celiac3270

Say what? I'm not, but a LOT of people, particularly under the "17 with celiac" thread, are seventeen.

I, too, think it's a matter of opinion. In the beginning I told anyone who questioned my food or whatever. Now, I like to do as little explaining as possible. If someone offers me something (like a cookie), rather than going into a full-scale lesson on gluten intolerance I prefer to just say "no, thanks". I only like to explain the whole thing to people who I know I'll be spending a lot of time with; for example, I think relatives should know so that they can be better accomodating to dietary needs. I don't really like to talk about it too much with non-celiacs.

Here are some recent posts you made:

Open Original Shared Link -- breastfeeding

Open Original Shared Link -- lactose intolerance vs. Celiac symptoms

Open Original Shared Link -- think husband has celiac disease; this topic was already pinned, but not sure if you saw it.

One of these should be the post you're looking for.

Kathy, when you post something, it won't show up on the first page of whatever forum you posted it in. Rather, it will move all the way to the back. When a moderator reads it and pins it, it'll come to the front. Additionally, a moderator can move your topic and pin it under a different forum.

While we are talking about soda, I have not seen my FAVORITE types of soda listed here. Neither one contains any kind of carmel I would think, since the color of the soda isn't dark.

The kinds would be Mountain Dew & Code Red Mountain Dew.

By the way, Glen4Cindy, this means that Mountain Dew and Mountain Dew Code Red are gluten-free....

Yay! I checked with Pepsi on the internet; they have some feature called "ask lisa".....it's like a search engine. I typed in "gluten free" and one of the results: are pepsi products gluten free? They say that ALL Pepsi products are gluten-free and none contain gluten! That encompasses everything such as their other soft drinks and non-carbonated beverages.

My opinion is that unless it's some medical book that contains celiac disease, it's not going to tell you much that you don't already know. There are a fair number of books, but they all seem to be quite similar: forbidden ingredient lists, how to deal with it, no cheating, what's the disease, etc. You already know that stuff.....celiac disease books are good for newbies, but after the first few months you're beyond them.

I have celiac disease. Nobody else in my family does according to tests, although my mom, grandmother, and brother all have problems that would make you think they had it.

Grandmother -- EXTREMELY SEVERE osteoporosis

Mother -- Bloating, distended stomach after eating gluten

Brother -- Low weight (exact size/weight I was at his age...very thin).

The doc. thought it was likely that my brother had it and this question is concerning him. The GI tested him about 6 months ago, as soon as I was diagnosed, and then tested a month later in disbelief at negative bloodwork. He has the gene, I think, but not celiac disease.........I don't really know too much about this; does this make sense? Having the gene, I think, means that he could develop celiac disease at any time due to a number of factors that include high stress......I don't remember the others. If he has the gene, but not celiac disease, does he need to be on a gluten-free diet? We're gonna ask my new celiac doctor about this after we get my symptoms under control, but I was interested to hear what people here thought. Will he need to get tested many times in the future to make sure that it hasn't developed into celiac disease? I know that there is always the possiblity of inaccuracy on the bloodwork, but I was just wondering about this gene thing. Thanks.

-celiac3270

Wow......many, many, 17 year-olds.........see, stargirl? I told you there were a lot!

Seems like a lot of 17-year-olds on the board

All chocolate rules!!!!!!!---but particularly Nestle's Treasures and Reese's Pieces.

WOW!!! Hold on a second...I know that reg. Reese's and the white chocolate ones are gluten-free, but I thought that the Reese's Pieces contained gluten! Anyone know?

I've heard about some "Bob's Red Mill" (or similar) flour...this way you don't need many different flours. One common baking ingredient is xanthan gum, but I would suggest using mixes at the beginning -- some of them can be really delicious and amazing.

Kathy made some good cross-contamination suggestions. Get new pots, pans, toaster oven, wooden spoons, collander, etc. You do need to be conscious of what you touch. If you're making a gluten-free and regular pasta at the same time, make sure that a utensil you use to stir the regular pasta doesn't touch the gluten-free one. Don't put anything in the microwave or on a countertop--use a plate. Don't double-dip anything (cream cheese, butter, pb, jelly....don't remember if this was mentioned). Finally, don't eat anything that you question. I don't cook gluten-free...well, don't cook beyond using mixes, so I can't really help, three. Good luck.

