testing some kid for 7 yrs just to get a result of damaging his villi falls into the same category for...