celiac3270

Basically, it's all gluten-free, but some aren't tested, so the manufacturers will only guarantee a select few:

Coca-Cola Company (www.coke.com) (ve=7/29/04)

Confirms that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola C2, Diet Coke, Diet Coke with Lemon, Diet Coke with Lime, caffeine free Diet Coke, Sprite, Sprite ReMix Berryclear, diet Sprite, vanilla Coke, diet vanilla Coke, cherry Coke, Fresca, and our 100% juice products (without added ingredients) are gluten free.  *Additionally, we can tell you that all of our other products meet Codex's definition of gluten-free, which is less than 200 ppm (0.02%) gluten. Codex has examined the data and determined that less than 200 ppm gluten is below the level in which people with celiac disease would experience adverse reactions. However, at this time the U.S. Food and Drug Administration does not have a regulatory definition of gluten-free. We can assure you that the exact amount of gluten in these products is very low - perhaps even zero. Some minor ingredients in these products are manufactured from plants that gluten-sensitive people could react to, so we are unable to state categorically that they are totally gluten-free even though they may have undetectable levels of gluten in them. The Codex guideline provides a very low threshold for gluten content and exposures below this level are not expected to result in damage to the majority of gluten-sensitive individuals. However, extremely gluten-sensitive individuals should discuss consumption of these products with their health care provider.

Here's the link to the group, where you could register if you wanted to join, as well. Once registered, click on FILES, then I think the first folder says something about a restaurant list. Under that is the newest version. The folder name may be out of date and say something about 213 restaurants, but if you open it up, it will have only one file, that which is newest. Open Original Shared Link

Sorry, guys. The link didn't work for me either. I'll go step by step for those who are members or would like to become members.

Sent to all those above this post ----------------->

MOST of Coke is gluten-free...diet, caffeine-free, diet and caffeine-free, diet coke with lemon, etc. ALL Pepsi, co. softdrinks are gluten-free...that includes not only Pepsi, but Slice, Mountain Dew, and a number of other drinks......

Caramel color is one of those questionable ingredients, like modified food starch.

Michele, do you have very little mailbox space? I got a reply that the message didn't go through.

Sent through here ------------------------>

Susan, could you give me your e-mail address and I'll send it? I probably already have it, but I have hundreds automatically stuck in my address book, so I have no idea who is who.

Umm... where does it conk out? Let's start at the beginning.

You can get to the site, right?

Then click on files

Then click on the restaurant list folder

Then click on the file. If it conks out on this state, you probably need an updated version of Adobe reader, which you can get for free at adobe.com. If it messes up before, then I have no idea what's wrong, but it shouldn't be happening.

Yes-- the popularity of this article is acutally become difficult. You found it on Yahoo, someone else got it directly from AP, someone else from some local news station, and there are like 20 other newspapers that have carried it now...which is why it's been posted here three times now!!! Great article, great restaurant, though, so worth seeing again

ok...well, if anyone finds out what Tuesday the celiac one is on, let me know!

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Wow...this article is getting everywhere! Too bad these people (who wrote the article) don't realize it's not a gluten allergy...but great publicity for celiac and for a restaurant that is good to us.

Ok... I'm going to a new school next year and the nurse wants me (well, my mom, but my mom and I mutually agreed that I should make it since I easily know the most about Celiac in my family ) to make a sort of info. packet on what can and can't eat, how stuff has to be prepared, etc. He has actually shown some personal interest in this and both he and the vice principal have done a little research on Celiac to find out basically what it is. Now, these are the categories...I'm trying to keep it simple:

1) Basic Foods celiac3270 Can Eat -- they have a couple "retreats" (whatever those are) during the year-- 1-2 day things...away from home, in other words, my fate is in a kitchen of people who don't know about celiac. I'll bring my lunch to school every day, so I don't need to worry about that, but for the former, I'll need to make a list of basic things I can eat: rice (not prepared with chicken broth), meat (except when injected or with spices), potatoes, vegetables, fruits, etc. Sure I know what I can eat, but it's a monumental task to list all the mainstream/basic stuff I can have. This is the primary area where I hope to enlist your help!

2) Cross-contamination and preparation -- I can handle this one, but basically I'll just explain how my stuff has to be prepared--dedicated pans, the like. No gluten can touch it or it's contaminated.

3) Forbidden ingredients -- I'll provide the list from this site.

4) I'll offer to, if this is helpful, provide them with that Delphi mainstream gluten-free food list and/or restaurant chains that accomodate celiacs.