-celiac3270

Foods By George English Muffins

I'm 13.......have been on diet for 6 months.....there are a lot of teens here with celiac disease, particularly 17-20 year-olds.

It was kinda interesting.........I didn't really think it'd hold up, but was interested how many June celiacs we had here.........this did seem rather unbelievable, but I gave it a try!

To anyone trying the Chebe pizza: do not buy the pizza crust mix; the regular bread mix works MUCH better.

Thank you to everyone who took my suggestions

This raised a lot of conversation on other boards/groups I visit....how many of you were born in June? I was born in Jan., but quite a few mentioned being born in June....or experiencing problems affiliated with their birth month. I was born in January. My mom, (april) has arthritis; one of the things listed under her month. It's pretty interesting, I guess.

Here's how your birth month can affect your health life

Asian News International

London, July 28

The month in which your are born not only has a bearing on your destiny but also on your health.

According to a report in This is London, a number of new researches have revealed that the month in which you are born has a profound effect on your health in later life.

The scientists have found that in many cases, genetic susceptibility can be 'switched on' by infection at the time of conception or birth and different seasons carry conditions which are more likely to affect a pregnant mother and developing foetus.

Though the scientists are unable to explain all of the findings and some are just theories, here is a listing that can help you to identify how healthy you would be later in life, depending on your month of birth and chalk out a prevention chart for susceptible diseases.

January: January born people have an increased risk of heart diseases and epilepsy. Alzheimer's disease is also found to be common in January borns.

February: People born in this month usually suffer from depression and schizophrenia. Also, there are high chances of obesity. Probability of birth of twins is also high in this month.

March: Autism is a common disease for those born in March. Also narcolepsy, a sleep disorder is most common in the March borns.

April: Multiple Sclerosis, Anorexia and Asthma are some of the diseases that people born in April suffer from. Arthiritis is another common problem.

May: People born in May are more likely to suffer from Seasonal Affective Disorder (SAD), Parkinson's disease and dyslexia.

June: Those born in June nurture a risk of Coeliac disease learning difficulties and low weight.

July: July borns are more at risk of suffering from Down's Syndrome and have week bones and teeth. Hodgkin's disease is also common in children born in this month.

August: Crohn's disease, chronic inflammatory disease of the gastrointestinal tract and diabetes common for those born in August.

September: Attention deficit hyperactivity disorder, Rheumatoid Arthritis is common in those born in September. Also the females born in this month have higher rates of conception. Sudden infant death syndrome is highest for those born in September and lowest for April children.

October: Those born in October are more likely to suffer from Eczema and Multiple Sclerosis.

November: People born in November are most likely to be left handed and are also more prone to allergies and hay fever.

December: People born in December have a probability of living longer than average and are usually shorter at the time of birth. Also they are more likely to grow up to be agreeable people. Leukaemia is a common disease for December born people.

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Judy,

Really glad to hear that it took seven months and then you were better. From what I had read, it seemed to me that symptoms either left really quickly (0-3 months) or else took at least a year. I'm glad to hear that somebody felt better after 7 months; I hope I do! My new doc. gives me a lot of hope, too.......he seems to be really knowledgable.......thanks.

-celiac3270

I heard about this, too...

8-year-old's first Holy Communion invalidated by Church

By JOHN CURRAN

Associated Press Writer

August 12, 2004, 2:25 PM EDT

BRIELLE, N.J. -- An 8-year-old girl who suffers from a rare digestive disorder and cannot consume wheat has had her first Holy Communion declared invalid because the wafer contained none, violating Catholic doctrine.

Now, Haley Waldman's mother is pushing the Diocese of Trenton and the Vatican to make an exception, saying the girl's condition _ celiac sprue disease _ should not exclude her from participating in the sacrament, in which Roman Catholics eat consecrated wheat-based wafers to commemorate the last supper of Jesus Christ before his crucifixion.

"In my mind, I think they must not understand celiac," said Elizabeth Pelly-Waldman, 30. "It's just not a viable option. How does it corrupt the tradition of the Last Supper? It's just rice versus wheat."

