celiac3270

Probably another intestinal problem triggered it for me... (malrotated intestines) ... if it's possible for that to trigger it.

Yes--slightly more often in women--I'm just saying that it's not greatly less or RARE in men.

There's nothing like a good NYC bagel (I know, I used to eat them every morning). There are substitutes you get used to, but they are lighter and not really bagelish (Glutino makes an okay "bagel" that I now eat every morning).

There are actually some really excellent pizzas. For frozen pizzas, Foods By George makes a phenomenal one, which is also ridiculously expensive--a treat. Chebe makes an affordable mix (just add eggs & water for crust and then top with sauce, cheese, etc.) that I learned about in my first month and shared here--I converted quite a few .

-celiac3270

EDIT: Forgot to mention, if you live in the NYC area, go to Risotteria -- the best eating experience I've ever had! Risotteria.com

Did you know that for a guy to have ciliac is very rare. Males don't noramly fet ciliac, it is manly female and that is why there are more girls on this site than boys. Also ciliac is genadic. I got it from my mther who got it from her mother and so on and so forth, we also all have cancer and my granmother died when I was little because ciliac had formed a cancer within her system. Its rather scary if you think about it. I mean we cant ear gulten but then agin we need so of the foods to survie. I wish so much that I did not have this treble illness as do most of you out there I'm sure. sad.gif

Actually, not really. It's just that males are diagnosed less often than females, maybe because they handle symptoms differently(?) and just ignore it rather than going to a doctor. I believe females get it slightly more often, but it's certainly not "very rare" for males to get celiac.

Also, I think females may prefer to discuss it more than males, who just--I guess, deal with it, but not discuss any emotions behind it.

And it is genetic, but that doesn't really play into this idea of males v. females ... it just means that it will often run in families.

Oh yeah, I've seen that one before!

Swiss Miss is gluten-free-- I verified and drank.....

I take Centrum, a calcium supplement that they just stopped producing that was free of nearly everything, and a folic acid supplement (pretty easy to find--mine said gluten-free on the package--made by CVS pharmacy).

While there are Canadian lists, the Delphi list does apply to Canada under some circumstances (you just need to be careful). For example, smarties are mentioned for both countries. See Karen's postings under this thread:

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You can download directly from them, going here:

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Thank you!!!! It's difficult to find all of the abstracts in one place like this--very helpful!

There are actually two articles. Both are available online:

I hope you are doing well. Two articles about celiac disease appeared in the Wall Street Journal Friday, December 9, 2005! One of the articles was featured on the FRONT PAGE!!! Both articles will be available to non-subscribers of the Online Journal for up to seven days after it is e-mailed. You will want to review the articles ASAP to ensure viewing capability.

The links are below for your convenience (CTRL + Click to follow link)…

WSJ.com - Belatedly, an Illness Of the Intestines Gets Notice in U.S.*

This article is on the front page!

WSJ.com - Not So Special

This article is on page W8.

All the best,

Cynthia

Cynthia Beckman

Director of Development

Celiac Disease Center at Columbia University

161 Fort Washington Avenue

Suite 645

New York, NY 10032

Tel (212) 342-4529

Cell (646) 812-1212

Fax (212) 305-6443

www.celiacdiseasecenter.org

Sorry, the links didn't come out in the copy and paste. Here are the links in order:

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Open Original Shared Link

Hello...

I'm nearly 15 and I was diagnosed about two years ago. I am actually really amazed that people are that mean. I've had one run-in an with immature moron who flicked crumbs at me (we don't go to the same school anymore), but for the most part, I've found that people are really understanding. Then again, the general consensus seems to be that males are much more understanding (or maybe apathetic?) about people having it, whereas girls tend to be really mean-- I go to an all boys school.

I'm pretty similar to Jackie wih regards to her numbered responses: (1) I, too, have never cheated or wanted to. I know what the food tastes like, but it's not worth getting sick for a slice of pizza or fitting in. (2) My friends do not wave bread in my face, and furthermore, actually ask where we could go that I would also be able to find something to eat. (3) I also don't really care if teachers (or other students) bring in food. There were donuts a few days ago, but I know I'm not going to eat them, so as long as kids keep crumbs to themselves (as they do), I don't really mind. The teachers aren't trying to make you feel left out--it's well intended. (4) While it's easy to slip into the role of being the odd one out, don't let it happen. It's lonely--try to get people to accomodate to you if you're going to eat (or avoid eating situations altogether). The third option is just to go with them and not eat. You can still drink a Coke and enjoy the company.

