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celiac3270

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Everything posted by celiac3270

  1. celiac3270
    Oh, I'm sorry...is this for diagnosis or follow-up? If follow-up, then different standards apply, such as: gene testing isn't necessary..... With the follow-up, they would be looking for the antibody levels to go down... Sorry, I'm not familiar with your story.
  2. celiac3270
    Your doctor, if running a full celiac panel will do the AGA IgA, AGA IgG, EMA, Total serum, and the tTG. The AGA tests (IgA and IgG) are considered pretty useless now. The two that should definitely be run are the EMA and the tTG. Those are the two most accurate (the tTG is the best). An endoscopy should also be run, and you might want to do gene testing...
  3. celiac3270
    On the Chebe...that's about it: - No shipping if you order from Open Original Shared Link - Most people I have talked to like the Chebe bread mix as a pizza crust, rather than the actual pizza crust mix. - And if you buy in bulk, the price goes down. For example, if you buy it in the smallest possible unit (that is, eight bags of it), it comes out...
  4. celiac3270
    Kind of funny and yet, kind of disturbing
  5. celiac3270
    That's really nice...[that they would listen to you and be so careful]. And Happy Father's Day to you and the other dads here, however few there are.
  6. celiac3270
    Arby's nutritional information is here: Open Original Shared Link Pretty unhelpful, actually...doesn't show next to each product whether it contains gluten, but this is what I found from the SillyYaks Restaurant Guidebook (which I'm still sending to anyone who wants it). It had two columns: one to avoid, one to have...this was on the "have" side: Pepper...
  7. celiac3270
    It's free shipping if you buy directly from their website: Open Original Shared Link
  8. celiac3270
    I just flew United...had a lunch and a dinner. For lunch I had a salad w/ grilled chicken, asparagus, various other veggies, gluten-free roll. Dinner was another salad, some rice, and shrimp. However, with dinner they had a rice krispie (in the wrapper) on a plate......malt flavoring...didn't eat that of course...just shows that you hve to be careful.
  9. celiac3270
    Against the Grain has many errors factually and Jax doesn't take cross-contamination seriously. But if you really want that book, you might as well get the updated version, the Gluten Free Bible. I do not recommend this book to anyone, though. I would recommend Wheat Free Worry Free by Danna Korn.
  10. celiac3270
    Actually, you're best off buying it online. If you buy in bulk, they give you discounts, and I'm sure it would be more expensive at your health food store. Plus, there's no shipping at all, so you wouldn't save that at the health food store. That's why I haven't asked my healthfood stores to carry it.
  11. celiac3270
    I think your physician is about 1/2 right on this one. An AGA IgA definitely is not enough for a diagnosis. The Anti-Gliadin tests are not very accurate at all. The tTG is the best serological test out there right now, followed by the EMA. A negative biopsy and a negative tTG would be grounds for saying no celiac. However, one sample is not going to...
  12. celiac3270
    No biopsy...then your doctor is going against the celiac experts and the findings of the NIH in their Celiac consensus, which recommends a endo. for a celiac diagnosis. Congratulations all the same...in a very twisted way
  13. celiac3270
    In the post area, you can hit the button that says "http://" and then paste or type in the link. Also, any link that begins with http:// will automatically be converted to a link...so while www.celiac.com wouldn't be changed, Open Original Shared Link will be changed.
  14. celiac3270
    Not all BBQ sauce contains gluten...and the Stax are definitely gluten-free. THey have a pizza flavor, too, but it's gluten-free. And hidden valley ranch dressing isn't gluten-free, but their flavor of Lays stax is....
  15. celiac3270
    I get Living Without. Gluten-Free Living is also pretty popular. Oh, and GIG (Gluten Intolerance Group) comes out with a quarterly newsletter, as well...if you become a member you get the newsletter, some brochures and dining cards, and discounted prices if you go to any of the seminars they have.
  16. celiac3270
    Look up above where it gives you your web address. It should be something like Open Original Shared Link (that's this post). The number you would refer to in this post is 7378. You can't search by number, but if you get into a post, click on page one (unless there's only one page), then replace the four digit number of that one with the one you're...
  17. celiac3270
    I understand how frustrating that must be. Prometheus is probably the best lab for celiac testing.
  18. celiac3270
    12 years (and the average time to diagnosis in the US is 11 years, so I exceeded that...)
  19. celiac3270
    I take regular Centrum for a multi-vitamin, but have taken a gluten-free liquid vitamin for calcium. The one I take is: Natural Wealth Liquid Calcium. It says on the side that it's "guaranteed free of: yeast, wheat, gluten, milk or milk derivatives, lactose, sugar, preservatives, artificial flavor, sodium (less than 5 mg per serving)."
  20. celiac3270
    Not exactly...the AGA IgA and AGA IgG aren't specific or sensitive enough...and are therefore, according to most celiac experts, not worth running. It's basically the tTG and the EMA, though the total serum is also good to run. The tTG is the best test to have run--most specific and accurate. The EMA is a little less popular because of expense (primarily...
  21. celiac3270
    Ha! How cool is that? I was just at the GIG conference in Chicago and I ate a few meals with a celiac and her parents from Manhattan Beach...I'll e-mail this thread to them. Of course, there are always the chains to fall back on: Outback, TGIF, PF Changs, Arbys, etc., etc.
  22. celiac3270
    You mentioned bread..... At the GIG conference in Chicago I found two breads that I find to be better than Ener-G or Kinnikinick...one of them--the already baked one is made by Charlotte's Bakery...they're centered in Salt Lake City and the bread has no preservatives, but is so...light! I never liked sandwiches after diagnosis because of the bread and...
  23. celiac3270
    I was at the GIG conference in Chicago this weekend and there was a talk on DH...here are some of the basics: - How long you had the rash prior to diagnosis will affect how long it takes you to recover...if you had it only for a few weeks, then it might take only a few days to clear up, but if you had it for years, it might takes months or years to fully...
  24. celiac3270
    Absolutely terrible for celiacs...that's just as bad as going into a grocery store and buying whole wheat bread.
  25. celiac3270
    Oh, gosh, I've been away too long. I was in Chicago for a GIG conference and I had an amazing time...my first more than one day conference and I was in gluten-free heaven! Met some great people, too. But I came back to five pages of new posts...I'll be here till 3 AM, lol. I'm not a huge fan of celiac disease sucks, either. I only have one type of...
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