It's more than that, according to church doctrine, which holds that communion wafers must have at least some unleavened wheat, as did the bread served at the Last Supper.

The Diocese of Trenton has told Waldman's mother that the girl can receive a low-gluten host, drink wine at communion or abstain entirely, but that any host without gluten does not qualify as Holy Communion.

Pelly-Waldman rejected the offer, saying even a small amount of gluten could harm her child.

Gluten is a food protein contained in wheat and other grains.

"This is not an issue to be determined at the diocesan or parish level, but has already been decided for the Roman Catholic Church throughout the world by Vatican authority," said Bishop John M. Smith.

"Hosts that are completely gluten-free are invalid matter for the celebration of the Eucharist," Smith said in a prepared statement released Thursday by the diocese.

Celiac sprue disease, an autoimmune disorder, occurs in people with a genetic intolerance of gluten.

When consumed by celiac sufferers, gluten damages the lining of the small intestine, blocking nutrient absorption and leading to vitamin deficiencies, bone-thinning and sometimes gastrointestinal cancer.

It isn't the first such communion controversy. In 2001, the family of a 5-year-old Natick, Mass., girl with the disease left the Catholic church after being denied permission to use a rice wafer.

Some Catholic churches allow the use of no-gluten hosts, others don't, according to Elaine Monarch, executive director of the Celiac Disease Foundation, a Studio City, Calif.-based support group for sufferers.

"It is a dilemma," said Monarch. "It is a major frustration that someone who wants to follow their religion is restricted from doing so because some churches will not allow it."

"It is an undue hardship on a person who wants to practice their religion and needs to compromise their health to do so," Monarch said.

Haley Waldman, a shy, brown-haired tomboy who loves surfing and hates to wear a dress, was diagnosed with the disorder at 5.

"I'm on a gluten-free diet because I can't have wheat, I could die," she said in an interview Wednesday.

Last year, in anticipation of the Brielle Elementary School third grader reaching Holy Communion age, her mother told officials at St. Denis Catholic Church in Manasquan that the girl could not have the standard host.

The church's pastor, the Rev. Stanley P. Lukaszewski, told her that a gluten-free substitute was unacceptable.

But a priest at a nearby parish contacted Pelly-Waldman after learning about the dilemma, volunteering to administer the sacrament using a gluten-free host.

She said she won't identify the priest or his parish for fear of repercussions from diocese.

On May 2, Waldman _ wearing a white communion dress _ made her first Holy Communion in a ceremony at the priest's church. Her mother, who also suffers from celiac and had not received communion since her diagnosis four years ago, also received.

But last month, the diocese told the priest that Waldman's sacrament would not be validated by the church because of the substitute wafer.

"I struggled with telling her that the sacrament did not happen," said Pelly-Waldman. "She lives in a world of rules. She says `Mommy, do we want to break a rule? Are we breaking a rule?"'

Now, the mother is seeking papal intervention. She has written to Cardinal Joseph Ratzinger, prefect of the Congregation for the Doctrine of the Faith in Rome, challenging the church's policy.

"This is a church rule, not God's will, and it can easily be adjusted to meet the needs of the people, while staying true to the traditions of our faith," Pelly-Waldman said in the letter.

For her part, Pelly-Waldman _ who attends Mass every Sunday with her four children _ said she is not out to bash the church, just to change the policy that affects her daughter.

"I'm hopeful. Do I think it will be a long road to change? Yes. But I'm raising an awareness and I'm taking it one step at a time," she said.

The Hershey's syrup is fine and vanillin is fine.....

Stonyfield Plain yogurt is gluten-free

Yoplait Custard Style yogurt is gluten-free (and pretty good....that's the yogurt I've been eating)

Yeah......I've always thought (or rather, since diagnosis thought) that it would be really cool to write a book on celiac disease.........I'm not going to try anything for a few years, but it sounds like a cool idea.

Fairways (huge store) has regular food downstairs and an organic/gluten-free section on the second floor--it's fabulous.....huge selection and since it's a grocery store, not a healthfood store, the prices are so much better!