PMs/e-mails welcome

-celiac3270

Absolutely! It's CELIAC! And both the made up Santa impersonator and the skinny Santa have it. The fake Santa (big, plump, red suit Santa) has Celiac disease--he actually suffers from distention, painful bloating, etc. Being that he is eating gluten at every house, the bloating is persistent, hence the drawings immortalize this. "Real" Santa, as you mentioned, consumes gluten-containing ingredients, but rather than bloat, stays very thin--malabsorption, no doubt. That would also explain his very short stature.

Well, here's our celiac celebrity.

It is--we're covered under the Americans with Disabilities Act. Your school is required to make accomodations for you--either providing gluten-free food or allowing you to bring your own.

I have to agree with CeliacMe, Rachel, and the others on this issue.

Without going into a full-blown historical summary of wheat in our society. First off, I am going to temporarily disregard the Bible with regards to timeframe, wheat references, etc.--not trying to offend anyone. OK, so humans (in some form or another) were around for hundreds of thousands of years. Wheat was only introduced to us 10,000 years ago. Hence, our digestive systems had already evolved for tens of thousands of years without being exposed to wheat. We cannot digest something like 15% of wheat. Dangerous Grains, a book you condemned with sweeping generalizations and without having ever read, illustrates the negative effects wheat has on people. I'm a skeptical person, but I believe them.

Furthermore, the "wheat" we eat today, as mentioned by others, is not the wheat of 10,000 years ago. We have engineered wheat to make it contain more gluten, make it worse for us. And actually, some doctors speculate that the most primitive forms of wheat, if cultivated today, would be OKAY for celiacs. It's this new genetically modified, gluten-packed wheat that is detrimental to general health: they're changing it because it tastes better and grows more plentifully in that form, but as a result they are changing general health for the worse.

Celiac is NOT rare. Celiac was once thought to be rare, with 1 in 5,000 thought to have it. But over the past ten years, the number was whittled down to 1/133 and now it's down to about 1/100. I do not think that 1%, or 2.2 million Americans, is rare. And for purposes of comparison: more people have celiac than Alzheimer's (2 million). The number of people with celiac is comparable to those with parkinson's, autism, ulcerative colitis, and chron's combined. There are more Celiacs than people with rheumatoid arthritis (2.1 million). More people with celiac than Lupus (1.5 million) and multiple sclerosis (330,000). There are more celiacs than type 1 diabetics (1.7 million). Or to put it further into perspective: 6% of women with unexplained infertility have celiac, 6% of people with type 1 diabetes have celiac, and 12% of people with Down's syndrome have celiac. It is by no means rare--it is certainly underdiagnosed and underrecognized.

Pick up the paper, read the obituaries and look at what people are generally dying from. Top of the list? Heart disease, hypertension, cancer, diabetes, gun violence, HIV, alcoholism. If general gastrointestinal disorders were mentioned a lot as a cause of death then I'd argue that Celiac is probably way more common than we ever imagined.

Yes. Well, that's because, to be perfectly technical, no one dies from CELIAC. They die from complications that are celiac-related: cancers (lymphoma), diabetes, kidney/liver diseases, various neurological problems, etc. There are lists on this site... well, might as well copy and paste--I acknowledge that not all contribute to death (such as short stature), but I'm emphasizing that celiac causes other problems, so someone will say "Died of malnutrition" rather than celiac--because it was malnutrition as a result of celiac... etc.:

* Abdominal Distention (children)

* Abdominal Pain, Steatorrhea

* Anemia - Folate-Deficiency / Iron Deficieny / Pernicious

* Arthralgia or Arthropathy

* Arthritis - Rheumatoid

* Carcinoma of the Oropharynx, Esophagus, and Small Bowel

* Collagenous Sprue

* Dermatitis Herpetiformis

* Diabetes (Type 1) and Celiac Disease

* Diarrhea

* Down Syndrome

* Enteropathy-Associated T-cell Lymphoma

* Failure to Thrive (children)