If anybody else has made a similar packet, I would LOVE to see how you wrote it and perhaps model mine off of that. Thank you for your help everyone!

Does anyone know when that show airs? I've never seen house and hadn't even heard of it, but I'll watch a celiac episode--just to see how it's portrayed and stuff, even though I won't know who any of the characters are.

Okay, new restaurant guide list out. It's now 153 pages (320 restaurants long). Compare that with your old guide to see if it's worth updating. If so, please give your e-mail address below. You need Adobe Reader to view it. Uhh...you can also download it from the site if you're a member of the Silly Yaks group (on the Yahoo groups). If you are a member, here's the link to the list, where you can save it and access it offline:

Open Original Shared Link

Get a phone number for the company, call them, and ask about distribution to health food stores. You could probably order on the phone...but have the health food store worker do that

How is it that my symptoms didn't show themselves till I was 49 and my daughter is only 25??

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I an answer that one. Okay, so you had the gene all your life. And you triggered it at age 49 (or beforehand and you just didn't get symptoms and realize it until 49). Triggers can be any number of things. Great amounts of stress, surgery, other intestinal problems, etc.

Your daughter had the gene as well. She triggered it much earlier, though, probably for one of the same reasons... (keep in mind, there are more triggers than this, I just don't remember them all). And there's always a possibility that she developed celiac a few years ago and just started displaying symptoms around the age of 25.

Oooh...the first two happen to be by far the least reliable...whereas the 3rd and 4th one are the best. I don't think you can really get a conclusive diagnosis from the Anti-Gliadins...

So it comes down to this:

1) Retest with the full panel, or at least the bottom three--no need to repeat the anti-gliadins that you already had done.

2) You could just say to yourself "I think I have it," and my doctor, even if he may not be right, thinks I have it. Therefore, with his "stamp of certification," I am qualified for any of the benefits any other diagnosed celiac gets, etc.

3) Either way, it is unorthodox in diagnostic procedures, though it is done so often, to skip the endoscopy. The endoscopy is the gold standard for diagnosis and so, either way, you really should have that done before starting the diet.

If you go with #1, go gluten-free immediately, #2, wait for testing, and if you go with either of those choices + #3, stay on gluten.

-celiac3270

Thank you! It appears the first link is now out of date......

Absolutely...their headquarters is in Seattle!

Shannon, do you want the list? I've been sending it out for a few months, now. Just send me a PM or e-mail with your address. The list is only available in a word document or text file... so you can't just get it in link form off the web.

-celiac3270

Oh, here's another topic on it from earlier today:

Open Original Shared Link

Thank you for posting, though...

Yes, this article was originally from AP:

Open Original Shared Link

Success!!!

The last thing is get plugged into the larger Non Profit Gluten Intolerance support groups!  GIG or CSA, depending on your thoughts on each one.  We've signed up with GIG and Love it.  The support, information, back-up and incredible events we've been putting together in SLC with their help.

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Excellent point. GIG is a phenomenal group...I love it and personally think that the CSA is a little...misguided. For example, they opposed the food allergen labeling bill. Just ask Richard (lovegrov on here, or kegler4 on the delphi board) about the CSA and he'll give you an earful...lol.

Hey, Marcie! Are you Tim's wife? I met him in Chicago (GIG conference) and knew him from the Delphi board.

Burdee, I posted under another topic (samples for support groups) having not seen this topic:

Actually, do you know the St. John's Listserv? They have a list for just general celiac stuff, but they also have one for doctors, one for support group leaders, etc. You need to provide verification that you actually lead the support group--like, the name of your group, etc. That might be something to look into. And have you been to the Delphi board? I know quite a few people there that head up the support group -- Tim Coda (gfskier)--actually, I think he told me that his wife played a huge part in setting up the group, so she is the head in name, Chris Spreitzer (SPREITZER), and a few others....

I would love to hear from other new (or longterm) leaders.  If you would like to correspond with me, just pm or email me.  I've already received some great feedback from the topic I posted on this site asking for suggestions from other leaders.  Maybe we can start a mini support group leaders group!

BURDEE

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Actually, do you know the St. John's Listserv? They have a list for just general celiac stuff, but they also have one for doctors, one for support group leaders, etc. You need to provide verification that you actually lead the support group--like, the name of your group, etc. That might be something to look into. And have you been to the Delphi board? I know quite a few people there that head up the support group -- Tim Coda (gfskier), Chris Spreitzer (SPREITZER), and a few others....