* Hypertransaminasemia

* IBS - Irritable Bowel Syndrome

* IgA Deficiency

* IgA Nephropathy

* Kidney Disease

* Liver Disease

* Low Bone Mass and Celiac Disease

* Microscopic Colitis / Collagenous Colitis

* Nerve Disease and Celiac Disease

* Osteomalacia, Osteoporosis and Celiac Disease

* Recurrent Aphthous Stomatitis, Recurrent

* Refractory Sprue / Celiac Disease

* Sjogrens Syndrome

* Thyroid Disease (Autoimmune)

* Ulcerative Jejunoileitis

* Addison's Disease

* Alopecia

* Anxiety and Depression

* Ataxia

* Attention Deficit Disorder / ADHD

* Autism and Celiac Disease

* Autoimmune Hepatitis / Chronic Active Hepatitis

* Bird Fancieris Lung

* Brain White-Matter Lesions

* Cerebellar Atrophy

* Chronic Fatigue Syndrome (myalgic encephalomyelitis or ME, PVS, post viral fatigue syndrome or PVFS)

* Crohn's Disease

* Congenital Heart Disease

* Cystic Fibrosis

* Dental-Enamel Hypoplasia

* Dyspepsia

* Epilepsy (with or without cerebral calcification)

* Farmeris Lung

* Fibromyalgia and Celiac Disease

* Fibrosing Alveolitis

* Follicular Keratosis

* Gall Bladder Disease

* Gastroparesis

* Head Aches (Migraine)

* IBD - Irritable Bowel Disease

* Impotency

* Infertility

* Inflammatory Bowel Disease

* Lung Cavities

* Multiple Sclerosis and Celiac Disease

* Myasthenia Gravis

* Pancreatic Disorders / Exocrine Pancreatic Insufficiency

* Peripheral Neuropathy

* Polymyositis

* Polyneuropathy

* Primary Biliary Cirrhosis

* Pulmonary Hemosiderosis

* Recurrent Pericarditis

* Sarcoidosis

* Schizophrenia / Mental Problems and Celiac Disease

* Scleroderma

* Short Stature, Delayed Puberty

* Small-Intestinal Adenocarcinomas

* Spontaneous Abortion and Fetal Growth Retardation

* Systemic Lupus Erythematosus

* Thrombocytosis (Hyposplenism)

* Thrombocytopenic Purpura (ITP)

* Thyrotoxicosis

* Vasculitis

* Vitamin K Deficiency

No problems--ever. I'm much more likely to have issues at a more formal restaurant, actually.

LOL, yes, I thought you would say something like that . I have read Dangerous Grains. But if it causes damage, then it is, inherently and by definition, not gluten intolerance. If you have "gluten intolerance that causes different damage" and some other gene, it's probably actually just celiac that manifests itself in an atypical way. But gluten intolerance by definition means that it does not cause damage, but you may feel bad when consuming gluten. So it must be celiac or something like celiac.

Few believe me on this despite medical references, but actually gluten intolerance is not necessarily a lifelong 100% gluten-free diet. There are basically two definitions of gluten intolerance, one of which means 100% gluten-free, one of which does not:

1) Gluten intolerance can be a term used synonymously with celiac disease. If you look up some synonyms for celiac, you'll find things like gluten intolerance, gluten enteropathy, gluten-sensitive enteropathy, nontropical sprue, etc. These all mean celiac disease, but doctors will often use different names for it. So in that regard, saying you're gluten intolerant can mean you have celiac disease.

2) Gluten intolerance can also be used literally as meaning you have an intolerance to gluten. It is the same as saying, for example, that one is lactose intolerant. In people with gluten intolerance that is not celiac disease, you don't need to be 100% gluten-free. It is advisable that you limit gluten intake to what you can tolerate (as one would with lactose intolerance), but even if you don't do that, nothing is going to be damaged long-term. Of course, if you do this, you should really be sure it's not celiac. Make sure the lab is good, the right tests were run, the diagnosis of gluten intolerance was done with not only serologic testing, but also an endoscopy, etc. The big point I make, though, is that you're not going to be damaged if you have gluten intolerance and eat gluten.

Absolutely--terrific pizza.

Pinning is a system unique to this board. Topics not pinned (labeled as being relevant and legitimate) move to the back pages of the section. Once pinned, a topic comes to the front and is organized by time when the last post was made. Only moderators can pin topics.

Excellent idea to bump this, Deb. Thank you.

I use Whole Foods for sandwiches, but Ener-G tapioca loaf for situations where a somewhat sweet (?) bread wouldn't be suitable. Ener-G for a hotdog "roll"..., etc.

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Have you heard of "Stevia"? It's supposed to be sweeter than sugar, but not have the same effect on your body as sugar. It comes in different forms - liquid or powder- . Sorry, I haven't really researched it enough. But if you're sugar sensitive, it may be just your thing. You could get sugar free cocoa add the stevia and melt it down for yourself. Maybe that would work? Oh, and the Mesquite flour I use is sweet and chocolatey but has no sugar and is supposed to be healthy. www.Lame Advertisement.com

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I add it to my cinnamon chebe and it tastes just like a cinnamon raisin bagel from Brueggar's.

In some magazine, Real Simple, my aunt noticed a section on artificial sweeteners. Since you mentioned Stevia, I thought I would share some of this with you. It's the November 2005 issue, on pages 207-213. I am very briefly outlining each:

---------------------------------------------------

SPLENDA -- surprisingly, they basically said it's the least controversial with regards to safety, and most feel it tastes the best. The FDA has evaluated it, there's nothing wrong with it, etc. We've (we on the board) speculated that it can give some GI problems, but that's not mentioned in the article.

XYLOSWEET -- generally recognized as safe, main concern is that when eatedn in large qualtities, sugar alcohols can cause bloating, gas, diarrhea. Few health concerns with them, but stick to products containing erythritol to avoid intestinal problems.

EQUAL, NUTRA SWEET -- Although rumors link it to everything from Alzheimers to brain tumors, none of these allegations were based on conclusive research. One of the chemicals in aspartame, however, may cause a severe reaction in those with a rare condition called phenylketonuria (PKU) when consumed in large amounts. May be trigger for those with headaches. Widely considered fine, but abstain if you get headaches after consuming it or have PKU.

SUNETT, SWEET ONE -- ADA and FDA said it's harmless. CSPI has expressed concern that it may be a carcinogen. Question about safety, but usually used in minute amounts or in combination with others, so experts see little reason for worry.

SWEET'N LOW -- In 1972, FDA linked it to bladder cancer in male rats, five years later proposed a ban on it after a third study yielded hte same results. Further research found the rat study wasn't pertinent to humans. National Cancer Institute found an association between consumption of 6 or more servings of saccharine (or

more than 16 oz of softdrinks) and bladder cancer in humans. Saccharin is controversial, so avoid when possible.

STEVIA -- Marketed as a dietary supplement, so it's not subject to FDA approval. No evidence that it's harmful, but inadequate evidence of its safety, so hasn't been given GRAS status and can't be used as a food additive. The jury is still out, so use stevia with caution.

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So Splenda sounds good--I always thought badly of it before reading that. I still would avoid artificial sweeteners when possible-- sugar may be bad, but you know what it does and it won't give you cancers--not so with these nebulous warnings on artificial sweeteners. Stevia sounds ok, but I'd rather not use something that hasn't been tested.

-celiac3270

Where's the link for today's active posts? I can't find it.

Thanks,

Matilda

Scroll down to where it shows the members who are on the forum. Then look right above that where it says board statistics. It's there-- or in other words, go to the place where it has links to today's top 10 posters and overall top 10 posters and look to the left of those.

Yes, I know what you mean. I think there are basically two options:

1) As Kristina said, log out when you leave. That way if you come to this site, you are logged in as a guest and your new posts list isn't disturbed.

2) Go to "today's active topics" (a link on the main page of the forum). Then specify the time range: you can't say specifically, say, four days, but you can say 1 day, or 7 days, 30 days, etc.